I'm hoping to find some support and further insight into what is a total nightmare! I feel like I'm losing my mind and my life and marriage are falling apart.
I had what I thought was a minor whiplash injury 2 1/2 years ago and have had severe headaches with dizziness and nausea almost every day since. Then at just over the 2 year mark, I started having intermittant vision problems and numbness and tingling in my arms and legs. I feel horrible most days - mornings are usually the worst and I feel somewhat better by late afternoon or early evening. But if I function much I pay a price with worsened symptoms for sometimes days afterwards. I feel like I have the flu all the time with muscle aches throughout my body. Lying down to go to sleep at night is hell.
I have seen more drs/health care gurus than I can count and was recently given a diagnosis of BAM (Basilar Artery Migraine) or Hemiplegic Migraine by a neurologist. I'm not completely convinced he's right and some of what he's said is contradicted by what I've researched online. He put me through the ringer on a fast track of 3 different meds in a 2 week period - 1st Topamax, which dramatically increased every sypmtom, then Depakote - which I also had problems with. FInally, Propranolol which also seemed to worsen things. I can't help but wonder if going from one med to the nest with just 2 days break between caused the intolerance. Then he looked at me like I was the world biggest hypochondriac and referred me to a psychiatrist to try Tricyclic Antidepressants as the 4th and final option for treatment of his diagnosis.
At this point, a friendly voice would be nice as I feel trapped in a very lonely nightmare. Am I crazy? Is the problem 'all in my head'? People treat me like I'm a big baby and emotional weakling when I can't function like a normal person. I would appreciate any comments or insight. Also,I need to find a good migraine/headache specialist in the Phoenix area - soon. Any suggestions?
PS - I just read jennyc's postings and cried. I'm so happy for you.
pattiw
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