Chronic Daily Headaches/Migraines getting worse - Possibly IIH??

Well, I've been trying everything I can think of and am in the process of setting up a Lumbar Puncture to see if I have Idiopathic Intracranial Hypertension (IIH).  I had botox injections and did not get any change in my pain.  I have a headache every waking minute of every day, at about a 6, which no pain med has helped with.  My rescue med helps if I get a worse migraine but these daily headaches are getting very hard to live with. 

Topamax has helped with the migraines that I get a few days a week, sometimes less but it hasn't helped with the Chronic Daily headaches.  I'm up to 450 mg of Topamax, my doctor really thinks I have the IIH and told me that we should start upping it to see if it would start to help but it hasn't started to help yet.  I'm going to the Thomas Jefferson Headache Center in Philadelphia.

I needed to get a job so I looked for one that would be relatively quiet and not too stressful and I found one which I started last week.  It is working out ok, but it's hard because I'm working every day with a pretty bad headache.  People can't tell but it's there. 

I've had MRI's and nothing has shown.  The weather patterns are my biggest trigger.  I just don't know what to do.

I was reading Nancy Bonk's post and saw that she had a fall that started her problems, I do remember I had a nasty fall on ice back around the time that my headaches began - back 7 years ago - I've not had a day/minute without a headache since then.  But I'm not really sure if I didn't have the headaches before the fall.

Any one out there know much about IIH and it's treatments??  Living with it??

I turn 50 in a few weeks and really don't want to continue living this way, it's wearing me down.  I've tried probably 40-50 medications and nothing has given me relief from the daily headaches.  I tried the 3 days of infusions at Jefferson and it too did not work.

Any ideas??

Thanks.  Patty