Headaches in 9 year old

graciebaby28 Community Member March 19, 2007
  • I feel like I have no where to turn so I was given this website by a dear friend who suffers from migraines.

    My 9 year old daughter started having headaches in August. She had them for 2 weeks. I took her to the Dr. and he told us that kids get headaches and not to worry.

    The headaches went away just as fast as they came within days.

    About 2 months later they came back. For 2 weeks and then completely stopped.

     

    In December they came back again after not having headaches for almost 2 months. They lasted 2 weeks and then went away.

    In January she started having them again. I waited the normal 2 weeks and they did not go away. I took her to the Dr. Who again told me that it just must be the way my daughter gets sick, she gets headaches.:(

     

    They give her motrin and a week later. She is still getting them everyday. I take her back in, they tryb to tell me again it is nothing. I tell them all her symptoms and plead with them to help us. They finally agree to a cat scan.

    We have to wait on the results. Meanwhile I keep taking her back in every week sometimes 4 times a week.

     

    We finally get the results of the CT scan back and they reveal a lipoma in her posterior horn of her right lateral ventricle and ethmoid sinus disease.

    They schedule us to see a Neurologist but it is 2 months away. They then tell us she needs to see the Neurosurgeon in 3 weeks instead on March 28th. They did not give us any more info than she has a mass in her head and the measurement and location.

     

    Not one Dr of the at least 5 she has been to has thought her symptoms were important.

    Her headaches normally started dead center of her forehead then spread to her whole head. She gets blurry vision and sometimes nausea, sometimes not.

    That went on for 6 weeks, until the last week. Her headaches now start on the right (right side is where lipoma is) or left side (just today so far), they start small like a little hammer hitting her until it gets bigger and bigger and it feels like her head is going to throw up out of her ear. Sometimes her right hear. Today it was her left. On friday it felt like her whole head was going to throw up, Not her just her head. She also said it feels like a twisting or a hurricane or tornado in her head.

     

    Here is the thing though. I have kept a headache diary and she only gets these at school. Example, we just had a 3 day weekend. No headaches at all. At school 2 hours and a headaches comes:(

     

     Her glasses are newly prescribed so we ruled that out. She has no glare lenses to reduce eye strain. She seems to be ok most days until lunch when it is very noisy. For 5 weeks she had a headache everyday at lunch, the minute they found an isolated spot for her to eat in a quiet room, the lunchtime headaches went away.

     

    They hold off now till the next noisy class which is music or art or recess depending on which comes 1st that day.

    I keep track of when she is in a noisy place when the headaches come and it is 9 times out of 10 with the exception of today. Today she came home very early in the day at 9:45 in her quiet math class.

  •  

    Just when we seem to narrow down the cause the headaches change on us. It was every time with noisy places until today. Got one in a quiet place.

    We stopped giving her motrin because the Dr's would not listen to us. I was sooo worried that she had been on motrin for 49 days. I told repeated Dr's my concern and was told to give it to her so she can keep on trucking at school we were told.

    Her blood pressure was up at her last 2 appts. I don't know if that is from daily pain meds as I just recently learned of this being a side effect of daily pain meds. In the beginning I was more concerned with liver damage and rebound headaches that was why I kept bringing it up to the Dr's that I was concerned that she lived on motrin daily at school.

    I also stopped the medicine because I  needed to find out if the headaches would go away on their own and they do. If she is given nothing but a drink and quiet, the headaches goes away within an hour.

    But if I keep her in school in the noise and give her motrin, an hour later I am still picking her up because the headaches doesn't go away, or starts to and then comes roaring back.

     

    I am so scared. I have researched any and everything I could find on right lateral ventricle tumors and their affects, hers does not seem to be big enough (pea size 0.4 cm as of Feb 9 but not sure if it has grown more in the past weeks) to be causing Intracaranial pressure (ICP) but that is just from what I have read because the Dr's have given us no information. I have read varying things while googling and I am no Dr but I am just trying to help my daughter and the Dr's will not give us anything to go on it seems.

     

     I thought at one point they were tension headaches but now I don't know if it is the lipoma, or migraines or what:(

    The lipoma is 0.4 cm I'm not sure what difference the size makes or much else because we were given no information. This is a military hospital. If the lipoma is 0.4 in a 0.3 space then I know that would cause a huge pressure I am sure but the thing is she only gets the headaches at school. The one time she has gotten it at home was when her 3 cousins spent the night and I think the noise level just crept up for her?

    Any advice would so much be appreciated because we feel so lost like no one believes us.

    My daughter is an excellent A occasional B student and has thankfully not had any effects on her grades because we are able to work with her after the headaches go away at home. But this is the start of week 9 and we just don't know what to do:( Thanks for listening.

    Jennifer

4 Comments
  • Teri Robert
    Health Guide
    Mar. 19, 2007
    Dear Jennifer,

    I am so sorry to read what you and your daughter are going through. It's obvious and, of course, natural that you're frightened, frustrated, and probably angry.

    I'm not a doctor and can't give you medical advice, but I'm glad to give you some information that you can discuss with her doctor.

    What really stood out to me is what...
    RHMLucky777
    Read More
    Dear Jennifer,

    I am so sorry to read what you and your daughter are going through. It's obvious and, of course, natural that you're frightened, frustrated, and probably angry.

    I'm not a doctor and can't give you medical advice, but I'm glad to give you some information that you can discuss with her doctor.

    What really stood out to me is what you said about the noise. By the way, great job on keeping the diary! That's such a valuable tool. Is there any history of Migraine disease, "sick headaches," or sinus headaches on either side of the family? Migraine tends to be genetic, and noise can be a horrid Migraine trigger. Migraineurs almost always have more than one trigger, so her having a headache on a quiet day doesn't mean it couldn't have been a Migraine.

    Here's something her doctors don't seem to have told you. Taking the Motrin or other pain medications more than two or three days a week could actually make matters worse by causing headaches that are called medication overuse headaches or rebound headaches. If you want to read about that, there's an article at http://www.healthcentral.com/migraine/medications-32544-5.html.

    What do the doctors plan to do about the lipoma? I really don't know anything about lipomas in this area. You've done lots of research, and probably don't need more, but I did find this site that had a good diagram of that area of the brain. http://www.cerebromente.org.br/n02/fundamentos/ventrilat_i.htm

    Do you have the option of taking her to a specialist outside the military system? If you do, I know some excellent pediatric headache and Migraine specialists.

    Jennifer, we also have a discussion forum, which would be a good place for you to talk with people -- for both information and support. If you'd like to join us, just look for the orange box labeled "Manage" and click the "Migraine Forums" link in it.

    I hope this info helps at least a little. Will you please keep me updated?

    with a gentle hug,
    Teri Robert
  • Anonymous
    Cindy
    Dec. 17, 2007

    I'm a mother of a 6 year old daughter who has very similar problems and I'm wondering how you made out with your daughter.  Although I haven't been struggling quite as long, my daughter has been coming home just after lunchtime every day for the past week.  This is after we've seen a pediatrician--just thinking that she had a...

    RHMLucky777

    Read More

    I'm a mother of a 6 year old daughter who has very similar problems and I'm wondering how you made out with your daughter.  Although I haven't been struggling quite as long, my daughter has been coming home just after lunchtime every day for the past week.  This is after we've seen a pediatrician--just thinking that she had a sinus infection of some sort.  The antibiotics that we have had her on has done nothing.  I've been giving her codeine for the pain of her migraines, but I don't want her to get addicted to that, either.  Please e-mail me if you get this and let me know!

    Thanks..stressed out mom,

    Cindy 

  • Teri Robert
    Health Guide
    Mar. 21, 2007
    Hi, Jennifer.

    You're welcome. :-)  Glad I went ahead and gave you the link. I almost didn't since you'd done so much research yourself.

    Sigh. It's disgraceful that you haven't been told more. I have little patience with that type of thing and probably would have taken a doctor's head off by now.

    Hmmmm. Yes, I'd wonder if the lipoma...
    RHMLucky777
    Read More
    Hi, Jennifer.

    You're welcome. :-)  Glad I went ahead and gave you the link. I almost didn't since you'd done so much research yourself.

    Sigh. It's disgraceful that you haven't been told more. I have little patience with that type of thing and probably would have taken a doctor's head off by now.

    Hmmmm. Yes, I'd wonder if the lipoma and headaches were two separate issues too. That's one for the doctors to look into, definitely. If she has Migraine disease, it's entirely possible that noise isn't her only trigger. Most of us have more than one. The time you describe in the store could have been triggered by the lighting, residual fumes from cleaning products, any number of things. Vomiting with Migraines is quite common.

    With your family history of her father and your aunt having Migraines, your daughter had a 75% chance of inheriting. I don't know how important your uncle's brain tumor would be, but please do be sure to mention it to the doctor just in case?

    No, don't kick yourself. Migraine is something that can be complicated, and you're doing a great job. On the aura -- only about 25% of Migraineurs have the aura, so we can't always go by that, but you're right that there are other symptoms. Prodrome is before aura, and sometimes being very aware can help us spot a Migraine up to two days before the headache phase begins.

    Don't forget about the forum when you're feeling alone. There are great folks there, some of them parents of Migraineurs you could talk with.

    Take care,
    Teri
  • graciebaby28
    Mar. 19, 2007

    Hi Teri, and thank you so much. The brain map link was very helpful. All the ones I have come across are far too detailed for us to understand. This one was very clear, thank you for that. I have bookmarked it.

     

    As far as the lipoma, we have a referral appt to see Dr. Matthew Pearson, A Pediatric Neurosurgeon at Vanderbilt Children's hospital. Thankfully...

    RHMLucky777

    Read More

    Hi Teri, and thank you so much. The brain map link was very helpful. All the ones I have come across are far too detailed for us to understand. This one was very clear, thank you for that. I have bookmarked it.

     

    As far as the lipoma, we have a referral appt to see Dr. Matthew Pearson, A Pediatric Neurosurgeon at Vanderbilt Children's hospital. Thankfully we are stationed at Ft. Campbell so we have access to a wonderful Children's hospital on our March 28th appt. We have been waiting for this approval and it finally came:)

     

    The military hospital has left us in the dark as to what to expect, surgery? Life threatening? We have no idea. We were only told 'mass' to which I asked what that was and they said 'tumor'. But from all the research I have done while awaiting her appt. Tumor can be an ok thing or bad, we have no idea until the 28th though. We only know the size and location right now:(

     

    But the thing that makes me wonder if that is a separate problem than the headaches is she never really gets the headaches at home. In 2 years I can count maybe 4 times she got them at home. Once was in the store and she out of the blue said her head hurt and then immediately 2 seconds later she said her stomach hurt and I rushed her to the bathroom and she vomited.

     

    Another time she said she had a headache and I went to give her medicine. I asked her if her stomach hurt or if she felt like she would vomit and she said no. A split second later she was vomiting. She never even felt it coming.

     

    Of course these are distant 2 year ago memories that came back to me after the last few months headache episodes.

    I can look back and see various times things like that happened. But no more than 4 at home episodes in 2 years.

     

    The last few weeks though. She sometimes gets a stomache but never really vomits anymore. But everyday for 9 weeks straight, she has gotten a headache at school. There has been 1 day in 9 weeks she was able to stay all day at school:(

     

    As far as family history,my husband said when he was younger he had migraines but in his teens he stopped getting them. He also has sinus headaches now but not often.

    My aunt on my mom's side suffers from migraines but other than that, I don't know of any other family having them.

     

    I don't know if it is of importance but my uncle on my mother's side died of a Brain Tumor 1.5 years ago. I don't know the exact name of it or location but am awaiting it in the mail right now.

     

    I was looking around the site today and started asking my daughter other things I learned here and she said  her face feels like there are little bugs crawling under the skin when her headaches come. She also said she gets confused and her arms and legs tingle.

    I could kick myself because I always just asked her if she seen flashing/blinking lights prior to her headches and she said, only once or twice. I did not know about the other 'aura' indicators.

    She also did not know what throbbing was, so I took her arm and squeezed several times repeatedly to give her an idea of what throbbing felt like. She said that is what it feels like when her headaches come.

    She always descibed it as a 'little hammer hammering' so I did not interpret it until I squeezed her arm today and she said that is what the hammer felt like.

    WOW. In a way the more I read that points me to at least what is going on. I at least feel a bit better about it. Like we are onto something after searching so long.

    It has been a hell ride to say the least. Knowing she was in pain but having no idea where to turn:(

    Would it be feasible if these were migraines she was having, that they went away so quickly without medication when she is taken out of the environment that causes them?

    That is what kept me from thinking they were migraines, well one of the reasons.

    I thought a migraine would linger and need special medication?

    I will absolutely keep you updated.

    I sure appreciate the time you took to answer. We feel so alone in all of this and I just want to help her. She has an appt tomorrow at her regular clinic that I made today. I just don't know what to do but keep taking her back, In hopes someone will help her.

    I am taking my newfound information I learned here in with me about her symptoms. I will post more after her appt.

    Thank you so much Teri:)

    Jennifer:)

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