Hello, and welcome to MyMigraineConnection.com!
Three years is way to long to suffer from daily pain. No one should have to live like that. My first thought is to find a new doctor, and fast! A Migraine specialist is an expert in headache disorders and Migraine disease and devotes his/her practice to them. This doctor will be able to diagnose and treat you properly. A neurologist treats so many different conditions it is hard for them to be experts in any one area. We have a list of patient recommened specialists you can see HERE.
Having said that, you may need to travel a distance to see a specialist. Some of our members have traveled from VA to TX to see their specialists and found it well worth it to have their quality of life back.
Don't lose hope, as Pam said. There are over 100 preventive medications used to treat Migraine disease. Migraine Preventive Medications - Too Many Options To Give Up! On this list you will see blood pressure medications too. But if your Migraine frequency is not being reduced, and you have given the medication a fair trial (sometimes it can take 3 months) then you may need a different preventive.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
One of the best ways to stay current with Migraine and headache disorders is to sign up for our free newsletter. Click on the green Free Newsletter button on the home page.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy Bonk
MyMigraineConnection.com Expert
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!
The reason that I've joined this site's community is to offer my story. I'm hoping that I can help someone else. I don't know all your details, but I suffered for years with migraines. I would lay in bed, in a dark room, for 3 to 4 days of the week, wondering if things would ever get better. Triptans would work, although there is a rebound effect which causes more migraines.
My remedy is now very simple, even though I tried many preventative things via allergists, ENTs, and neurologists, and logged many daily foods. If I avoid gluten, I don't have migraines. (Actually, I can get migraines from another problem, but the cause is quite different.) Try avoiding anything made from flours/grains..as wheat, barley, rye or oats...such as crackers, cookies, bread, pretzels, bagels, many snacks, cakes, pasta, oatmeal, etc. Avoid "modified food starch" also, which is wheat, used as a thickener in soups, puddings, etc. Whole wheat or steel cut oats brought on a headache faster. A very refined flour, such as cake flour, would cause a migraine many hours later. I didn't get migraines some days when I ate wheat, as my estrogen levels fluctuated and affected the situation also. Even without ovaries and a constant estrogen level supplied in pill form, I still can get headaches on certain days - which tells me some other chemistry is involved also. If I want to eat something (small amt) with gluten, I drink a half cup of coffee with it, and I don't get the migraine! Try going a month without gluten and see if you feel better.
Something else, I can get headaches from other things that cause blood vessel enlargement or inflammation. I think caramel coloring or flavoring does it. Calcium in a vitamin causes a headache, but if it has magnesium, it balances it, (expansion vs. contraction) and no headache. B12 expands my blood vessels and doesn't exactly give me a headache, but my brain feels pressure, without the banging of a migraine. CoQ10 does the same thing. Triptans don't help. Caffeine makes it all worse in this situation.
Jamie,
I'm 26 and have been having chronic daily migraines for the last four years. Mine didn't really get bad though until I graduated college, so I still 'managed' to get through school alright. My mom had started getting them every day right before menopause but her's are much better now. I don't want to wait another 25 years until mine go away though.
Thanks to this Web site and Teri's book - which I HIGHLY recommended reading - I have finally found a neurologist that I like, who cares about me and who I will stick with as long as I can. This is my 5th neurologist and 8th doctor I've seen about my migraines, so it is a long and stressful road. I did several antidepressants, the Topamax, Imitrex, Maxalt, Relpax, Frova (and I didn't even lose any weight on Topamax)
I even started working with a chiropractor, dietician, and pain management doctor (trigger point injections are GREAT when they work...otherwise, they're just really painful). I felt like all of my possibilities were exhausted but they're not. There is SO much out there right now and new things are being discovered every day. It's a pretty great time to have migraine because there are so many options available.
It's really hard because when you're this young, you're not supposed to be in pain all the time. You should be studying and working and hanging out with your friends and still being a bit of a kid. I would tell my friends in college that I had a migraine and they would offer me Tylenol or Advil - like that would help! I still have coworkers that do the same thing. They just don't know but you can help them learn!
I would start by going to Teri's Web site - www.helpforheadaches.com - and searching for a doctor in your area. That's how I found my new neurologist and we've made a ton of progress in just a month or 2. And keep posting here. There are so many wonderful people with good ideas who are going through exactly what you and I are.
Hang in there and don't ever lose hope.
Pamela