Hi Takka, my name is Kaylene and like you I have suffered chronic headaches & migraines all my life (45yrs). I was so pleased to hear that the drug topamax is working for you. I wish we had access to that particular one here in Australia, probably another 10 years give or take. I suppose anything that gives you a little relief is worth it, but I'm always worried about side effects of some of these so-called wonder drugs. I was told 7 years ago that I have significant liver damage and to stop drinking. I looked at my doctor in absolute shock, I don't drink at all! But the medical profession (in their infinite wisdom) would not admit the damage has occurred because of long term medication. So I checked myself into our local pain clinic and spent the worst 3 weeks of my life coming off all the horrendous medications they had been feeding me. I wish I could tell you that I don't need drugs anymore, I still crave the harder ones (morphine, methodone), but am now on anti seizure ones, following a stroke I had on my 42nd birthday (i really had my heart set on jewellery, but what can you do). I really hope your medication helps and would chat sometime.
Cheers
Kaylene
I am so sorry to hear that about your liver. This med is also and anti seizire med. And it also has its side effects. Even if I'm not noticing any now. All meds eventully will effect us in some way if we take them long term. I don't even know if I'me spelling words right. I thought when I was reading about people taking this med and forgetting how to spell, I thought they were just exagerating. I went up on my dose this week. I am at 75mg. I feel a little more dizzy. I can't sleep that good at night. I go back to my neuro on the 7th of Nov. I will ask for something to help me sleep. I also have Relpax, it is only taken before I actually get a migraine. I had to take one Sunday. I knocked me out in 2 mins. I am so glad I wasn't at work. My neuro didn't even tell me that it would knock me out like that. I hope this new med works for you!
Hello, and welcome to MyMigraineConnection.com!
It is so exhausting living in pain everyday. Hopefully Topamax will help reduce your Migraine frequency. An important thing to remember is that side effects are potential, they don't happen to everyone all the time. Sometimes these potential side effects disappear after we reach the optimal dose. Having said that if topamax is not the right medication for you, not to worry there are many more Migraine preventive medications to try.
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