Hi, I am new to this, and not very technological, however I wanted to talk to others who are going through the same experience as me, on 1st March, I was rushed to hospital, with the diagnosis of a stroke, however after further investigation I was told I had hemiplegic migraine, and sent on my way. the feeling in my lefthand side comes and goes, I sometimes struggle to string a sentence together, and have had a constant headache since the end of February. I'm awaiting to see a neurologist in a couple of weeks, I feel the Dr has been quite dismissive with me. I can't work, exercise, play my instruments, or lead a normal existence at the moment, which I am finding quite soul destroying.
Does anyone have any similar experiences they can share/ help me to understand this a bit better.
Jess.
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Jess,
I' m sorry to hear about your recent diagnosis, but we are here to help you get through.
It can be quite scary getting that kind of news. May I suggest you find a new doctor who is more knowledgeable about Hemiplegic Migraine(HM) than your current one. HM is a rare form of Migraine disease and the best doctor to help with it is a Migraine specialist. They are true experts in this area. You see,
if your doctor isn't able to help you, or is just plain "dismissive" it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
You also might want to join us over in the forum where we have a special folder for people with HM. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Hope to see you over there!
Nancy
So sorry you are having such a hard time. I too have HM and the best thing choice I have made is to join the health central migraine family. You need support from people who have been there, bottom line.Please goin the fourm there is so much info and help. many of you questions can be answered by reading posts form other members. There is an HM folderin the fourm, check it out.