Living with It!

Andrea Community Member September 27, 2007
  • I was 5 when I started having aura migraines.  Over in Europe, it is not generally accepted that children have such headaches.  I was dx'd with SHM.  Those are supposed to cease as an adult.

     

    I took Imitrex & Midrin with terrible side effects.

     

    I have had a mix of SHM and Optical Migraines with aura since then.  Just recently (Jan of 07) I started having light flashes in my right eye and icepick headaches.  An opthamologist sent me for an MRI/MRA which showed a venous angioma.  The icepick headaches assicated with the light flashes were a trigger to the OMs.  I was still having SHMs randomly, but more frequently, causing numbness and tingling in my left side.

     

    An Air Force neurologist put me on Zoloft & Maxalt.  These two drugs have helped with the frequency, but not severity, of the them.  The Zoloft had given me nausea so much so that I have dropped back to 50mg a day. 

     

    I will be seeing a neurosurgeon for the venous angioma in October.

2 Comments
  • Andrea
    Aug. 25, 2010

    Ah, its been 3 long years since I was on here!  Well, I guess an update is warrented.  :)

     

    I have seen two new Air Force Neurologists and finally a civilian doctor.  We've determined my HMs are actually familial, as my father has them also.  I am now on Depakote (700mg) daily which is working wonderfully!  Only time mine are triggered...

    RHMLucky777

    Read More

    Ah, its been 3 long years since I was on here!  Well, I guess an update is warrented.  :)

     

    I have seen two new Air Force Neurologists and finally a civilian doctor.  We've determined my HMs are actually familial, as my father has them also.  I am now on Depakote (700mg) daily which is working wonderfully!  Only time mine are triggered now is a massive low-front coming in from Canada.  (Oh those Canadians....hahaha!)

     

    I am finally good as gold and happy.  It's taken way to long to figure it all out, but at last it is done.

  • Nancy Harris Bonk
    Sep. 27, 2007

    Hello, and welcome to MyMigraineConnection.com!

     

    You seem to have quite a few things going on don't you? Do the doctors think venous angioma has any impact on your head pain? With all the different types of headache disorders you may have going on it may be a good idea to see a Headache/Migraine Specialist.

     

    Optical Migraine...

    Read More

    Hello, and welcome to MyMigraineConnection.com!

     

    You seem to have quite a few things going on don't you? Do the doctors think venous angioma has any impact on your head pain? With all the different types of headache disorders you may have going on it may be a good idea to see a Headache/Migraine Specialist.

     

    Optical Migraine is not a standard diagnoses according to the International Headache Society's International Classification of Headache Disorders, but Retinal Migraine is. Here is some information on Ice Pick Headaches

     

    Sporadic Hemiplegic Migraine or Familial Hemiplegic Migraine are rare forms of Migraine disease typically starting in childhood and ceasing in adulthood. Some people can experience FHM/SMH longer periods of time.

     

    Thank you for creating a SharePost.  SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

    We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

    Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com.

    If you have any questions, please feel free to post them to the forum or send me a message through my profile.

    Welcome again,

    Nancy Bonk
    MyMigraineConnection.com Expert

    PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

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