Monday, May 28, 2012

Hello all! Can I be your spirit guide? This is a long read, but please read and respond!!!!!!

By 5440 Sunday, May 17, 2009

 

Then I start to shudder, a tremor starts inside me and my whole body trembles, all that exists now is pain. I feel nothing else, I am aware of nothing else. I now know that even death will not release me from this pain. I am pain personified; I am all the suffering and pain beyond description of the universe contained in this head and it can’t take it. I just want to blow my brains out and end it all!

I collapse to the floor, I can't even scream anymore, with what voice I have left, I'm just begging God to take me now! Kill me please!!! If you care at all, you'll KILL ME NOW!!!

 

Then, while begging for God to take my life, I just start crying. Crying like a baby. Crying like your spouse or child just died. I stop asking God to kill me. I just lay and cry and repeat "please stop, please stop, please stop, please stop, please ####### stop this" over and over and over.

 

Then suddenly (literally within 1 or 2 minutes), the "Beast" has left. It just stops with the exception of exhaustion and remembering what happened, your pain free. It just stops. It leaves me laying on the floor, I open my eyes and try to focus and wonder where the pain went. I have to take a minute or two before I can get up, but I finally do, make it to the couch and just sit and take 10 minutes to regain my senses.

 

This all happens for 45 minutes up to an hour or so of complete non-stop madness, insane, crippling, debilitating pain. For some people it can last well over an hour. Some people experience so much pain during an attack, they literally pass out. Their body just shuts down because the pain is too intolerably excruciating! And we can't completely relax after an attack because we know the "Beast" is going to be back in a couple of hours and do the same thing over again. For me, like I said 3 to 6 times a day, but for some, it can be 10 or more.

 

Clusters have been considered by medical science, literally, the worst pain a human being can endure.

 

They are measured on a KIP scale from 1 to 10. What I just described was a major 10, almost suicide time). Usually, on a daily basis, they are around a 7 - 8 (which by the way, you're still basically doing the same thing). Us CHer's sometimes have shadows (feelings of a cluster starting) for hours and hours and are usually a KIP 2-3 (uncomfortable, but tolerable for a bit, but after a while, you start getting testy and irritable). At a KIP 3-4, forget about trying to sleep. A 5-6, you start pacing and swearing, holding/squeezing your skull. A 7/8 is pretty much a 5-6 amplified about 5 times, and I don't have to tell you again what a 9/10 is.

 

Anyway, that's all I'm going to say unless someone wants to ask me. Below is the video of the last 3 or 4 minutes of a major attack. And don't forget, he's going through this for an hour or more! Please watch it.

 

 

 

 

Nancy Harris Bonk, Health Guide
5/17/09 12:10pm

Hello, and welcome to MyMigraineConnection.com!

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

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Nancy Bonk
MyMigraineConnection.com Expert

5/17/09 1:52pm

One of my best friends sufferers horribly with cluster headaches. It's really an almost undescribable disease. Frown

 

I'm a bit confused though. What do you mean by "Can I be your spirit guide?"

5/17/09 2:40pm

Hi Arabella. Don't be frightened. It's just a line from a song that helped me get through

some hard times. It's a positive thing, not spiritual. Just a matter of concentrating on the positive and good rather than dwelling on the negative's like suffering.

Here's a little more of it, might make a little more sense:

 

"Hey hey it's okay to never know

the answer but ask why.
'cause you don't need another burden
come and party with your spirit guide.

I said hey, don't get your head a mess.
This is cracker soul it comes so easy.
I said hey, don't get yourself distressed.
Love is just the best when comes easy.
It comes so easy......"

5/20/09 4:43am

hi steve, i'm lori.... or chickie to most of my freinds.

 

i have long suspected that what i have is more cluster type headache than migraine, but i get them on average of 2 a week, not daily.

 

what you described is like what i go through about once  a month, except mine last for hours.

 

i have never been able to describe the pain to anyone. and if asked at any point in hte attack, my description might be different.

 

no doctor seems to believe me, except my PCP, who is limited in his ability to help me. so i simply suffer. take what drugs they give me, and pray that each attack will be the last.

 

suicide has crossed my mind several times, but i can't do that to my kids. or my husband, who does all he can to take care of me.

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By 5440— Last Modified: 12/06/10, First Published: 05/17/09