Thursday, February 09, 2012

book review: The Migraine Brain

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MaxJerz

MaxJerz

Sun, April 05, 2009

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Published just last year, The Migraine Brain: Your Breakthrough Guide to Fewer Headaches, Better Health, by Carolyn Bernstein, MD, and Elaine McArdle, has gained quite a bit of publicity, being featured on The Today Show and NPR, as well as winning a number of awards. In fact, I had to wait almost a month to get a copy of this book through my local library.

 

The best part of the book is probably expressed in the book flap introduction:

 

You know that your migraine isn't just a headache. But you may not know that migraine actually is a neurological disease. ... it's a debilitating, complex, and chronic condition that manifests in a combination of symptoms that can include excruciating head pain as well as other distinctive physical and emotional effects. Yet it's also a disease that you can get control of, improve, and manage ...

 

It is refreshing to find a publication with such wide reach finally referring to Migraine as a neurological disease. Other positives include:

  • Discussion of how the Migraine brain is different from a non-Migraine brain;
  • Description of the four phases of a Migraine attack;
  • Explanation of the importance of identifying triggers;
  • Focus on a three-pronged treatment plan: prevent, abort, rescue;
  • Exploration of various treatments, including complementary treatments; and
  • Review of the components of an effective wellness plan.

The negatives, however, would make me reluctant to recommend this book to other Migraine sufferers.

 

First, Dr Bernstein gives only a passing mention to Status Migrainosus (also referred to as Status Migrainous), saying, "... it can be serious. If you get a migraine that lasts more than seventy-two hours (three days), you should seek medical attention, not only to ease your pain but also to ensure you don't become dangerously dehydrated due to vomiting, inability to hold down liquids, or diarrhea" (23). Where is the mention of increased stroke risk? It gets worse: "... 'status migrainosus', a severe migraine that can last over a week. It isn't necessarily dangerous" (66). In fact, the word stroke is not mentioned on the same page as status migrainosus even once in her book.

 

Second, Dr Bernstein's terminology is not consistent with the International Headache Society's International Classification of Headache Disorders. She uses a number of outdated Migraine terms, including complicated Migraine, ocular/ophthalmic Migraine, basilar Migraine and Migraine equivalent. Her brief descriptions of the various Migraine types also do not match up with the IHS's classification described in detail on MyMigraineConnection.

 

Third, she overemphasizes the risk of addiction to pain medications, while underemphasizing the risk of Medication Overuse Headache (MOH). In fact, she refers to MOH as rebound headache, another outdated term. She also does not draw a clear distinction between addiction and MOH. Since many Migraineurs end up in MOH cycles, the lack of a clear explanation of this serious problem is worrisome.

4/ 5/09 6:29pm

Interesting, MJ.  I have also been very troubled by the innacuracies in the book, though I have not finished it yet and have been trying to give it the benefit of the doubt.  There were numerous points where she downplays dangers.  The status migrainous point is one, also right at the beginning in her "myth busting" she states that no one ever died from a migraine attack - well, what of migrainous stroke, then?  It is dangerous for a MD and director of a headache center, who will get a great deal of credibility out of her status, to make incorrect points like these.

 

I do think that her description of the Migraine brain is useful, the phrase she uses is "a high maintenance brain" which I really like. It is helpful for Migraineurs and others to really understand that our brains are different and must be cared for, that our lives must be kept regular to regulate our brains. I also think she has a number of worksheets and tools which are helpful.  Now, could those things have been done in a more accurate and well written book? Of course.  Is the book worth buying?  I don't know.  If you're only going to buy one book on managing your life with Migraine, this is definitely not the one.  I agree that Teri's book is better!

4/ 6/09 12:54am

Megs, thanks for your comments. I agree there are some real positives to the book, including her references to the "Migraine Brain" and "high-maintenance brain". But I am troubled by her use of outdated terms. I didn't mention this in the review, but I think it's very telling that the physicians she consulted with for this book (mentioned in the acknowledgements at the end) aren't any of the names we usually hear about in the research/treatment of Migraine (Lipton, Krusz, Young, etc).

 

I will be interested to hear your opinion once you've finished the book.

 

Be well,

MJ

4/ 5/09 9:39pm

Great article, MJ. I really appreciate your review.

 

Although, I have not read this book, I have heard similar praises for her description of the Migraine brain. I like your point that if she so many typos were left, what else might have been overlooked. I also wonder why she uses outdated terms. It makes me question if she is up-to-date on current literature. 

 

Like you and Megs, I find it especially alarming that she does not find status migraine more alarming. No mention of stroke is extremely concerning.

 

Thank you for your candid and honest review.

4/ 6/09 1:01am

Thanks for your comments, Kelly. I completely agree with you that her use of outdated terms makes me wonder if she's up-to-date on the latest research. Like Megs mentioned above (and I mentioned in the review), there are some real positives to this book. But I would absolutely recommend Teri's book over this one, and much of the worthwhile information found in the book can also be found on this website.

 

Be well,

MJ

4/ 9/09 9:26am

I REALLY appreciated your candid review of "The Migraine Brain". I have read the book and it was the name of the book that drew me to it. I am 61 and have migraines since age 30 and am now retired on disability however I am still fighting with the Long-Term-Disability and waiting for my hearing with Social Security disability. Because of that I was looking for a couple of books that would help describe the migraine process better to those that don't have a clue. As you said in your review and someone else commented, it gives a great description of the migraine brain. It helped me understand the process better. However when I finished to book I was a little disappointed and now I know why. Her details are lacking but I wasn't sure what it was because I am not as familiar with you. Your review helped me understand it better.

 

Since then I have also read Teri Robert's book and throughly loved it. I learned sooooo much. She is quite an amazing lady. That is how I came across this web site. I am forwarding some of her information to my lawyer because he isn't going to know the details about migraines either. I have had migraines for 6 or 7 days and had read that it was dangerous but never knew why until recently. That is really crucial to know.

 

Like you I think the typos are important. It tells a story. I worked in the printing field and know how easy it is to have mistakes but in this day and age of technical power there is really no excuse for it. As you said, if it wasn't proofread for spelling and grammar then what about the facts included.

 

Thank you for helping me see the values of the book and the things to avoid referencing.

 

Carol

4/ 9/09 2:13pm

Carol, thank you for your comments. I'm glad to hear that you've read Teri's book and found your way here. (I really do think Teri's book is the gold standard for Migraine books.) If you have any questions about Migraines or the disability process, there are a lot of wonderful, compassionate people happy to help either through the Q&A section, or the forums.

 

I wish you the best of luck with your disability claims. Hopefully Teri's book can help your lawyer to understand.

 

Be well,

MJ

4/16/09 12:33pm

MJ, thanks for this thorough and helpful review. I haven't read the book yet and now know that I don't have to rush to do so. As an editor (who makes mistakes too), I cringe to hear about typos that should have been caught because they do harm credibility.

 

Appreciating your time and effort,

Betsy

9/ 4/09 4:01am

I rushed to buy it after seeing it on tv and was very disappointed it. I never actually finished it. Just the outdated terms, the lack of mentioning stroke associated with status migrainous (sp?), and a few other little things just put me off and made question her credibility. Maybe one day I will finish it, not sure. I have read so many books on migraines, and I agree that Teri's is the best. The only good thing about this book is that it does go into detail about how our brains differ from other people's brains. Thanks for posting the review, I think it will save a lot of people from wasting their money on this book!

 

Sherry

Anonymous
NJO
6/27/11 2:28pm

Thanks for updating Migraine info...it is encouraging to read well informed bloggers on Migraine issues!