Saturday, February 11, 2012

Finally, something

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Myth1977

Myth1977

Fri, December 07, 2007

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My neuro has put me on a preventative, which is certainly progress.  Fortunately, he has chosen one I quite agree with.  It is an anti-seizure med called Lyrica.  I have actually been eager to try it and would have suggested it to my doctor, if my doctor would try listening to me instead of brushing me off cause she is fustrated.  Anyway, Lyrica is the one newly recommended for FMS and so, I figure it might have an effect one way or the other... and lets say it helps with the FMS, well that would be one less trigger hindering my migraines or at the very least less pain for me.  He does not think it will help with the horrible visual snow I have had recently and he cannot put me on beta blockers due to the asthma (which are apparently benificial to such visual auras).  Still, perhaps this worsening of the visual aura is temporary.  All said and done, having him listen to me and try to help with treatment has vastly improved my mood, which was fragile at best... just the potential of some treatment having some effect gives a person something to hold onto.  I am also on leave from work again, for a month this time, because of my absences and my boss basically saying I would be fired if I missed another day... someone suggested I phone HR or I phoned them (can't actually remember how it came about, only that it did and after some grumbling my doc filled out the forms... so hate to put her out by having to do the tiresome task of doing so... only my career and state of being at stake)... anyway they are filing for more leave and my doc filled out the forms for a month leave.  Which is good because it will take hlaf that time for me to adjust to the intense sleepiness caused by the lyrica (a side effect that is not all that bad, since I am an insomniac and so love the sleep) and at least a month to see if there is any effect.
12/ 7/07 6:37am
Just posted on this site. Im really focusing on my migraines. My neurologist just told me yesterday it could be cluster headaches which is a new one for me. My research indicates that topomax seems like a very good drug and I already have some and started taking some and am willing to take it every day as migraines have been devestating on me and my family (wife and 2 children - 1 with autism). SO well see how it goes. Also they have a great web site witha diary. Ken
12/ 7/07 4:43pm
Good luck with the topamax!  It is a good one, in my opinion.  Most of the side effects diminish after you reach your peak dosage.
12/ 7/07 5:01pm
I took 50 mg today first day - feeling it - tired  -its strong - sedating- which isnt necessarily bad- but im at work- only an hour to go and the week end.  I hope its good. Im from NY and my mother's taking the kids for the weekend. Tomorrow Im suppossed to go house hunting with my wife then see A Chorus Line at night. Im not sure if I should take 25 mg in the morning just in cas it sedates me for the day- im just starting out- on the other hand im just coming off severe migraines so.... as usual a quandary. Thanks for the response and any advice you can give. Ken
12/ 7/07 11:13am
Hi Myth, I hope Lyrica works for you :)
12/ 7/07 4:41pm

Thanks Eva!

 

I must say I am tempted to be optimistic this time, since the med is also used for FMS... what are the chances it will work for neither?

12/ 7/07 11:31am

Wow! I did not realise all this time you were not on a preventive!!!!??!!??

 

I am glad that you finally got something too!!!!! I hope it does you some good honey! And having the time off work - well - it sounds as if it is positive. At least you will have time to adjust to the new med, like you said.

 

Good luck girlie - you deserve it! SOMETHING has to go right!!!!!!! Big Smile

12/ 7/07 4:40pm

Thanks Eileen,

 

I was taken off the last preventative when I went for the botox attempt months ago... so it was all wait and see.  Then when I started my asthma treatment, it actually helped with some of the migraines, and he said well lets wait and see how effective that is.  It was more than a little fustrating and I had gone to my doc more than once just suggesting she put me on topamax again just to see if it would work.  Now at least I feel I am getting somewhere. :)

12/11/07 11:11pm
If you're having problems getting time off of work, you can file your disease under the Family Medical Leave Act.  Then, they can't fire you for missing work.  You have a legitimate disease and it should be recognized.  Someone with cancer could do the same thing!  Good luck with the new meds.Heart

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