Monday, May 28, 2012

Sinus surgery with Dr. Guyuron - it cured my son !

By MigraineMom Wednesday, November 04, 2009

I just had to share this because I'm so thrilled!   It's been 2.5 months since Dr. Guyuron performed sinus surgery on my son (11) who has suffered for 6 years with horrible migraines. We've tried everything under the son and NOTHING has EVER worked.  He has not had 1 migraine since surgery day.   It is unbelievable !  I'm so thrilled, I really think it did the trick.  He has NEVER gone this long before.  Usually he had migraines every week.  He had an enlarged middle right turbinectomy and a concha bullosa.  Also a deviated septum but Dr. G did not want to touch that at his young age.  He said if this surgery works, then we'll never need to get the septum surgery.   So far so good.   Go Dr. Guyuron !!  I'll recommend him to anyone !   This has been the best 2 months of our lives.

Nancy Harris Bonk, Health Guide
11/ 4/09 3:16pm

 Hello, and welcome to MyMigraineConnection.com!  

 

I'm happy to hear this surgery worked for your son, but we know of three people who have undergone this type of surgery. They were all very happy afterward -- for several months, when their Migraines returned. This is  because Migraine is a genetic neurological disease thought.

 

This procedure may be successful for some people, but certainly not for all.

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

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Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

 

 

Regarding this type of surgery -- I've known three people who have undergone this type of surgery. They were all very happy afterward -- for several months, when their Migraines returned.

 

This procedure may be successful for some people, but certainly not for all.

Anonymous
Terri
12/16/09 5:24pm

I am researching alternative surgeries to traditional FESS. I am learning a lot about balloon sinuplasty and want to try and have minimum recovery time.

Your article is very interesting. Thank you for publishing it.

11/ 6/09 11:13am

i'm glad to hear it helped. mine is schuled for tuesday. will be gald when it's over.

11/ 6/09 3:59pm

Is Dr. Guyuron doing yours as well?  Sinus surgery ?  I can give you some ideas of what to expect the night of surgery if so.

11/ 6/09 8:28pm

no i'm seeing the same doctor that took my daughters tonsils out years ago. he told me that he couldn't guarentee results, but that since i average 6  or so sinus infections a year, and have a deviated septum that causes over a 75% blockage on one side, that at the least it would help with the sinus problems.

 

my motto is that if it won't hurt or kill me i'm game to try it!

Anonymous
Anonymous
12/15/09 1:16pm

So glad to hear you are NOT going to Dr. Guyuron.  I had the same motto as you, and was up for anything until he ruined my life.  He is a wonderful doctor, full of promises until something goes wrong and you need help.  Then he turns into a monster.  I hope all went well for you!

11/ 6/09 8:25pm

i was wondering i have problems with my sinus and how did you know to take your son , did you have extray or did you see a sinus doctor thank you

11/ 6/09 9:35pm

We had gone so many routes over the last 6 years, meds, brain wave studies, herbs, vitamins, biofeedback, allergy testing, food avoidance.  I read about Dr. Guyuron and decided to make an appt, even though it was a 7 hr. drive for us and NOT in our insurance plan.  He had us get CT scans to bring in with us.  When he looked at them, he told us what he saw and made the recommendation.   He was the first person in 6 yrs who ever pointed us in this direction.   So far so good.   10 wks migraine free is amazing for him.  If you have sinus problems and if you pain is behind your eye like my son's was, then there's a good chance you could be helped.  Good luck !

Anonymous
Anonymous
12/15/09 1:13pm

I'm so happy this worked for your son.  However, I do not want people to be fooled thinking he can work miracles.  He performed the same surgery on me & I have not been right since.  I have suffered chronic sinus infections since the day of the surgery & not a day has gone by in years that i don't wake up with a bloody nose or severe drainage on that side.  Oh, and as a bonus it did nothing for my migraines either.  When I tried to ask about the problems that occurred he basically told me I was cured and to keep quiet. 

Anonymous
Thomas and Caylee
9/22/11 12:48am

That is very, very helpful to know.  I had heard that was the cure, the miracle we'd all been waiting for.  Was Dr. Guyron your doctor, the one who did the actual surgery?  

5/ 2/12 7:26pm

Yes, Dr. Guyuron did my surgery, and this is how I am four months out...


I had all four surgeries-the occipital, the temples, the forehead, and the septoplasty. Three months later I'm on daily opiates-we all know what that means, back to square one.

I'm always in pain now, but because narcotics are so bad for migraines, I can't tell how much of the pain might be from some rebound? I think the surgery, frankly, didn't work and my nerves, after 14 years of chronic pain, are so inflamed, that it will take forever to calm them down. I skyped with Guyuron who suggested I see him again, but two flights, was too much when he didn't have any real answers. He also had me do follow up CT''s , etc. He said he didn't know why I was in so much pain. What I want to know is-if there are all these people who are helped by the surgery-why aren't there any reviews of it online. I found one before I went in from a woman a year out, which was positive, and since I'd tried everything else, I took it and ran with it as the "outside proof " I needed, but when I came home I began to wonder where everyone else was.
I can't tell you what to do. It's been hell for me post op, and if I didn't have people to take care of me all the time, I don't know how I would have made it. There have been depressive episodes I'm loathe to admit, but I'm an open book. Could it help you-yeah, I'm sure it could, but it didn't help me. If you asked me if I would do t all over again, I would tell you yes, but only because I had no quality of life so there seemed like nothing to loose. I'm in more pain now, but the nerve sensitivity has gone down and I just have to believe it will continue to go down. But now I have to get of daily opiates, which I was loathe to take, but did not have a choice.
 I guess I would say only do this surgery if there's truly nothing left to lose, but don't believe the hype, and maybe just go for the septoplasty first, becuase the trauma on the nerves is an assault.
Ashley
I also believe Guyuron has all the best intentions at heart, but I wouldn't believe that he has the number of successes he purposes to have(Where are they?). I believe he is a good man who wants to help migrainers; I just don't think he helped me and he says there is no downside-not exactly so.

5/ 3/12 8:48am

Just saw this post so wanted to check back in.  My son has surgery in Aug 2009.  He went 4 months with no migraine, then they started coming back.  First 2 months apart, then 1 month apart, then 2 weeks, then 1 week. Now it varies from 2 a week to once every 2-3 weeks.  In spring, like now with the crazy weather patterns, it's 2 a week.  When weather stabilizes, it's maybe once a month if we're supremely lucky.  The weather was ALWAYS a trigger, before and now.  THe ONLY good thing I can say that happened, and I'm not sure if it's because of the surgery or just because he's getting older, 14 now, is that he does not vomit every time now.  He used to get them so severely and vomit with every one.  Now he gets them but if caught early, can take an excedrin and be okay.  He rarely vomits now.   He said the pain is not as intensely horrible as it used to be.   So that's pretty much where we stand now.  It still sucks seeing your kid having migraines all the time.  I'm just happy he's not puking twice a week anymore.   The surgery wasn't the miracle I hoped for, but I guess it helped with the intensity.

5/13/12 5:52pm

what procedures did your son actually have because I've read a lot about how septoplasties have cured people's kids, when this has been a well documented fact for decades, and in my opinion, any plastic surgeon with expertise in septoplasties/rhiniplasties, will help an ailing child. The other procedures are the ones most of us are talking about.

In addition, Guyuron told me I had enlarged turbinates and deviated septums. Before I had the septoplasty, I went to 2 very well known ENT's who told me my turbinates were not enlrged, and my septums were so slightly deviated they would never advise a septoplasty as a cure for "migraines", which are actually chronic sinus headaches.

However, I believed Guyuron because I've spent half my life disabled. I had all 5 of his procedures because he told me to, and 4 months later I'm going to have to go into a pain program(again), to get off of opiods and try and be taught how to live with this chronic pain.

I DO NOT BELIEVE GUYURON IS A BAD GUY AND I THINK HE IS A VERY GIFTED SURGEON, BUT I BELIEVE HE TELLS PEOPLE WHAT THEY NEED TO HEAR, AND I'VE READ STORY AFTER STORY OF PEOPLE'S WHO WERE COMPLETELY DISABLED9LIKE ME), AND WOULD DO ANYTHING TO GET BETTER. HE TOLD THEM, LIKE ME, THAT THEY COULD NOT GET WORSE, AND WE ALL DID.

 

I HOPE AND PRAY YOUR SON GETS BETTER!

5/13/12 6:02pm

HE ISN'T THE CURE-DON'T DO IT!!!!!!!!!!!!!!!!!!!!!!!!!!

People are finally crawling out of the woodwork and talking about how horrible the effects of the "migraine surgery are". I use quotations, because if the sinus surgery is what you are having, it will almost surely help.(However, Dr. Gururon told me my deviated septums, though small, caused my sinus like pain, as well as enlarged turbinates. Well respected ENT"S looked at my Ct scans before I had the surgery and said they would not advise a septoplsty because my deviated septums were so small and my turbinates werte not enlarged. Guyuron said he could see what they couldn't because he was looking for something else. I knew it was fishy beforehand, but I was desparate.)

Anyway, he did all four sights on me, and I have been in so much pain since the surgery that I am basically living on painkillers to function, and am going to a chronic pain program to get off of them and be retaught how to live my life. I promised myself I would never go on painkillers again because I know how much they can screw up migraines, but I frankly couldn't get out of bed without them.

I THINK DR. GUYURON IS A GIFTED SURGEON IN SEPTOPLASTIES, RHINOPLASTIES, AND PROBABLY FACELIFTS, BUT HE IS NOT THE PANACEA HE CLAIMS TO BE. I HAVE SEEN ONE REVIE OF HIS WORK THAT IS NOW A COMMERCIAL SIGHT FOR A WOMAN'S PHOTOGRAPHY BUSINESS.

Anonymous
Anonymous
2/11/10 7:49pm

Ironically, sinus surgery for adenoids and septum seemed to trigger migranes in my 24 year son.

Anonymous
Anonymous
2/11/10 7:56pm

The day the splints were removed from his nose, symptoms of light sensitivity, floaters, headaches started. Surgery was done in Boston. We have been back to see all kinds of specialists.  The latest finding was coincidental onset of migranes.  All say surgery was fine, optic nerve fine. If anyone can add anything it would be greatly appreciated..

5/13/12 5:43pm

ANY work don by Dr. Guyuron to the nose when poeple have severe deviated septums and enlarged turbonoids helps. I think he is probably the best person to do the procedure, but any plastic surgeon worth his weight in gold has been taught how to do this procedure, and it is hugely, if not entirely, effective. What this board is discussing is his specific "migraine work", which has to do with the cutting of the corrigators, occiptal work, and temple work, on top of the septoplasty.

I had all of it done. I was also told that he was the only doctor who really understood how to do a proper septoplasty so that the pressure behind my eyes

( severe sinus headaches, not actual migraines). However, I did do homework beforehand and two highly respected EMT's did not see a deviated septum or particularly enlarged turbinates. When Guyuron saw the CT, he magically did because, as he said, "he can see these defections in ways ENT's and other plastic surgeon's who make their lives off of septoplasties, cannot." I believed him because I needed to. I believe he's a good guy who is telling migrianers and their moms, who are so debilitated by their headaches, that he knows best. I DO NOT THINK GUYURON IS A BAD DOCTOR OR SURGEON. I ACTUALLY THINK HE'S HIGHLY GIFTED IN WHAT HE HAS MADE HIS LIVING OFF OF BEFORE HE ENTERED THE MIGRAINE COMMUNITY. HOWEVER, SINCE THEN, THERE HAS ONLY BEEN ONE PERSONAL REVIEW OF AN ENTIRE MIGRAINE PROCEDURE THAT HAS HELPED A WOMAN, AND SHE TOO HAD A SEVERELY DEVIATED SEPTUM.

I have read 5 reviews of post-surgical persons who have either had traumatic aftermaths, or were "cured" for three months; generally this is a case of placebo effect.

By MigraineMom— Last Modified: 05/13/12, First Published: 11/04/09