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Your Migraine Experience
Melanie
Saturday, November 14, 2009 at 02:41 PMre: Your Migraine Experience
praeter13th
Sunday, November 15, 2009 at 09:26 AMThank you Melanie. Yes it was better that afternoon when I woke up.
It is interesting that you described the storm outside in relation to the storm inside since weather affects many of us with migraines. I cannot imagine keeping a trench around my house clear during a driving rainstorm with a bad migraine... maybe a few years ago (younger/stronger). Kudos to you for managing it. Did you keep the basement dry?
Oh and yes, they can be unrelenting, so that even a mild or medium one can eventually wear you down. I wish dark chocolate, general Tso's chicken and onion rings cured them instead of caused them... Praeter13th
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Elk Mom
Saturday, November 14, 2009 at 03:22 PMYou have described my migraines to a tee. People without them need to read your post and maybe it can help them understand what is happening in our heads. The part about rolling your head on the pillow- that is soooo true!.. Hope you get relief from your migraines. I am sorry you have a terrible time at the hospital. I have found a drug that is in nasal spray now but it is $700 for 8 doses. Migranal now is in a nasal spray and I found it works. Of course -
Praying for all fellow migraine suffers!
re: Untitled Comment
praeter13th
Sunday, November 15, 2009 at 09:32 AMThank you for your words Elk Mom. If I have described your migraines then you have my sincerest wishes for a cure soon. Yes, the roll of the head. Pounding and waves of pressure. I ususally get out of bed when a bad one comes. Laying there for me is no better than sitting up or reclining in a chair; and in a sitting position I feel like I have more control over what is happening to me... absurd, huh?
Oh and sorry for the 'no paragraphs' format of the story. I dunno what happened between preview and post???
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Nancy Harris Bonk
Monday, November 16, 2009 at 05:45 PMThank you so much for breaking up your SharePost. It was very interesting to read.
Chronic pain is take its toll on our body, sould and family too. It is frustrating and exhausting, making us feel desperate and alone. I was so glad to see you posting again.
It truly sounds like it is time for an expert to take a look at you. Not just a neurologist who says they are a Migraine specialist, but a "true" Migraine expert. Here's the thing - neurologists may be fine doctors, but treat so many different conditions, like MS, stroke and epilepsy, is it hard for them to be experts in any one area. Migraine experts are just that, experts who treat one area - ours - Migraines and headache disorders.
You could think of it like this: when a pipe under the kitchen sink breaks, you an expert to fix it - a plumber. You could call a handyman who can do the job, then fix the drain, the cabinets and any or jobs that need doing. But he isn't an expert in the one area you need; plumbing. Keep reading for information on: Migraine and Headache Specialists - What's So Special? Then you can take a look for a Migraine specialist on our patient recommended list.
I really hope you see a specialist soon, many people have gotten their life back together and it really is worth "one more doctor's visit!"
Good luck
Nancy
re: Untitled Comment
praeter13th
Monday, November 16, 2009 at 11:36 PMNancy,
Thank you so much for replying and the advice. I posted more or less just to vent. Though written in present tense the above story was written by me the day after the migraine it talks about. I've had a couple pretty good ones recently so I posted that as a way of "complaining/venting". Also I'm a closet wannabe writer/poet with no english skills or training that finds release and relief in putting funny or even serious (above story) stuff in print.
After having no medical support for the duration of my life until age 41 the neurologist my PCP referred me to here in Indiana has been a great help to understanding and reducing my migraines. He's great. However, I will take the list of doc's on the list and see which ones accept my insurance and then see if I can get a referral to one nearby.
Thanks again! Praeter13th
re: re: Untitled Comment
Nancy Harris Bonk
Friday, November 20, 2009 at 10:05 PMAWESOME! Write away. I always want to make sure people have information when they need it.
This is a great place to vent away, we all need that, I totally understand. My garage seems to be my venting area right now. I can scream when no one is around and feel much better about everything, for a while that is!!
Hang in there and write again soon, ok?
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I think you've captured the unrelenting nature of a migraine attack better than any other description I've read before. I hope you were right, that your pain was on its way out at the close of writing this piece.
I certainly commiserate, especially with the experience of having to do physical work in the midst of an attack. Once I had to clear a trench in the midst of a storm around the side of our house to keep a mud flow from flooding our basement. In a weird way it seemed appropriate--a storm raging outside to match the storm raging inside my head.
Good luck to you.