Jaclyn's Introduction - Hemiplegic Migraine Warrior

Hello, and welcome to MyMigraineConnection.com!

We are so happy you found us. You are in good company, there are a handful of other  Hemiplegic Migraineurs here that will make you fill at home.

Our information on Hemiplegic Migraine is a good place to start. You can continue reading that article: Hemiplegic Migraine - The Basics.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Welcome, and I'm so glad you found this site as well as a good migraine specialist to help you find relief and managment of your migraines.

I feel for all of you with this particular form of migraine. Although I have had migraine for 40 years, I feel fortunate not to have those additional awful symptoms you have.

My hope is that we can all continue to meet, talk, and take action for ourselves and also for more research and better treatments for migraine in the big picture. I'm sure you will find lots of support and friends here, too!

Best wishes always,

Betsy

Welcome!  I am glad that I have found this forum and that you are on board too  I had one episode of hemiplegic migraine.  It was in February of 2007.  I got the worst headache of my entire life.  The whole right side of my body went numb.  There were funky visual disturbances and I think there was some visual loss as well.  I was puking my guts out  My speech was slurred and what you could understand was completely incoherrent.  I was that way for about 12-14 hours.  I really freaked everyone out!  Thankfully the neurologist that was on call at our local hospital suffers from migraines so he knew exactly what was going on.  Of course they did a CT to rule out a stroke.  It was negative.  They did one 10 days later because they said something about a stroke may not show up right away??? Well that was negative too.  I was in the hospital for 10 days.  The HA decreased in intensity but never fully went away.  They pumped me full of steroids, dhe and God knows what else.  Since that point I have been suffering from migraines 2-3X a week and chronic daily HA.  The only realy period of relief was when I went on Namenda as a preventative in July 2008.  I had a blessed 3 month period of absolutely no HA or neuro sx!  But on Sunday, Sept. 29, it just came back.  I only get relief for about 2-3 weeks at a time at the most.  I am having increasing neuro sx.  I have incredible numbness, tingling, and weakness in my hands, arms and face, muscle pain and weakness, fatigue, heat sensitivity, lightheadedness, ringing in the ears, visual disturbances, etc.  They have always said that I "might have MS."  But all of my neuros have always chalked all of my sx up to these blasted HAs.  I went to the Cleveland Clinic on Monday to their MS Center.  The guy blew me off.  I tried to get an appt. in Pittsburgh, but can't get in until Jan.  I am trying to get in to another center in Pittsburgh - hopefully will find out about that next week.

It is wonderful that you have found a good specialist and that you are finding some much needed relief:)  I can't totally relate to you about feeling alone because my family and friends are very supportive.  But I do feel alone in the fact that in my circle of friends and family there is no one that suffers from migraines.  They are supportive, but they can't totally understand.  But you are fortunate that you have found this site.  Feel free to send me a PM anytime and we can correspond as often as you would like!  Many blessings to you - Kayleen

I am looking for the day I can get the right treatment for my hemiplegic migraines with opitical problems.  It is good to know there will be an answer.

deb