Sunday, May 27, 2012

Ode to Aphasia (Or what was I saying?)

By Jamie Saturday, July 19, 2008

Trapped in my own head again

Trusting no words from my lips

I stare blankly

And  think of what I should have said

Certainly not the stammered stumble

That wouldn’t flow from my mouth

 

So I distrusted it

And opened it no more

Since all I said was stupid

And reflected poorly my thoughts that day,

I clammed up and cowered.

 

Lost in the disease- the gift that keeps on coming

 

On and on again

But this feels different- lost like I’ve never been

I write these words on paper and here they can flow

But a conversation with me would reveal just how far I had to go-

Just to be understood.

 

And that’s just the first step in communication

Which I can’t do right now

Not trying to impress, just keep the conversation flowing-

To get me through this interview and get some rest time going

 

I think to call the doctor, see what to do,

But that’s kinda hard when speaking is as far from a reality

Than flying to the moon.
So I guess I wait.

And pray that “the stupids” end soon.

Stepping in and out of boundaries
Anonymous
Dianna
7/24/08 8:04am

You must be on Topamax! Please get off that drug. You can't live like that! Now they are saying it causes birth defects too. What is it doing to you? Try a new preventative medicine, it's for the best!

7/24/08 10:09am

Thanks for your concern. No, I'm not on Topamax- just have occasional bouts of aphasia- usually as a prodrome sensation. It's awfully annoying, but, as I get closer and closer to finding a good preventative regimen, it's not as common. When it strikes, however, I usually find myself wanting to complain about it, as I'm a pretty verbal person... So, that's where this poem came from.

7/26/08 10:58am

I truly understand your frustration and my heart goes out to you. I know that others who don't suffer from migraines can't possibly know that it is part of the migraine process that makes us sound so dim witted. However it does help to explain it to family members and close friends WHEN we CAN think clearly. So now when I start mixing words up or stare fighting to get the words to come out at all instead of getting angry i just throw my hands up, shrug my shoulders and laugh, my friends understand and laugh with me. It's better to laugh than cry. And God knows we've all done enough of that.

 

Take care hon!

Anita

By Jamie— Last Modified: 09/04/10, First Published: 07/19/08