I had my LP last week and my pressure was 12.5.  This was within normal range so the doctor took off a little CSF to send out for testing and it was over.  I had to lay flat for 30 minutes at Jefferson and then go home and lay flat for the rest of the day.  I went to work the next day and got a terrible headache - took Relpax but it didn't help.  Went to bed that night and on Friday I went to work and got another terrible headache, this particular headache gets much worse when I bend over or sneeze or cough - which is not the case with the normal migraines I usually get or my CDH.

Called the doctor Friday and they said I needed to lay flat 24/7 each day until the headache leaves.  As of today, Tuesday, I still get a headache when I am up walking to get food or use the rest room.  I'm still on bed rest.

I'm really hoping this will go away, heal, and get better.  Especially with Thanksgiving in just 2 days.

I was watching Dr. Krusz on youtube and he mentioned endocrine problems causing headaches.  I have central hypothyroidism and take levoxyl, I wonder if by chance this could be causing my headaches?  I've been on it for years and have had CDH for 7 years now so it makes me wonder.  I wonder if I should try going off of it to see my headaches would get better?  I also have low growth hormone production, but am not going to give myself shots for it so I've just lived with it.  Could this cause the headaches?  I know my pituitary hasn't been functioning properly, I've had that checked also, possibly another cause for headaches?

I just turned 50 and would so much like to find something that I can do to stop from having a headache each and every day.

Any thoughts??  Anyone have a problem with any of these?

I've had botox, infusions, tried countless medications - all with no relief.

PinkPatty