just saying hi. living the slow recovery process and attempting once again to get over this HM attack/episode. this seems like a great site. my speech and thought processes are just now reverting to normal or whatever semblance they can be as far as "normal" is concerned. in the past few weeks my episodes have been coming with ever-increasing intensity and frequency of attacks. instead of a few weeks i only have days between incidences and the aphasia and dysphasia are becoming evermore intense. the stroke-like side effects come on almost instantly as does the loss of vision/tunnel vision. i narrowly missed having what could have been a nasty car accident when i suddenly lost my peripheral vision while turning at an intersection. all my prayers and cries for help do no good. lack of health insurance and a week to week, check to check existence limits my avenues for help. i don't know what else to do. wishing everyone serenity and calm and a nice quiet,dark and cool closet to rest in.
Hello, and welcome to MyMigraineConnection.com!
Hemiplegic Migraine (HM), a rare form of Migraine disease can be difficult to diagnose and treat. I'm sorry you are going through this. Let me give you some information on this condition and where to go from here.
Hemiplegic Migraine - The Basics is our informational article about HM. The problem with this type of Migraine is, as you probably already know, its symptoms can seem like stroke, vascular conditions and epilepsy. A complete medical history and neurologic exam are needed to rule out other conditions.
When someone has HM it is imperative that they be treated by an expert, someone who deals with Migraine disease on a regular basis - a Migraine specialist. These doctors devote their entire practice treating patients with Migraines and headache disorders, are on the cutting edge of new treatments and go to sceintic conferences to learn new information about Migraines and headaches. Neurologists may be fine doctors, say the are "headache specialists" but that is really hard for them to do because they treat so many different conditions like MS, stroke and Parkinsons. You want the expert helping you with a rare condition like HM. We have a list of patient recommended Migraine specialists you can see by clicking HERE.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We have a few member in our forum who have HM who are very supportive. We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy BonkMyMigraineConnection.com Expert