Monday, May 28, 2012

What the neuro says

By Myth1977 Tuesday, February 19, 2008

Sometimes I think doctors simply do not move fast enough for me and my inevitable fustration.  I suppose I ought to be satisfied with anything than enables me to actually function at work, whatever the side effects, given that whole need to have money to live thing... such a drag.  So, I am still on the Lyrica, as my neuro is not sure the effects I have been having are from it, or if they are, if they will be a regular problem.  This worries me in the sense that the muscle pain/weakness thing was fricken painful and made it difficult to simply move.  I really do not want that to be a regular thing, or a semi-regular thing.  But he is right we gotta give this one a chance and it is not like I have had much luck with other ones.

 

More important is what to have to treat the actual and frequent migraines.  He had me on Amerge for the hormonal migraines... which I took quite a bit more because I had nothing to treat the non-hormonal migraines... and as a result pretty sure I am in rebound land right now.  Anyway the Amerge did cause chest pains and shortness of breath.  Thankfully the more worrisome painful chest pains were not too frequent, but the breathing and wheezing most definately was... felt like my asthma was goin crazy.  But I did not stop taking it because I just returned to work and cannot work with a actute migraine, but can with shortness of breath.  My neuro has never heard of a triptan affecting asthma, and neither have I... I googled it.  He does not want me on it because he believes asthma is more serious than migraines, and maybe he is right, certainly I have been super tired with pressure headaches and problems breathing in my sleep... it is just not something that worries me much cause I know nothing about it.  Of course, the other possibility is that I am allergic to it.  Either way, off the Amerge.  Which immediately made me point out that I cannot, cannot fuction without a triptan, unless he wants to put me on pain killers that work.  Thus he put me on Axert, which I have actually never been on.  He said it was developed to be easier on the heart and so forth, he is not sure this is true, but it is faster acting than Amerge and possibly might be easier on my system.  I am hoping so.

Dumb and dumber... side effect hell
2/19/08 9:54am

Myth,

While it seems as though your neuro is working with you, I do wish it were going better for you.  I just wish there was a way that doctors could take our DNA, test it against all of these medication combinations and come up with the magic combination that would work for each of us.  Wouldnt' that be great?  Until you work through the various combinations to find what will work and what you can tolerate, life is a roller coaster.  Other than to offer our support and to help you know about the side effects and other treatment, I do wish there was more to help you with,

Take care,

Cindy

2/20/08 11:35am

I wanted to let you know that the triptans give me shortness of breath as well.  I've been on imitrex, amerge, frova, maxalt, relpax - they've all done it to me to varing degrees.  To me it seems like they are triggering a slow onset asthma attack.

 

I had a neuro tell me once that it wasn't really asthma, it was the vasoconstricting of the medicine making my lungs feel like that.  That neuro was a jerk though so I've never decided if I believe him or not.

 

Usually when it happens I just break out my inhaler and it makes me feel a little better.

 

Good luck with the med trialling.  I am doing it myself and get so frustrated when it takes months to tell if one is going to work or not.  That's a long time to be in pain.

2/21/08 12:53am
Finally!  Someone who knows what I am talking about.  It is like a slow onset asthma attack!  Also rather long lasting.  And when I take the triptans for too many days, it gets rather bad on the breathing front.  My neuro said he never heard of a triptan causing an asthma attack, but that it was not something to mess around with.  I know shortness of breath is a side effect of most triptans, so it could be just an adverse affect, perhaps made worse by the whole asthma thing.  I have been on triptans, of various sorts, since I was 20 or so, but it was only after I was diagnosed with asthma that I had this effect... in fact, it pretty much led to my diagnosis.  It was pretty bad with the Imitrex and seems to be the same with the Amerge.  All I know is it pretty much sucks, because this whole asthma thing, and this side effect have completely messed up what meds I can take to manage these migraines, which is making my position at work very delicate... and this makes me impatient for them to find somthing quickly that keeps things under control.
By Myth1977— Last Modified: 12/11/10, First Published: 02/19/08