Monday, May 28, 2012

Hormonal migraines---a lifetime pursuit

By Daphadyl Thursday, October 11, 2007

Hello out there. Gosh this feels weird. I'm new to this format...but here goes.

 

I started having migraines when I was 8. I remember being in school and taking a spelling test, when suddenly I discovered I couldn't see the end of the pencil as it touched the paper. The words it left were there, just no way to see the lead make contact. I remember being on the playground and commenting that I could "chop a tree in half" (by passing my blind spot across it's trunk). Soon came the numbness in my hand, elbow and shoulder...and occasionally, up my neck and face. Eventually, came the nausea and vomiting. Mom thought I was having a stroke and rushed me to a neurologist...only to find that there was "nothing" wrong (test-wise). These continued until I was 14 (with periods that started when I was 12). Migraines appeared again, when I was 21 and taking the Pill. Again, I was sent to a neurologist and after many tests....told to get OFF of the Pill and in the event that someone tells me to take hormone therapy....to steer clear!! I've had them during the first trimester of each pregnancy, after I've finished nursing....and now, quite consistently, since I'm going through menopause. What fun!!

 

I've been seeing a neurologist again. This time, there's rarely a visual issue. No crescent shapes or zigzags and flashing lights. Very seldom do I get the numbness or the vomiting, now. What I do get, wakes me up between 3:00AM and 6:00AM---with a piercing, pressure-like pain encompassing my right eye and temple (on occasion, it's the left side). I've tried tracking them for the last couple years, with little success---due mainly to having my uterus removed 15 years ago, so periods have been long gone for some time. And without the periods, I've lost track of my cycle.

 

I've been taking Verapamil 3x daily as a preventative...and Imitrex when a real migraine occurs. It's been working pretty well---to the point that I was recently released from the neurologist, figuring we've got me to a point of things being tolerable. I know my migraines are hormonal and there's not much way I'm going to be able to skip menopause. So I've accepted the fact that the migraines are here to stay....for the duration of "the change". If I can get them down to 1 or 2 a month....instead of 2-3 a week, it's an improvement. And to be honest, the Verapamil seems to have decreased the headache's severity to the point that now....I'm a bit timid to actually call them "migraines". What I end up with is a sort of "not right" feeling that's hard to explain. Yesterday and today, it's more just a matter of being light-headed and not thinking clearly.

 

So, I've got an appointment to see my primary Dr. this afternoon. I'm hoping she has some insight.

10/12/07 9:47am

Your story could be my story except that the verapamil didn't work and we have tried a variety of other drugs.  Now that I am on Neurontin for the pain from impinged nerves due to degenerative disc disease I am finally back down to 3 to 4 migraines a month.

 

My own conclusion and one that my doctors thus far at the VA Hospital have agreed with is that these are now peri-menopausal migraines and that fluctuating hormone levels are not only triggers but also cause me to trigger from many other things.

 

Over the past 4 1/2 years like you I have had many weeks with 2 and even 3 attacks.  I have kept a migraine diary and changed my diet dramatically.  I even moved from my last apartment to another one where the heat is less intense.  

 

My family history leaves me hopeful that once I get through this period the migraines will return to 2 maybe 3 attacks per year as my mother had after menopause was complete.  Her family stories also were that my grandmother and great grandmother had a reduction in "sick headaches" after the change. 

10/12/07 1:41pm
I do wish you luck and good fortune in finding relief, once you've finished with menopause. Seems reasonable to rely on your family's medical history, as an indication of what's ahead. I've heard that my dad's mom had "sick headaches" and there might be a cousin or two of mine, who've dealt with migraines. That's an avenue I need to pursue one of these days...myself. Seems like, by the time we get to this age, we've all got some history of whiplash, back injuries, etc....along with the history of migraines...which doesn't help much. Glad you've found the Neurontin and hope it helps you.
10/12/07 12:25pm

 Hi,

I, too have had hormonal migraines since 11 ish. I didn't go on any meds until about 23. I used exedrin and tylenol.

I have seen a neurologist since 1987 or so and have thought that I tried everything but I see by reading these posts that I haven't even begun. My neurologist said that all the meds he has tried are the only ones and that percocet was the last to try......I refused it.

I am on topamax 100mg a day, inderol 180 a day and take zomig for a migraine which doesn't always work. I have never tried any of these other drugs you mention. I have had whiplash 4 times, and I believe I have a neck injury that he just ignores. Migraines are hereditery in my family. My Dad, and my sister. My sister had them and they slowed down with diet changes when she was in her mid 40's. She passed on from breast cancer at 48. I am now in my early 40's and mine are getting worse. I don't get the vomitting or eye auras. I get physical illness like IBS, Light bothers me and sound and my head and neck and shoulder on my right side will ache before my migraine comes.  I had heard of a "headache progam" at a recent rehab. and it has massage, intra cranial something or other....stuff like that...i am thinking if my insurance covers it I might try it. Have you tried anything like that? What diet changes have you made? I know I can not eat chocolate...instant migraine!! Any thoughts for a pre-pre-menopausal migrainuer?

 

10/12/07 2:04pm

I took Fiorinal when I was a kid, but at that time the dosage instructions were to take 6 pills...each 30 minutes. Well...doing the math, that's 3 hours into the migraine and long before I could finish the dosage, I was vomiting them up. Not much good. Then, there was Cafergot, but you can't take that during a pregnancy...due to the ergotamine. During my 30's and 40's, migraines came a few times a year, with no real pattern...and because of that, no real medical intervention. What I did learn to do, was to use an ice pack at the back of my neck while laying down in a dark room and make sure to keep my hands and feet warm (giving the blood somewhere else to go, besides my head!!). Eventually, I'd fall asleep for a few hours and wake up with the aftermath (stiff, groggy and exhausted for the next 12+ hours).

 

I haven't identified any food triggers for mine, although I've found it wise to limit the amount of processed meats and I stay away from wine (nitrites, nitrates, sulfites, etc). At one point, I cut out all cafeine from my diet. But, 3 months later, I had a series of migraines that hit every other day. And in between those, I could only focus on one word at a time while reading, which made studying for college quite difficult. It occurred to me that I'd grown up using cafenated sodas all my life and to suddenly cut out ALL cafeine, wasn't going to work. I continue to allow myself some coffee (3-4 small, weak cups) and 1 cola or iced tea, each day...as a maintenance level. I figure if hospitals are allowing patients to have coffee and tea with their meals....it can't be all that bad! LOL Luckily, I'm not a chocoholic, although there are occasions when I enjoy a taste. But I haven't found any real cycle to that, either.

 

Good luck with your journey...

10/12/07 4:20pm

Thanks Daphadyl,

I have tried the ice on the back of my neck. I haven't tried keeping my feet warm though. A therapist once gave me a thermometer and told me to put it in between my pointer finger and my thumb and try to imagine the temperature of my hands rising. That was supposed to take the blood from my head to my hands because they are always cold. I know about the nitrites and nitrates and the sodium nitrates....I wont eat any of that. I eat all mostly chicken from organic farms and most of my food is organic and health food except for my stoopid sweet tooth and carb fetish.

My boss is big into reiki which I can do, not on myself so much, and she does that cranial sacral whatever......she had me feel my brain on either side with each hand and try to get them to balance when I was starting to get a migraine. I did it with a small migraine and it worked oddly enough. I am destined to have migraines, I have to accept them and just try doing whatever I can to feel good and prevent, stop, reduce them if I can unless somehow someone finds a cure.....LOL...I wont hold my breath.

Good luck to you on your journey....I hope you have many painfree days ahead.

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By Daphadyl— Last Modified: 09/06/11, First Published: 10/11/07