Saturday, May 18, 2013

4 Years With Little Relief and A Lot of Stress

By herbalist26 Wednesday, August 08, 2012

My name is Virginia and I am a mother of 3. About 4 weeks after the birth of my second child in 2008, (my first daughter, who will be 4 on Sunday), I started experiencing in sudden severe pain in my temple. After a few minutes the pain would be gone. That pain was unbelievable. At first, the "spasms" (as I called them) only lasted for about 45 seconds to a few minutes. Then they started lasting longer. I ended up getting these sudden severe head pains that lasted for 2-3 hours, sometimes longer. During this time I was also still getting the "spasms", several episodes a day. We went to the doctor and they did some tests and nothing showed up. We were concerned because we were thinking that I had an aneurysm or something similar. The doctors could find nothing. 3 months after our daughter was born, we found out I was expecting again. So we had to wait to do more tests until after the baby was born. By this time I was having severe multiple headache attacks on a daily basis with the "spasms" thrown in for good measure. Light didn't bother me. Sound did and so did smell. By the time our second daughter was born (2009), no one knew what was wrong, I was no longer driving out of fear that I would get a sudden attack and crash, and I was still having the episodes with just as much frequency as before. The neurologist I was seeing kept quoting statistics to me, about how 20% of women had unexplained migraines, etc. He would try me on different medications, none of which worked, and had me do a couple of MRIs. We found that Imitrex worked some of the time. While I was pregnant with my second daughter, I could not take Imitrex and my OB/GYN suggested Fioricet. I tried that and it actually seemed to work better than the Imitrex. However, these two medications were only something to be taken at the beginning of the migraine, they couldn't actually prevent the migraine and none of the preventatives worked.

Along with the migraines came various other “side effects” such as a feeling of paralysis or being “locked down” from my lower jaw to my diaphragm, confusion, severe memory loss, difficulty talking and remembering words, sensitivity to smell and sound, mood swings, increased irritability, being tired all the time (possibly from the stress of hurting all the time), dizzy, and being light-headed. All of these started without being on medication and the medication has not helped any of these.

As time went on, this was all I had. The dose of the Imitrex was increased from 25mg to 100mg because the low dose was no longer having any effect on me and the fioricet went from regular fioricet to fioricet with codeine because the pain was increasing.

 Everything stayed pretty much the same after that for a couple years, until last summer. August of 2011, the night before my daughter's 3rd birthday party, I was standing in the kitchen decorating her cake and I started feeling funny. I wasn't having a migraine attack, that I know of, but I start feeling light headed and nauseaus. So I went outside and sat down for a few minutes. My husband came outside and sat with me for a few minutes and then he helped me up so I could go back and finish her cake. When he helped me stand up (slowly) I almost passed out. Again, no head pain, ( I don't have a brain tumor, aneuryism, or any other life-threatening condition) etc. So he put everything away while I went to bed. The next day I was feeling better, although I was a bit tired. We went ahead with her birthday as planned and had my family come over. Again, I started feeling unwell and went outside and away from everyone to sit down for a few minutes so no one would notice I wasn't feeling well as I didn't want the kids to see me like this. After about 15 minutes or so, my husband came outside to see if I wanted to cut the cake. He helped me stand up (again, slowly) and again, I almost passed out. I played it off as having just gotten a little dizzy and told him about it later. I put myself on “bed rest” for a couple of weeks because I could not stand for more than 10 minutes at a time without getting “tunnel vision”, light-headed, dizzy, turning white, and looking/feeling like I was going to pass out. After a couple weeks of that I decided enough was enough and decided to cook dinner. I started out simple with grilled cheese sandwiches. I started to feel funny again after standing at the stove for a few minutes, so I turned around to go sit down and I almost hit the floor. This was the “norm” for a few months and the doctors could not find out what was wrong. I never actually passed out, thankfully. After a few months, most of those symptoms went away, leaving me with almost constant dizziness and lightheadedness. But then the headaches started to let up and I would actually go several consecutive days (like 3 or 4) without s headache. Then I would get headaches for 2 or 3 days in a row.

8/ 8/12 11:55am

I noticed that in my story I did not say how long the migraines last. They usually last 2-3 hours. I sometimes get 2-3 migraines in a single day. I did not know that was possible. I will wake up and within an hour, get a migraine. After a couple hours it will go away and I get a break for a couple hours before the next one hits. That one will again last 2-3 hours before it goes away and I get a break. Then, I will occasionally get a third migraine and it usually is the worst of the whole day. The next day, I start all over. So this isn't where it builds and builds, peaks, and then goes away for days or weeks. There are a couple weeks out of the month where I may get a day or two at a time that I am migraine free. But the other 2 weeks are daily migraines where I count myself lucky to only get 1 migraine in a day. Again, in all my research, I had not heard of someone getting migraines this frequently.

8/ 9/12 12:01pm

I have found some help, but first a little backgroun, I was dix with Chronic Migraines, Daily headache, clusters and icepick headaches. What a mess! I couldn't get a haire cut without taking medicine first because I knew when they were finished my head would explode. My "head case" migraines have ended a career, altered relationships and still cause much confusion. I've tried everything that's out except the new nasal spray.  I've had very little success with out side effects.  Now my migraines are under control, I haven't had one in thast 24 days. *I still get the initial signs of an iminent migraine, but they just stopped showing up. I use an herbal that has lavender, myroban fruit and a list of things I've never heard of. It works, amazingly it works.  Now, I still avoid triggers and always carry rescue medication with me.  It's a battle, for now with the helps of this MigraMedic herbal I'm winning this one.

8/ 9/12 12:34pm

Hello, Virginia and welcome to HealthCentral's Migraine Community!


I'm so glad you found us! It sound like you could use all kinds of support right now. Let me see what information I can give you to help.

 

First, an accurate diagnosis is imperative. If the neurologist you are working with will not give you a diagnosis, you've got to find one who will. You see, having an accurate diagnosis will simplify matters and make it easier for you to get information and treatment. 

 

Since you have been suffering so long, it may very well be time to see an expert in headache medicine. Here's the story on neurologists -  neurologists may be fine doctors, but have a hard time being experts in one area. This is because they treat so many different conditions like MS, epilepsy and stroke. A Migraine specialist is just that, an expert who treats one condition - ours - Migraines and headache disorders. When you get a chance, take a look at article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

 

I really wish I could tell you what type of Migraine or headache disorder you have, but that really is a doctor's job. I can give you our page that has lots of information about the various types of Migraines and headaches. For more information please continue reading, Types of Migraine and Headaches

 

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get there, go to the Migraine home page and look on the left hand side where you'll see a row of boxes. The Forum box is at the very bottom. Click on it and scroll down to the bottom of that page, and you will see the log-in spot. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

 

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs on the left side each page, you’ll find a wealth of information – educational articles, tips, quizzes, workbooks, support and advocacy information, and more.

Do you have questions about Migraine? There are three ways to get answers – through our Ask the Clinician column, in our community Question and Answer Section, or through our forum.  Just go to our Migraine Answers page HERE

Our email newsletter will help you stay up-to-date on Migraine and headache news and new information published on HealthCentral's MigraineCommunity. To receive our newsletter, click the “Sign up now!” link in the navigation bar across the top of our site pages or simply click HERE.

 

Let me know what you think, and we can go from there, ok?

 

Welcome again,

Nancy Bonk

Health Guide
HealthCentral's Migraine Community

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

 

 

8/ 9/12 11:39pm

Thanks guys - I go on the 22nd to see a neurologist who is a migraine/headache specialist. I have heard a lot of good things about him, so I am hoping for the best. I will try to post back once I have seen him. I am hoping that he will be able to prescribe something to help with the headaches so that we can finally get them under control and I am hoping that he will make a firm medical diagnosis. The best diagnosis I have gotten was one of regular migraines from a neuro that I have seen a couple of times. This neuro is a great doctor, but does not specialize in migraines specifically. So when the chance came to see this other specialist, I jumped at it. I will keep in touch!

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By herbalist26— Last Modified: 12/08/12, First Published: 08/08/12