Monday, May 28, 2012

intro and reflection

By MaxJerz Tuesday, January 01, 2008

I've been a member of the forum for several months now, but I figured I would register on this part of the site too. I'll post a bit of an intro for those of you who haven't "met" me before. 

 

2007 was a difficult year for me, health-wise, even though my personal and professional life went very well. This year brought my second struggle with both chronic daily headache and frequent migraines.

 

I've had frequent headaches most of my life. My mother always told me they were sinus, which I believed because I also had such terrible allergies. By the time I was 14, I had terrible allergies and chronic headaches. It wasn't until my third year of college, when I turned 20, that I finally found out what was going on with my head.

 

My allergist referred me to an ENT (ear, nose, throat) doctor once we realized my headaches may not be just allergy-related. My ENT sent me for a CT scan and discovered I have a deviated septum and quite a bit of blockage in my sinuses. She sent me for a consult with an ophthalmologist and neurologist to ensure my headaches weren't something else, before I underwent any surgery to correct my sinus problems. I never had the surgery. My first neuro put me on Topamax, and my headaches were gone within two weeks. The constant dizziness and nausea were gone too, and for the first time in my life I understood what it felt like to be "healthy".

 

I graduated from college in 2006, and within a month, moved out west and tried coming off the Topamax (per my neuro's suggestion). By July 2006, I started having dizziness and nausea again, with minor head pain. I dismissed it as allergies. It took me until December to see my new PCP. Thinking it was a sinus infection, she tried me on some antibiotics. When those didn't work, she referred me to an ENT, who diagnosed me with allergies and headaches and referred me to a neurologist. I was rather upset that my headaches had come back so quickly and insistently.

 

Since I first saw my neuro in February, he and I have been working to find a treatment regimen that works for me. I haven't had much luck yet, but I am more dedicated than ever to finding something that works.

 

2007 was a very difficult year for me, health-wise. My headaches and migraines are the worst they have ever been. I've watched parts of my life pass me by while stuck on the couch, in pain. When I first realized the Topamax wasn't going to work for me anymore, I hit the www with a vengeance and started reading anything and everything I could find about migraines. I found my way here in June. And I've never looked back.

 

I don't believe in new year's resolutions, but I am rededicating myself to my healthcare. I have my first appointment with a new headache specialist next week. I am willing to do what it takes to find a treatment regimen that will get my migraines under better control.

 

I am looking back toward 2007 as a year of growth for me. I've learned much more about my disease, and have started keeping a headache diary to better understand my patterns and symptoms. At least now I feel like I'm doing something toward getting better. I am looking forward to 2008 as a year to continue to learn about my disease, but also to take my life back piece by piece.

1/ 1/08 4:26pm

Hi MJ!

 

It's nice to see you over here, too! Big Smile Boy, last year sure was rough on you! 

 

Here's to a healthy 2008!!!Grin

 

Heartjenny

1/ 1/08 7:58pm
Last year was rough on me, but I'm trying to keep a positive outlook for the new year! Here's to a healthy year for all of us!Heart
Nancy Harris Bonk, Health Guide
1/ 2/08 11:27am

Hello, and welcome to MyMigraineConnection.com!

Thank you for creating a SharePost.  SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things. Sometimes I find it a great way to "let go" of certain things, and I feel better.

We also have a discussion forum that you may want to check out, that you are already quite familiar with. We are so glad you are part of our community.  To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com



If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

 

 

 

 

 

 

 

1/ 2/08 7:14pm

Hi MJ,

I still a newbie here but I have seen you on the forum side. It is great knowing more info about you.  To me your story inspires others to never give up no matter how rough it getsBig Grin, Here's is to a great 2008!!  Let us know how the specialist goesBig Grin

Dar

1/ 3/08 7:39pm
Aww, thank you! I appreciate hearing that you find my story inspiring. If I think about it too much, I usually find it depressing. Tongue But, on the other hand, if I've found something that worked before, I think I can find something again. I'll just have to search a little harder...
1/ 3/08 12:44pm

Big Grin

 

There's something really nice about shareposting. I use it to communicate with DH- he's subscribed to my shareposts- and when I write something, he gets an email telling him to come hither and read. This small thing has really opened our communications, if you can believe it! He knows what to expect- especially when I'm getting clobbered and will be a total mess when I get home from work- that I'm not going to want to be chatty.

 

Welcome to the "other side"

 

-Jamie 

  

1/ 3/08 7:43pm

Jamie, that's a really great idea! I may have to suggest it to DBF. That way he'll get a better handle on how I'm feeling from day to day. I've tried other kinds of blogging before, but I hated venting on there all the time about my migraines, since none of my friends who read my blog really "get it". Here I never feel like I need to censor what I'm writing.

 

Hope you're having a better day and not thinking about your coworker's rotten comments to you.Heart

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (4351) >
By MaxJerz— Last Modified: 09/04/10, First Published: 01/01/08