Suffering going into the second week now!

you sound about like i did for the last 2 weeks.. on my final visit to the er they gave me a narcotic through my iv that doped me up and knocked me out for a few days but since then ive been good. they also gave me a perscription for  butalbital/apap/caffine tablets and vikadin that seemed to help as well.. hope you get to feeling better soon!

Hello, and welcome to MyMigraineConnection.com!

I am so sorry you are in so much pain. Are you still under the care of the other Migraine specialist? Can he still treat you? If so, call the office, and tell them you have had chronic, un-relenting pain longer than 72 hours, have been to the ER three times and still haven't had your Migraine broken. There is a condition called Status Migrainous that may put us at an increased risk for stroke if we have Migraine pain lasting longer than 72 hours without a four-hour pain-free break while awake. Medical care is needed in this case. Read more on this condition in this article: Status Migrainous - The Basics.       

Therer are other IV treatments your doctors could do for you either in the hospital or in there office to break this horrible cycle. Click on these links for information: IV Treatment of Refractory Migraines  and IV Lidocaine - Effective Treatment for Refractory Migraines in the Clinic.

By any chance do you take any OTC and/or prescription medications more than 2-3 days a week? This could unwittingly create another headache problem called Medication Overuse Headache, MOH. No Migraine prevention medication on earth will work if we are in MOH. For more information on MOH read this article: Medication Overuse Headache - When the Remedy Backfires.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Just a suggestion. My migraines tend to run constantly also. I will get one and then rebound immediatly after. I am also on topamax. However, I tried Imitrex in my Dr's office. It made the headache worse. Much worse. She actually had to give me some strong painkillers to dull some of the pain. I just thought you may want to bring that up with a doctor. I know how frustrating doctors can be, I have medicaid. It seems like they never listen and just want to rush you through and pass you on to someone esle. Hang in there. I hope things work our better.

Michelle

I to have experienced this.  I have now seen a neurologist she started me on Namenda which is a althiemerzers drug, I've been taking for about 2 weeks as the doses do increase from 5mg to 10mg.  Since starting the second increase, I'm waiting to see if I get my weekly migraine, its been 9 days since my last one.  I hope this does it.  I hope maybe this might be an option for you.  I sure hope it is for me!!

Hi I have had very intense migraines that last for weeks at a time. I have been to the ER and treated like I was a drug seeker and even told by one doctor who flat out said to me what pain med is it that you want.. I called him an ass and said nothing I just wanted him to find out why I keep having the headaches. I finally got in to see the neurologist and they have put me on nadol which is used to treat high blood pressure..(Which I don't have but keeps the vessels in the brain a normal sizes) and am taking maxlt instead of imitrex I took the injections for years and it really did not seem to make them go away the problem I found with the injections is they only work if I take them at the very onset before the pain began (onset of aura) if not it didn't work. The new meds I have been on for about 4 mths and fingers crossed they seem to be working. As far as the CT goes they do not work to diagnosis migraines and you need an MRI. I have had a hand full of CT scans and they were all normal when the family doctor demanded an MRI it showed several "hot" spots which is were the vessels are swollen. The only headaches I still get are icepick headaches, which they can't do any thing about but the migraines have almost stopped since taking the nadol. It is worth a try to talk to the doctor about it. I also take ketopropheren, which is an anti-inflammatory to try to reduce the amount of inflammation in the brain. I feel your pain and I hope you feel better soon. It sucks many sleepless nights and that is hard to handle with a family. I still have a small child and a 12 year old and it is hard on them as well. (sun glasses are my best friend some days)

Boy.  That was so like reading a description of my own headache syndrome, complete with the very short amount of time I would get relief following a shot, and the long wait to see the neuro.

One thing, and its rare, but you might get tested for both lupus antigens and anticardiolipids to see if they are contributing to your chronic headaches.  I found out recently that mine are, and I have the intractable daily headaches.

The other thing I was going to say is that when my migraines were running that badly in terms of frequency and severity (just a never ending cycle lasting weeks of pain and vomiting and ER visits at a time), I swallowed both my pride and my prejudice and got involved with a local pain clinic.  The doctor there was not afraid to give me the appropriate narcotic medication to manage my pain, and my neuro always had been.

I'm not needing the pain clinic right now, but it was a true Godsend during that time in my migraine career when I did and I found the physician there to be more thoughtful and knowledgeable about the ways to treat pain in different parts of the body than I would have imagined since he deals with so many people who have so many different chronic pain issues.  He didn't just throw narcotics at my headaches, he used a combination of narcotics and other medications and he addressed me as a whole person, caring for other aspects of my body too.  It was kind of an eye opener for me and not at all what I had expected.  I am sure there are people who abuse those places, but I think that there are some that are more reputable and that can be helpful.

I know that this is a bit late to comment, but as a chronic migraine sufferer, I found  that the addition of 950 mlgs of magnisium to my daily vitiman regiman has helped to cut down on the frequnecy of my migrains. I went from 3-4 a week to 1-2 a week and the pain level fell from and average of 8.5-9.5 (on a scale of 1-10) to 7-8.