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Hi Karen!
Eileen Gray
Tuesday, July 01, 2008 at 04:06 PMre: Hi Karen!
Karen L
Tuesday, July 01, 2008 at 06:51 PMI think I have ringing in my ears. I've had this for so long that what I experience seems normal to me. I don't know what other people hear (or don't hear). I have had a Lumbar Puncture that was negative. I will do some research into the condition you mentioned. I was really wondering if anyone's taken any meds that really help with stiff, knotted neck and back muscles that cause migraine. I've seen that list of ove 100 meds and I've tried a good third of them already!
re: re: Hi Karen!
Eileen Gray
Tuesday, July 01, 2008 at 07:09 PMYou may want to consider talking to your doctor about muscle relaxers. They can be part of migraine preventive treatment and also really help with the tightness in the neck/shoulder area.
There are quite a few out there, I personally take Skelaxin. It doesn't make me, personally, drowsey, although that can be a side effect.
Also you may want to consider less chiropractic, more massage therapy. As you seemed to have picked up on, sometimes you feel great after a chiropracter, sometimes not so much!
I personally will not see them anymore for fear that they will make my Migraines worse.But, it is your body, your call on what treatment route you want to go.
Are you seeing a specialist? It may be benificial to you to seek one out if you are not already seeing one. They are much different then just a GP or a neurologist in that they specialist specifically in only Migraines and headaches.
Let me know if there is anything else I can do for you ok?
You can also reach our forum and talk with other migraineurs by clicking right HERE. (later you can reach the forum from the home page by clicking in the orange Manage button under Migraine forums)
Hope this helps!
re: re: re: Hi Karen!
Karen L
Tuesday, July 01, 2008 at 07:51 PMThanks so much for your quick input. I've tried Skelaxin and it didn't seem to help. Right now I'm on Flexerol. I just spoke with my neurologists office and the nurse doubled my dose for a week to see if that helps. I do see a neurologist at The American Migraine Center in Cleveland. I'm in Florida so I fly up there once a year to see her and consult over the phone throughout the year (I have family that lives there). I looked at the list of specialists and there was one in Tampa where I am. I once waited 3 months to see her only to get there and find out she was out sick. I had to see her college intern who joked that the only headache he's had was when I got hungover in college!
re: re: re: re: Hi Karen!
Eileen Gray
Tuesday, July 01, 2008 at 09:16 PMMy cousin sees the Migraine specialist in Tampa. She says she is good.
For me, Skelaxin only works on tension type headaches, and that is at the very very start. Other then that, it does nothing for me.
Glad to hear your neuro team is good with getting back to you and working out meds with something you are already on. That makes it much nicer then having to fill another script!
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Untitled Comment
Nancy Harris Bonk
Wednesday, July 02, 2008 at 11:55 AMHello, and welcome to MyMigraineConnection.com!
Neck problems can certainly trigger Migraines, this is from personal experience! Have you injured your neck before? Had any Xrays taken to see if there are any problems with it? Speaking of triggers, have you ever kept a Migraine diary to see what other things may be triggering a Migraine attack? It is easy to do and you can download that HERE.
One thing we may not be told when we start new medications is they may take to up to three months for our bodies to adjust to them and actually see a reduction in Migraine frequency and severity. That's why after just a few weeks when starting a new medication, our Migraines may not be any better, we become frustrated (along with the neurologists) and move on to another medication. This isn't a fair medication trial for us or the medication. So, if we've tried a medication for only a month and it didn't work, it may be beause we didn't give it enough time. Try not to lose hope, there are over 100 medications that can be used for Migraine prevention. Migraine Preventive Medications - Too Many Options To Give Up!
Now you can see why it is so important to see the expert, a Migraine specialist. These doctors devote their entire practice to treating patient with Migraine disease and headache disorders, and are on the cutting edge of treatments. Think of it like this: if a pipe in your house breaks you call a plumber, the expert. You could call a carpenter who could fix the pipe, and fix the woodwork and then paint the woodwork, but he isn't the expert when it comes to fixing the broken pipe. A neurologist is a fine doctor but treats many different conditions like stroke, epilepsy and headache disorders. To see our list of patient recommended specialsits click HERE.
Many Migraine specialist we speak with are not real thrilled about chiropractic work on the neck area. The lower back is fine, but the neck should be avoided.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy Bonk
MyMigraineConnection.com ExpertNancy Bonk
MyMigraineConnection.com Expert -
Untitled Comment
Lori
Friday, July 11, 2008 at 03:57 PMKaren, I too suffered for many many years with daily migraines and felt at the end of my ropes. Nothing worked as far as preventitive and doese of 1200 mgs of anti inflammatories helped with pain. I have had 3 things that happened to me this year that helped, 1) anti-inflammatorys, 2) I had 2 fusions done in my neck because it was determined that I had bulging discs that were constricting the spinal cord. The condition is called Postional Cervical Myeolopathy. 3) I was also diagnosed with a headache type called Hemi Crania Continuia with superimposed migraines. These headaches pretty well mimic migraine attacks, but respond very well to anti inflammatory meds. Since my surgery and daily dosages of Indomethacin. I have been a much happier person. The daily headaches are gone and I may have had 5 migraines this year.
Just thought I would share with you my experience and if any of it helps that is great. Good Luck.
re: Untitled Comment
Teri Robert
Friday, July 11, 2008 at 04:07 PMLori,
Thanks for sharing your info with Karen. One thing I do want to point out so that nobody who reads these comments gets into a bad situation is that daily anti-inflammatories should not be used for Migraine or headache other than hemicrania continua. Other than HC, using daily anti-inflammatories can lead to medication overuse headache, aka rebound.
It's REALLY good to see that you're discovering things to help you!
Teri
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Welcome to the site!
First a couple of questions for you.....do you have ringing in your ears (tinnitus)? Any intercranial noises? Can you hear your pulse in your ears? Have you ever had a Lumbar Puncture?
The reason I ask is to see if you have been tested or have any symptoms of Intracranial Hypertension, also called Pseudotumbor Cerebri. Which, also a sypmtom of IIH is headaches increasing when you lay down due to the increased spinal fluid around the spine.
I know what you are saying about the medications, but you have to realize, Migraine is a genetic neuological disorder, for which there is no cure. Consider this, would you rather be in pain, or try and find a treatment plan that works for you? I think I know the answer.
There are currently over 100 medications being used as preventive Migraine treatments!
Please don't give up! You've made a step in the right direction by coming here to educate yourself and getting to know other migraineurs like you. The more you know about this disease, the better treatment you can get for yourself.
If you are by chance looking for a specialist, we have a list of patient recommended Migraine specialists here on our site.
Welcome to the site!