Fed up of the pain :-(

By ELF1981 Friday, December 28, 2007

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I have been suffering from a bad head since the end of November. In the past five weeks, I have had five days where I have been that sick that I cannot get out of bed - only to be sick, and even then sometimes I have felt like throwing up on the floor because I didn't have the energy to move. On the days when I am not being sick, I am suffering from a bad head - dizzyness, shooting pains, total agony. I lost all feeling in the right had side of my body and had to spend three nights in hospital while the doctors workd out what was wrong with me. They diagnosed me with hemiplegic migraines. Since coming out of hospital I have been surviving on pain killers to help me get through the day, and nobody can tell me when the pain will end.

I just want to feel like myself again. Can anybody share any stories that will give me a glimmer of hope that I will remember what it is like to be me?

Thanks

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nutcracker1

12/29/07 8:43am

I'm so sorry for what you are going through. I don't have hemiplegic migraines, so I can't share a specific positive experience with them, but I can tell you that quality of life can be improved for nearly everyone with migraines.

Please take a look at the Success Stories folder over on the discussion forum. In particular, I recommend a thread called "Is it ending??" While you are over on the forum, I hope you will register for it for further information and support. We have some other members with hemiplegic migraines, who would be happy to share their experiences with you. You can also get to the forum by clicking on Migraine Forums under the orange Manage bar. Registration for the forums is separate from the registration for this page, but of course, you can use the same information to register.

When you have hemiplegic migraines, it's especially important to see a migraine specialist. Click on the blue words for a list of specialists maintained on this site.

Apart from that, I'll share this article for some basic info about hemiplegic migraines:

Hemiplegic Migraines--the Basics

Welcome. Come on over to the discussion forums. We would love to have you.

Nancy Harris Bonk, Health Guide

12/29/07 12:12pm

Hello, and welcome to MyMigraineConnection.com!

Being in chronic pain every day is an absolutley exhausting and scary experience. Is this your first time with extreme head pain or have you had Migraines before?

Migraine is a genetic neurologic disease that has flare-ups, or Migraine attack itself. A headache can be one part of a Migraine attack. There are actually four phases to a Migraine. Each person experiences a Migraine differently. For example, I do not get the aura phase of a Migraine. However, my brother has had these. Anatomy of a Migraine (click on blue text) discusses all four phases.

Familial Hemiplegic Migraine (FHM) and Sporadic Hemiplegic Migraine (SHM) are two rare variations of Migraine disease. FHM and SHM can be hard to diagnose because some of the symptoms are similar to other conditions. It is imperative to have a complete medical evaluation to confirm either FHM or SHM. True motor weakness during Migraine with aura is one key way to diagnose HM. There is also some new genetic testing that can be done. Both these highlighted links will provide you with indepth information on HM. Hemiplegic Migraine - Genetic Testing May Be Helpful and Hemiplegic Migraine - The Basics.

If diagnosed with HM, it is crucial to see a Migraine specialist. There are some drugs that are contraindicated in the use of HM, and makes it important to see an expert in Migraine disease and headache disorders. They are current and knowledgeable on Migraine disease treatments We do have a list of patient recommended specialists you can see by clicking HERE.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We have a few members who have HM and would be happy to share their experiences with you. We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

Fed up of the pain :-(

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