I am a male in my late 40's and have been diagnosed as having had several strokes caused by migraine also known as migrainous infarction, as a complication of hemapalegic migraine. This diagnosis was not rushed into having udergone a series of tests over 18 months and ruling out ALL cardio-vascular problems by several cardiologist including blood pressure, cholesteral and even cleared by 2 trans-echos of my heart. I have seen a rheumatologist and have no indications of autoimmune disorders or vascular disease. The infarcts were clearly visible on CT and MRI scans and the diagnosis of migrainous infarction was made and confirmed by 2 of Canada's top neurologists in the specialty of migraine. My migraine episodes have been controlled by Verapomil a calcium channel blocker, and although I have not undergone genetic testing for a known mutated gene associated with this condition, said genetic defect causes problems with the passing of calcium across molecules, so my success with a calcium channel blocker is seen as indicative of a similar problem within my body. In short, despite the fact that this is an utra-rare condition, it looks like I have it.
I am wondering if there are any other members of this group who have been equally diagnosed with this complication of migraine.
Three of the infarcts I had were small only causing permanent visual aura, however the fourth was a larger stroke impairing my speach and affecting my right side and requiring stroke rehab. At this point 22 months after my last stroke, I am 95% recovered.
My name is Jef (sic, I just abreviate more than most) and I am in Ontario, Canada.