lonely and in need of support

Hello, and welcome to MyMigraineConnection.com!

I'm sorry you are having such a rough time right now, but you've come to the right place for information and support! People here understand what you are going through and are happy to share their stories with you. 

It sounds like at this point it is time to get an accurate diagnosis and treatment plan. That may mean seeing a "true" Migraine specialist, not just a neurologist who says they are headache specialists. See, here's the thing, neurologists treat so many different conditions, like MS, stroke and epilepsy it is hard for them to be experts in one area. A Migraine specialist treats one disorder - ours- Migraine disease and headaches. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

To simplify matters and make it easier for people to get information and treatment, doctors usually go by the gold standard for diagnosis, the International Headache Society's International Classification of Headache Disorders, 2nd Edition (ICHD-II). Under ICHD-II, there is no diagnosis of " Ocular or complex Migraine." We do see it used, but doctors use it differently, so it really doesn't tell anyone what type of Migraine you actually have. You can read more about this in Ocular, Optical, and Opthalmic Migraines and The Type of Migraine Does Matter.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click

.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

hi,

i'm nanc, and i'm alone, my family lives too far away to help. and i have a male friend who stops by occassionally to check on me. my life use to be good, until i fell 10 years ago, since then i've had on going migranes, had a neck fusion, been through trigger shots, nerve blocking and numerous medications. i did have medication that i took for 7 years and that has stoppedmworking. since this time, i have found out that i am allergic to all of the best medications that work. and now i have no health insurance, no job, no life. but have applied for disablity and am still waiting. my doctor gave up on me once i told him i didn't have insurance and he asked me if i was looking for a job!! imagine that, i have to go talk later my migrane is here.

lol

nanc

I have the same problem!  I also havedaily migrains and no one to really talk to that realy understands me or wants to be my true friend. My biyfriend is really the only one that has really stood by me.

that is why I usually turn to this site is because everyone here is pretty much the same issues.