Living With Migraines Everyday

By hamiltonlady Wednesday, February 06, 2008

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Hi Everyone,

I have always had migraines but they have gotten after I had taken a seizure in 2003. Because now i have them 24/7 they never go away, been to family Dr, neorlogist they have done mri's and cat scans. they did say that there was damage done to the frontal lope on my left side but to them it looked like it happen before 2003.

I have been taking Topmax 100mg and amitripyline 50 mg, they have also giving me Ipuprofen 600mg which i am only allowed 4 a day. And none of it helps. The migraines get so bad at times it feels like my head is going to exploded and it makes sick to my stomach. I don't not sleep through the night because of it.

There are times when it is so bad that i have to put my head under ice cold water to relieve some of the pressure. I 'm not able to work because of the headaches when they are really bad i see flashing lights and sometimes i can't focus my eyes. I have two daughters one lives on her own and one still lives at home with me can't do a whole lot of things with her cause of my headaches I try as much as i can . It has gotten to a point where family memembers can tell if i am having a good day or a bad with the headaches by just looking at me.

I try to stay positive but it does get very frustrating when the drs can't find out what is causing the headaches my family dr calls it a complicate headaches. And i go to the hospital when they are really bad but they always say there is not much we can do for you go to your family dr.

I am glad that I found this site cause now I have somewhere to go to talk with other people that suffer from the same thing i do

Thanks for listening

Tina

Comments (11) | Add comment

Nancy Harris Bonk, Health Guide

2/ 7/08 1:39pm

Hello, and welcome to MyMigraineConnection.com!

Migraine is a genetic neurologic disease needing management to keep our pain as reduced as possible. You sound like you are really suffering. Daily pain takes a toll on everyone around us. The best thing we can do for ourselves is find an expert to treat us. This doctor a Migraine/headache specialist, devote their entire practice to diagnosing and treating people with Migraine and headache disorders. We have a list of patient recommended specialists, even in Canada, you can click on HERE.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Also on the home page is a green box where you can sign up for our free newsletter to keep you updated on Migraine disease and headache disorders.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

GWP

2/ 7/08 3:33pm

Welcome! I'm sorry you need to be here, but I'm glad you found us. I was SO reassured when I discovered that I wasn't a freak of nature, that there were others going through what I was.

Are you taking the pain med more than 2 or 3 days a week? If so, you could be having medication overuse headaches (rebound headaches). There's a great article on the site, and several threads on the Forum. Preventives have a hard time working if you're in rebound. The only way to get out of rebound is to stop the offending med. It's tough -- I've been there -- but it's the only way for preventives to have a fair time.

It sounds like the Topamax and amitriptylene (is that what it was?) aren't doing the job. There are over 100 possible meds, and thousands of combinations, that can prevent and treat migraines and other headaches. Have you asked your doc about increasing the Topamax, or trying something else? Some people have great results from Topamax, but it was a total bust for me.

Nancy is right about seeking out a specialist. I started seeing one in December. I've been having daily head pain for several years. My local neurologist is great, but both of us were out of ideas. The specialist changed one of my meds and added two more. I'm seeing some improvement, and I'm not at full dosage on two of the meds yet.

I'm in Central Mississippi, and my specialist is in Nashville. It's a hard 7-hour drive, so I fly. It's worth the airfare. I'd have to spend two nights in a hotel anyway. Teri, our Expert, used to drive 9 hours to see her specialist. Now, she flies from West Virginia to Dallas.

I understand about not being able to work. I had to give up a successful law practice because of my head, and it was tough to admit that I just couldn't handle it.

Come over to the forum. We're a big family, and there's always someone to talk to.

Gretchen in Mississippi

Leila

6/10/08 11:33am

Hi Tina,

Well, I can truly empathize with you because I too, suffer from migraines EVERY DAY. I have been to the doctor, to the hospital during horrible attacks and to a neurologist who specializes in migraines and who put me on the treatment that I'm on today. I have tried practically every medication out there for migraine pain and none of it works. The only medicine that works when I have an attack is Naramig, but it takes at least one hour to feel relief. I wish I could take a Naramig at every moment that I start to feel a migraine coming but I'm not allowed too. The treatment that I'm on is a medication that I have to take daily, limiting me to 30 pills each month - the doctor told me I was taking way too much medicine and that it could be causing me another different kind of migraine. I just can't win, seriously. I don't know why I am suffering each day. When I was about 13, I realized that my headaches were more than ust minor headaches when I began to get nauseated and couldn't concentrate on homework anymore, but at this time, I was only having bad migraines once a month. For the past 6 months or so I've been having migraines everyday, experiencing a horrible attack once a week. It's become too much and actually, about a month ago it lead me to having such horrible thoughts and mild depression. I feel like these migraines are controlling my life and that kills me to think that. All I want is to feel normal again. At times, I feel very hopeless and so sluggish. It takes a big effort to get up each day and do the things I have to do. When I was a child, I was in a car accident and had some minor damage to my head that seemed to disappear with age. In last years of high school I was having seizures for unknown reasons and went to a neurologist and had all sorts of tests done and they found nothing. The seizures lasted only one year and were very sporatic. I have no idea if the seizures or the head trauma have anything to do with my migraines but I'm so so tired of it. If you receive any relief, please tell me what works for you because, I think anything can help at this moment.

Good luck,

Leila

Stephen Dunn

10/23/08 11:40am

Hi, I am 15 years old and I have the same migraines that you are explaining. The doctors have offered medication to me before too, but I have turned them down due to finding out that they do not work. I was about 5 when I had my first migrane and did not have a clue about what it was. My mother took me to the doctors to find out was wrong with me because I was not running a fever and then it stopped. He told me to take a medication for two weeks and let him know if it helped. It did not help and he then told my mother he had no idea of what to give me and told me that I was going to have to be strong and fight it. For the next 6 years I fought it as it got worse and now it won't stop. I hope that you find a way to feel better. I just wanted to let you know you where not alone.

Sincerely,

Stephen-Alexander B. Dunn

October 23, 2008

Anonymous

1/ 8/09 1:28am

I, too suffer from daily migraines and head aches. It started my junior year of highschool and this is my fifth year that I have been suffering with the pain. Ive been to primary care, neurologist, chiropractor..you name it. And nothing seems to help. Ive tried herbal, exercising more, and changing my diet...still no results. The meds that I have been on are imitrex, topomax, midrin, lyrica,amitryptaline, maxxalt, nortyptaline, and butalbital. None of them have worked. The doctors make you feel crazy and just keep giving you drug, after drug after drug. And you seem to lose hope. But its good to know that I am not the only one out there dealing with this pain. I feel for you all and hope you get better.

alexandra

3/15/09 1:53pm

Have you had any metalic taste in your mouth and a constant runny nose??

it could be spinal fluid leak, which means you do not have enough fluid protecting you brain and spine which cause the brain to push against your skull which causes imense pressure!!

It is dangerous and can be detected by an mri but is very easily missed!!

ask about a possibility of that!!

take care...

Beth

6/15/09 8:57am

My partner has these too every day. She goes in to get a shot of Daulatin 4mg. She also take Oxycotin for them. I am in fear that she will become addicted to the medication if she isn't already. She has been suffering for over 15 years. I am sorry to hear that you only get Ibuprofhan though. I would check into something more aggressive. She too is on Topomax.

Good Luck

katherine

8/29/09 2:55pm

i have migraines just like you are describing. I have had them everyday for a long time since June. My doctor prescribed Topamax to me as well but it only gave me more dangerous side affects. There is alot of dangerous side affects to the drug.

My migraines make my head feel like my head is gonna explode too. I get hot flashes too and dizzy and ive also had hiccups for nearly a year everyday every hr or so. I also get so nauseated when i get migraines, which i know is common. I am only 19, but it feels like im 30.

Aswet

5/ 6/10 8:41am

It's interesting how some people have it from a certain age, but I had them since I was born. And now I'm 20 and still got none stop Migraines none of the pills or injections work what so ever and i get them 24/7 starting from minor to major during the time from morning to night. And I wake up again in the moring and it's starts all over again like a clock work. I have times where I just wana suicide due the pain in my temples and there is nothing I can do. Usually the pain starts from the left and grows in pain to my right temple. I did have MRI and CAT scans I even had tests to see if I had a Tumor or a Cancer. The pain is some times impossible to bare with it. When I had a really bad one I lose control of my self and I'm kinda being paralized. I had to drop out of school a couple of times due to the pain. And yet I still live with them, all thou I get alot of disadvantages but i still manage to live with it fot the past 20 years, Also there is an injection called B1 and B2 I belive it's painfull but it worked for me for about a month then my body got use to it due to high immune system in my body. I use to take that injection for about a month 2s a day one in the morning and one before i go to bed.

jujuhappybee

3/19/11 7:02pm

I don't know where you live but you need to go to a head ache Center at a hospital for treatment. I was diagnosed with Hemicrania Continua in 2007. Please have your Dr. check it out. You may be on the wrong medication.My doctor is here in Philadelphia at the Jefferson Headache Center. I suffer the same symptoms that you do. You should call Dr. Wm. Young @ 215-955 -2243 and ask him about your condition. I am on a drug (mexilitene and Indomethicin) that makes me able to function like a normal person but I still feel like a crazy person because of all crazy symptoms.

I wish good kuck. Call Dr. Young.

Kindest regards,

Someone just like you

Jordan1992

8/17/11 6:51pm

I am so glad i stumbled across this, I am 19, I have had migraines every single day for the last six years, I've had every test possible and doctors and neurologists have found nothing, I have had countless medications in every form possible, at one point my doctors decided I was stressed and put me on anti-depressants and muscle relaxants, but still this didn't work.... My migraine attacks gets bad that I lock myself in my room, close the blackout curtains, turn of all power at the mains, and just hide under my blanket crying, I have tried all the diet changes and exercise plans etc, and nothing works.... My neurologist believes I have one option left, this would be the Botox injection to paralyse the muscles and pain receptors which cause migraines..... I have thought long and hard about this and it basically seems like a long shot, but isn't everything? So I guess I was just wondering if anyone else had been offered this or even had this treatment and could tell me if it is effective?? I hope someone can reply. Many thanks Jordan

Living With Migraines Everyday

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