Hello, and welcome to MyMigraineConnection.com!

I can't help you with a diagnosis, only a doctor can do that. Besides, you wouldn't want that done online anyway. We can help you with information and support, how does that sound?

Pseudotumor Cerebri (PTC), or Idiopathic Intracranial Hypertension (IIH) is a condition where our bodies either produce too much cerebriospinal fluid or don't absorb it properly. Papilledema (swollen optic nerves,) intractable headache (not relieved by medication) ringing in the ears, and vision loss are just a few symptoms of this condition. This article may be helpful: Pseudotumor Cerebri (IIH) - The Basics. 

Usually people who are symptmatic and have papilledema get  diagosed and treated. An LP reading of 22 with papilledema seems pretty clear to me, but then again I am not a medical professional. A Normal reading is 20 or under. Some doctors say for fat patients (myself included) 22 is the starting low point. Here is where is gets tricky - 22 for me may not be ok for you. In fact, I have IIH and don't feel well when my pressure creeps up towards 20. Other people feel fine until their pressure is over 30.

So, if you are not getting the answers you need, and/or are not feeling well, please get another opinion. A Migraine specialist may be the doctor to see. He is the expert treating patients with headache disorders, like PTC and Migraine disease. Or a neuro-ophthmalogist. We have a list of patient recommended specialists you can see HERE.  

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

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If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,