Monday, May 28, 2012

"Normal" Life

By jennyc Monday, March 17, 2008

Every so often, I have little glimpses of what life would be like without the interference of migraine disease.  My migraines are chronic now, with daily pain that usually ranges from a 3 to an 8 on any given day...

 

BUT, lately, my nerve blocks have been giving me a week or so of pain-free time!  I get the injections every 8 weeks.  I never thought I'd be looking forward to a doctor putting needles in my head over and over again...but I am excited to get them every single time!

 

This time, I got the occipital nerve block on both sides.  I also got trigger point injections at the temple and eyebrow areas on both sides.  It was an awful lot of shots!  They do hurt quite a bit...I'm not gonna lie about that!  But I left the doctor's office feeling great!  And that feeling is still there--10 days later!  My doctor and I are hoping that this pain relief will last longer than normal this time (because he injected both sides very thoroughly). 

 

My body still tries to go into "migraine mode," though.  Last night, I had a migraine with everything but the pain.  I had a strong aura, nausea, and vomiting BUT only a slight twinge of pain on my right side.  It wasn't fun, but it sure was better than my "normal" migraines!  I know the nerve block kept the pain away. 

 

These injections are honestly saving my life right now.  I started them last October (with my newest HA specialist).  I'd had them in the past, but I'm convinced that my past doctors were really not all that skilled with administering the injections.  They just were not successful at all for me!  Until I started seeing my new specialist, that is!  He is just terrific with these shots!  And he always listens to me--checking to be sure I'm feeling numb in the right areas, asking if I think I need a little more here or there, reviewing my responses to past injections to see where to place the next ones...

 

Before I started with these injections, I remember feeling like I might actually lose my mind from all of the pain.  I mean honestly, seriously, go completely crazy if the pain did not stop for at least a little while.  I am not exaggerating...I was holding on by a thread.   

 

Migraine pain does funny things to me after a while.  The short migraines are bad, but the ones that last for days are excruciating.  When the pain goes on and on...It starts to feel like it will never end and I am being swallowed whole by it.  When it gets very bad, I will do anything to make the pain go down.  It's a level of desperation a person can only understand if he's experienced it himself.

 

My preventives are not yet working.  I'm trying new things slowly, but they have yet to have a real impact on my migraines.  But I have good, solid, pain-free periods of time with the help of these shots!  AND I now have dependable rescue meds that actually WILL take the pain away when it breaks through.

3/17/08 8:47pm

Jenny!! Cry I hate when you make me do this girl! Hey at least they are happy tears!

 

I know what you mean about the "migraine free" time. You try to cram in as much as you can because you don't know how long it will last and you want to make the very best of it!  It's like working on someone else's clock.

 

I never thought I would love seeing doctors - but yes! My new neuro is the bomb! He rocks! He "gets it" because he too is a sufferer.

 

I think that if it came down to it, even with my dislike of needles, I too would be doing a happy dance on nerve block days!! LOL Knowing that you have some time off from the pain and depression that it causes - even if it's not a cure - at least it gives you some time of clarity to think of the next step.

 

I'm so happy you and your doctor are making such a great team! You, my dear, have come such a long way from when you first got here. I know we all still have so much further to go, but I am so proud of you!

 

Ok, I'm going before my keyboard is soaked in tears.

3/20/08 9:12am

Jenny,

 

When I got to the end of your post, I realized it was you. My heart went out to you immediately. You have been through so much.

 

I'm glad to hear you are making improvements and have got to spend some quality time with your family.

 

I will keep you in my prayers.

 

Yvonne-MigraineMom

Megan Oltman, Health Guide
3/20/08 10:20am

Jenny bless you for grabbing onto all the bits of normal time you can!  That is our challenge.  I don't know if we'd go back to being oblivious and ungrateful if the pain all went away - but just that we need to make the most of this given moment since it's the only one we know for sure we have.  I'm so glad for you that you are getting pain-free time!

 

Heart Megan

3/20/08 2:22pm

Hi Jenny.  I completely understand everything you've said. A few years ago when I had Botox injections in the same areas, I got that "glimpse" at normal life too.  Unfortunately, it didn't last and in the end, it almost felt like a cruel joke to me. The places on your head that you mentioned are the same places I mentioned in a post months ago that I had operated on. They cut my occipital muscle and the nerve endings at the four trigger points on my hairline.  That ended up not working for me but, if you are getting this kind of relief from nerve blocks, you may want to look into this surgery.  It has an extremely high success rate - I was just one of the unlucky ones.

 

I know the desperation you have felt so well. I just want to cry when I read about others going through it.

3/21/08 12:20pm

Jenny, you have given me such hope!  Chronic pain is a nightmare, as we know.  Don't worry about taking the good days for granted.  Once the sun shines through those dark days chronic pain, you only have to REMEMBER the shadows, or maybe glance at a shadow now and again, to recall the nightmare. 

 

I am so excited for you!  And your nerve blocks seem to be working, which give me hope too!  I am going to ask my new  pain specialist if he'll add trigger points to the nerve blocks.  Maybe that will help me too.

 

Thanks again for posting these words of hope!

 

CJ

4/ 8/08 1:12pm

Jenny,

I'm a few weeks late in reading this sharepost. But, it made me cry. I felt like I could've written parts of it.

 

When you talked about hanging on by a thread and how it feels like the pain is going to swallow you whole and never-ending. Oh my, I know that myself. 

 

I also seem to have a week or so of decreased pain time. It has started to become a pattern for me, and I know what you mean, I cherish it so much. And when I am migraining, I try to remember those times and know that they will come again.

 

I'm hoping and praying that the nerve blocks will last longer and longer for you.

 

HeartKelly, Flywithhope

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By jennyc— Last Modified: 09/03/10, First Published: 03/17/08