Monday, May 28, 2012

Next step - find a doctor who cares about my pain

By MicheleS Wednesday, October 28, 2009

I recently visited an ENT as a referral from my primary care to figure out if I have sinus problems. She was wonderful, as she recognized that I have "mess going on."

 

First, my nose is slightly crooked from it being broken several years ago (my dog broke it, seriously). It feels like I am always stuffed up. Sometimes, OTC meds will help. Sometimes, it hurts just to breathe in.

 

Second, it seems that my tonsils are abnormally large although not infected and no history (past 1-2 years) of infection. Everyone who looks in my mouth always asks "Are your tonsils always that large?" Yea, I'm tired of that question.

 

She ordered a CT scan of my head and neck. Everything came back normal. No sinusitis, infection, or otherwise. My nasal passages are clear, although narrow. The ENT felt that because I have just a slight deviation in my septum, surgery seems to be unnecessary. I'm okay with that. I'm not vain and the less surgeries, the better.

 

The ENT asked me to try some nasal sprays (Nasonex and ? for swelling). She was confident in saying that my headaches are not being caused by sinus problems. She recommended researching doctors and seeing a neurologist to help with the pain.

 

I need to find a good migraine doctor in my area. So the search begins.

 

Thanks for listening.

 

Anti-nausea med helped my headache?
10/29/09 4:39am

i had my first appt with the ENT this week. i have had a sinus infection for over 2 months now, and my PCP sent me with the hope that they can help me.

 

i go tuesday for a CT of my sinus cavity, and then they will discuss with me my options. ( we know that i am probably headed for surgery, and they will remove my tonsils at that time as well. seems i keep the sinus infections and tonsilitis)

 

sorry that there wasn't more help. i love my neuroloogist, and am scheduled to go back to see him next month. i'm hoping i will have more information from the ENT to share when i do go, as it was his med student who suggested that i look into sinus problems to begin with. ( wonder if my being extremely congested at all 4 appts was the giveaway).

 

good luck, and remember that even in the worst of times, there are many of us out there going through the same things you are.... and we are here if ya need us!

10/29/09 7:35am

Thank you for sharing. It means a lot to me. This is the first time that I have reached out to others. I am amazed that I am not alone. I have had such fragmented care over the last 10 years that I am reluctant to share with others, including doctors. It's my fault for not being strong enough to push the issue, but at the same time, the doctors I have seen didn't seem to care much about my pain and I felt they swept me under the rug. I am hoping through research, this great website, and keeping a diary will equip me with some answers to the questions a new doctor will definitely ask.

Nancy Harris Bonk, Health Guide
11/ 2/09 6:59pm

Hello, and welcome to MyMigraineConnection.com!

 

 

This is a common issue people have; thinking they have sinus issues but what's really happening are Migraines. This may be true especially if you have tried over the counter medicines to no avail. Continue reading this information for more help: Sinuses Giving You a Headache? It's Probably Migraine.

 

We maintain a list of Migraine specialists who are recommended by patients or by Migraine specialist I know and trust. Hopefully, you'll find one there. Take a look at Patient Recommended Migraine and Headache Specialists.

 

How many days a week do you take something to relieve your headaches? Taking medication to relieve your pain such as the triptans or ergotamines or any kind of pain medication -- prescription or over-the-counter -- more than two or three days a week can make matters worse by causing medication overuse headache (MOH), aka rebound. See Medication Overuse Headache - When the Remedy Backfires for more information on this.

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

This is a common issue people have; thinking they have sinus issues but what really may be happening are Migraines.  Sinuses Giving You a Headache? It's Probably Migraine.

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By MicheleS— Last Modified: 11/25/10, First Published: 10/28/09