I just logged on this website for the first time. I have been on topamax for about 4 weeks now. 50mg in the morning and 50mg at night. I have had terrible tingling in my arms all day and very fatigued. Still experiencing headaches about 3 to 4 times a week - although tollerable, I am still needing to take my god send rx "relpax" when these "head bangers" occur. I have 3 young children and am on the go all the time. The relpax works really well for me. I only started the topamax in hopes of "prevention." I am now wondering if I made a mistake with all of this tingling and fatigue. Does this subside? and Will the topamax start working so I don't need the relpax so often? Because, as of right now, I am taking topamax and relpax. Toxic waste dump!! Should I stick with the old addage, If it aint broke, don't fix it....and stay with only the relpax????
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As we all say, we're so happy you found us and so sorry you need us! Be sure to check out our forums too!
From what I have heard, the side effects you are mentioning do go away after about 2-3 months. I don't take Topamax myself, so be sure to read the info Nancy gave you above.
If you are getting migraines 3x a week, preventive medications are a good option. Even though your Relpax is working now, our bodies adapt to medications over time, and it may not always be as effective as it is now. I have been on Relpax since Sept for my 3-5 migraines a week, and it is much less effective than it used to be.
Keep in mind, if Topamax doesn't work out for you , there are over 100 drugs used to prevent migraines.
Iv'e been on Topamx for about 4 months and at first the numbness and tingling was terrible. I was given anatriptalyn (sp) to help reduce the effects, it helped, but it really zoned me out and I felt sedated and could not wake up in the morning, so I quit taking it after a month or so.
The Topamax along with one round of Prednisone (won't do that again) broke the cycle of daily rebound headaches and the tingling does subside after a while. Some people are more sensitive than others. I felt it mostly in my hands and feet.
I take Relpax for what used to be rare migraines, but now the happen 3 times a week, but for now, the Relpax works with the first tablet in about 1 1/2 hours.
Good luck with your headaches and I hope your improve. I've hed them since 1985.
April :-)
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Hello, and welcome to MyMigraineConnection.com!
We're so glad you found us. We think you'll find lot of information and support on this site regarding Migraine disease and headache disorders.
Our complete topamax profile can be found HERE. Typically topamax is started in small doses, then gradually increased - you will read about this in the articles. This allows our bodies to adjust to the medication. It can take up to 3 months to see a reduction in Migraine frequency and any potential side effects to lessen.
Relpax is a triptan used to abort Migraine attacks. If we these and certain OTC and other prescription medications more than 2-3 days a week, this can create an additional headache called Medication Overuse Headace. And no Migraine prevention drug on earth will work if we have MOH. For more information on this, click HERE.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
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Welcome again,
Nancy BonkMyMigraineConnection.com Expert