Zonegran Success Story

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Monday, September 08, 2008
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There have been several posts asking about Zonegran successes. It is a miracle drug for me. I'm a 50 year-old man who had been suffering from severe migraines for 25+ years. Family history of them. My uncle and I could describe each other's symptoms to a "T". Years of CT Scans, MRIs, every drug under...

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Nancy Harris Bonk
Monday, September 08, 2008 at 01:58 PM

Hello, and welcome to MyMigraineConnection.com!

I started my second trial of Zonegran in February. Taking 300mg is too much for me, it leaves me feeling depressed and having thoughts I'd rather not have! I'm glad to hear it is working for you.

Oligohidrosis (decreased sweating) a potential side effect from taking Zonegran, is mostly found in the pediatric community, but doesn't mean it can't happen to adults as well. Staying hydrated is so important for a number of reasons. If one suffers from oligohidrosis, they need to make sure they drink lots of water. Dehydration is also a Migraine trigger for some people -staying hydrated will help with both things.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

Untitled Comment
pandorable
Friday, September 12, 2008 at 02:08 PM

Thanks much for your post. I have migraines for 20 yrs. They have been on and off manageable during that time. They have been unmanageable since 2/07. I stopped working in 2/08 b/c of them. I have one about every 6 days now. I also have daily headaches and neurocardiogenic syncope (dizzy spells). The migraines make my dizzy spells much worse and I am afraid the neurontin I am not as a preventive may also be making the dizziness work. I've gone to physical rehab for the migraines due to tension and stuff in my upper back and shoulders--I do my darn exercises 2X a week even though it leaves me losing my vision on the verge of passing out LOL. I also meditate/do relaxation 30 min a day at least 4X a week. All this to say I have been very frustrated and ready to get on the damn roof and start screaming my head off. I am doing all I believe I can to get better and have had no improvement in several months which I am sure is nothing compared to some people. I know there are people who have been suffering for years. Financially it's a mess. Blah blah blah. LOL I've been on Zonegram for a month--only up to 100mg at night but after reading your post, I am feeling hope for the first time in awhile. I don't know why--but it struck a nerve. I just want so badly to get better. Thanks, Pando

re: Untitled Comment
COexmigraineman
Saturday, September 13, 2008 at 01:24 AM

Hi Pando

So sorry that you're suffering. I've been in your exact position before, going to physical therapy several times a week for "tension"-related massage and ultrasonic treatments for painful neck muscle spasms that we thought may be causing some of the headaches. (Also temple, sinus, and head massage.) To this day, I don't know if the tension/pain was a cause or effect of the headaches. Do you get sinus pain as well?

Interestingly enough, I have had several non-prescribed, deep-tissue massages (focussing on my neck and shoulders) in the past few years which felt outstanding while I was getting them, but resulted in rebound spasms the next day with moderate tension headaches. So I wonder if my strange body actually responded negatively when I was getting the professional therapy for headache treatment? Who knows...

Don't jump off of the roof! 100mg is a fairly low dose. I remember that my neurologist said that he could go up to 500mg before giving up. 200 was a major improvement for me. 300 was amazing. But be careful... Since I posted, I've received feedback and have read on other sites that high doses of Zonegran has led to depression in some people (mostly women). I have NOT noticed this effect. Perhaps I'm just so elated that I no longer have to worry about waking up to a killer headache that I don't notice any mild depressive affects, I don't know. Just be aware.

I hope you find some relief soon!

Tim