Monday, May 28, 2012

Listening to my Inner Voice

By Aprilheather Tuesday, June 19, 2007

I began experiencing migraine in my late 20s (10 years ago), however when I gave birth to our first daughter my migraines took on a whole new intensity.  I was unable to care for her.  I was rehospitalized for migraine when she was only 5 weeks old.  Many, many meds, docs, treatments, and a second daughter made matters only worse.  The side effects of the meds were so bad I could not function (mental fogginess, fatigue, hair loss, weight gain, etc).  I tried everything.  My Inner Voice, or instinct, kept telling me to consider hysterectomy, but every doc I met would not listen.  I finally kept a journal to prove they were related to the CHANGE in estrogen levels.  After enduring experimental hormone treatments, my OBGYN became convinced that I indeed did know my own body.  A full hysterectomy was performed one year ago and I am happy to share with others that I am completely pain free.  I have my life back--my girls have their mom and my devoted husband, his wife of 15 years.  I even ran my first 5k and began painting again--migraine paintings.  Listen to your instincts and never, ever give up.

Nancy Harris Bonk, Health Guide
6/19/07 8:24pm

Hello, and welcome to MyMigraineConnection.com!

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

 

I am happy to hear you are pain free. Migraine however, is a genetic neurological disease that has flare ups called Migraine attacks. While having a hysterectomy is not recommended for Migraine prevention there is evidence that some women expereince aa hormonal connection during their cycle. Listening to your body is extremely important, as is keeping a journal. There is now a triptan used for Menstrual Migraine called Frova that some women use with great success.


We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com.

 

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

 

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

6/19/07 8:43pm
Dear Nancy--thank you! I am well aware of what Migraine is. Being that it is a "genetic neurological disease" I understood why my mom's hysterectomy worked for her migraines 20 years ago. to be pain free is a gift from above--however the solution that worked for me would not work for everyone. That is what makes migraine so complicated. I did try Frova, along with DHE infusion,and DHE injections at home, along with Lidacain injections in my head and a steroid shot above my left eye--all at a headache center that would NEVER consider a hysterectomy. Open-mindedness is the key--each patient is an individual.
Nancy Harris Bonk, Health Guide
6/20/07 10:17am

Thanks for the additional info April. You are so right when you say we are all different and what works for some may not work for others.


I guess the bottom line is you are pain free.


Thanks for sharing your story with us.

Teri Robert, Health Guide
6/20/07 5:53pm
Thank you for making an important point. You listened to your body and made your doctors listen to you. I'm so glad this has worked for you. I truly hope that the hormonal fluctuations prove to be your only trigger so you remain Migraine-free!

It's so odd in a way. Some doctors actually recommend a hysterectomy for Migraine when there's no real evidence that it will work for them, yet yours was reluctant.

Again, thank you for sharing your success story and for reminding us all of the value of listening to that "inner voice."

Teri
By Aprilheather— Last Modified: 09/04/10, First Published: 06/19/07