Sunday, May 27, 2012

help..please

By stacy Monday, September 17, 2007
i have been on countless drugs. preventative and abortive. i get pain at least 25 days a month. i have lost mostly everything i have worked for my entire life. i have spent half my retirement at this point trying to survive waiting to be cured. lol i am a single mother and no job and of course many drugs to buy. someone tell me how to deal with this pain?! and not become a junkie ...again! i am now going to get a spinal tap. is this productive? anyone.....
strength
Nancy Harris Bonk, Health Guide
9/17/07 7:59pm

Hello, and welcome to MyMigraineConnection.com!

Unfortunately at this time Migraine disease is not curable. It is a genetic neurologcial condition that has flare ups - these are the Migraine attacks. Anatomy of a Migraine does a great job of explaining the four phases of an attack.

 

Twenty five days of pain during the month certainly doesn't leave you with many good days does it? I'm sorry to hear you are suffering so, but try not to lose hope. There are things you can take to feel better even though it may seem like you have tried every drug out there. It really isn't possible because there are over 100 drugs being used for Migraine prevention.

 

Another important thing to do is see a Migraine specialist. This doctor can properly diagnose you and develop a preventive plan along with rescue and abortive medications.

 

Thank you for creating a SharePost.  SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. This can very helpful when looking for support from people who totally understand Migraine disease. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

Nancy Harris Bonk, Health Guide
9/18/07 9:42pm

I forgot to mention something that may be important. A condition called Intracranial Hypertension, formerly called Pseudotumor Cerebri, is usually diagnosed by a spinal tap. In IH, our body either produces too much cerebrospinal fluid or doesn't absorb it properly. Symptoms can include, but are not limited to: chronic head pain which can be severe and is not relieved by medication, tinnitus, hearing loss, and papilledema. However, some doctors  may tell you if you don't have papilledema you don't have IH, that simply is not true. I don't have papilledema, but do have IH. An ophthalmologist is an eye doctor to see for this. 

 

Let me know if you have more questions on this condition. I will help if I can.

9/19/07 12:34pm

actually i had seen doctor young...lol and i think this maybe what he maybe thinking. i have many of those symptoms mentioned. i suppose i will wait and see what the outcome brings. i appreciate your info!!

i feel better the more i know!

Nancy Harris Bonk, Health Guide
9/21/07 7:54pm

Being better more educated about my own health care makes me a better patient, I think!

By stacy— Last Modified: 09/04/10, First Published: 09/17/07