Surgery relieves 15 yrs of Transformed Migraine

I have been to 3 major hospitals, and 4 top neurologists. I have had the migraines for 5 years with no days of relief. I have done the 4 week detox, biofeedback, phychologist thing twice. No help either time. I am told I am nonresponsive to all of the medications out there. I fall down, blackout, loose vision in my eyes, and spend a lot of time in bed. I have found nerveblockers do not work. The onlything effective is pain nedications. I am from Pennsylvania, and my doctor today said to go to the Hospital in Chicago, Diamond something. I am not sure what they will do there so I googled it and saw that they do the biofeedback and same routine as I have done in the past. What is the surgery you are talking about? Is it something different then I have mentioned? I am to the point I just wish I were dead, and have no where to turn. I would love if you could let me know. I have also not worked in 5 years, and I wish I could just have one day with no migraine. I am lost and really hope that you could help to imform me of what is working for you. I am going to try botox on tuesday, but they say they are almost convinced this is not going to help me, but no doctor will see me. I also had a stimulator put in and that almost killed me.

Tammie, 

DO NOT GIVE UP.  Continue to do the biofeedback.  Continue to ask for answers.  I can not diagnose you by email.  I can say that the physicians at Diamond Headache Clinic care deeply for their patients, a good headache doctor never gives up on their patient.  Go to a headache clinic, there are other headache clinics that are closer to you, such as Jefferson in Philadelphia (good docs -- but very rude staff in my experience) and Clinics in NYC.  If your doctor clearly tells you that they don't think a treatment will work for you, then they are far from being a good doctor.  YOU MUST ALSO BELIEVE IN THE TREATMENT, YOU MUST ALSO BELIEVE YOU CAN GET BETTER.  IF you read nothing else about headaches -- remember that.  BOTOX has worked for scores of patients like you, patients who have tried multiple other medicines.  Start telling yourself that you will find the right doctor, you will find the right treatment and that you are beginning to heal.  Tell yourself this over and over and over and over.  

 

Be open to what your doctors tell you.  If they believe you are depressed, than seek care for the depression.  If they believe you are not giving medicines an accurate trial, then hear them out.  If they believe you are seeking controlled pain medicine than tell them you will sign a pain contract with them.  Ask them why they think you are resistant to all medicines.  Hear them out.  They very well maybe jerks, but they just might say something you need to hear and even still be jerks.  

 

Your note says you are falling, you need to know why you are falling.  Ask your doctors to deal with one issue at a time.  On one visit the falling.  On the next the headaches.  Unfortunately doctors in reality do not have enough time to spend with patients.  When you go to thedoctor ask them to evaluate your occipital nerves for tenderness to see if you may be a candidate for local nerve blocks, botox injections to the nerves, or down the road surgery.

 

Hang In There, you are not alone.