Sunday, May 27, 2012

Just trying to live normally.....

By Kellilori Thursday, October 04, 2007

I have been experiencing horrible migraines now for as long as I remember.  They worsened tremendously about 4 years ago.  I've gone through every drug possible, every vitamin and supplement possible, every type of treatment possible i.e. accupuncture, massage, chiropractor, chinese herbal healing etc. etc.

I have a husband with two children. 

What I'm going through right now is the depression that I cannot live and do the things that I would normally be doing if I didn't feel so debilitated from the pain.  I have tons of guilt about not being able to take my children out and play as often as I would like. 

I really don't think anyone in my family understands quite what I have and am still going through.  They think if Im not constantly complaining about it (which I do NOT do anymore) then Im feeling fine.  Which this is NOT the case. 

My sister planned a get together for me and my mother at a restaurant for tomorrow for our birthdays.  Im already wondering if Im going to be able to make it.  Most of the times I go to events any way and SUFFER greatly through them.  I try and pull it off (miserably inside) to make other people glad that I came. 

Im sooo tired of talking about me.... but that's all it's been about is how "mommy" is feeling. 

The pain is another story in itself.  Sometimes its so unbearable that I cannot stand to hear my own voice.  Light is horrible.  Im wearing my sunglasses indoors.

Today, the pain is better because Im able to type. 
I hope I haven't depressed everyone reading this. 

I just feel so alone sometimes in my feeling helpless with this disease.

When I go to doctors they seem to not know what else to do with me.

10/ 4/07 1:04pm

I'm glad you found us! What all have you tried as far as preventatives? You know there are over 100 different drugs out there now for migraine treatment.....

 

It may take some time to find the one that works for you, but don't give up hope!

 

I know what it feels like to suffer through family functions, events and work, just dealing with the pain. You don't have to live like that. Are you seeing a headache specalist?

 

Keep your head up! We are here for you!

 

Also - check our of forum if you have not done so yet! You can find it on the front page in the orange "manage" box. Click on Migraine Forum. You will have to make another user name and password for that section, but you can use the same one you used for this section if you'd like.

 

Keep us posted on how you are doing ok?

I hope you are feeling well and you have fun at the birthday party tomorrow!!!!

 

Big GrinEileen

Forum Moderator

10/ 4/07 6:08pm

Thank you for the note. 

I've been on many preventative meds.  There really is Too many to list.  The question is more "what haven't I been on?"

Yes Im seeing a Migraine Specialist.  I was sent from my Neurologist.

Im just trying to get through ... and live one day at a time with a positive attitude which is oh so hard !

10/12/07 7:55pm

Kellori,

Welcome and we are here for you. You should join us in the forum and discuss some of this with us. Many of us are in the same boat as you, or have been sometime along our journey of migraine. I look forward to talking to you soon. I hopw you had a good birthday! 

Anonymous
L. Telford
12/16/07 11:49pm

I've been suffering from terrible migraines for over 10 years... About 2 years ago, my dentist said I showed signs of TMJ and referred me to a specialist. I've been migraine-free for at least 10 months now. I seriously recommend at least getting an evaluation. She saved my life!

12/17/07 2:56pm

I have recently been diagnosed with Trigeminal Neuralgia as well as Migraine Disease.  I am on Anti Seizure medication as well as preventative migraine medication and so far I am feeling somewhat better.  I always hate to say that though because it seems like as soon as I feel better... I'm not again.

Thanks for responding to my message

By Kellilori— Last Modified: 12/06/10, First Published: 10/04/07