I have had migraines since childhood. In December, had the scariest experience! Hemiplegic migraine. Still struggling to get it under control. Good days and bad days. I just saw my neuro today. Another change in meds. Next step may be spinal tap. Anyway, not letting it slow me down, just having to find new ways to do things.
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Hello, and welcome to MyMigraineConnection.com!
Hemiplegic Migraine is a rare form of Migraine disease that can be a challenge to treat. While a neurologist may be a fine doctor, it is difficult for them to be an expert in any one area because they treat so many different conditions. A Migraine/headache specialist is the expert who would be best suited to treat someone with Hemiplegic Migraine. We have a list of patient recommended specialists HERE.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. You can also sign up for our free newsletter about Migraine disease and headache disorders on the home page in the upper left hand corner.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy Bonk
MyMigraineConnection.com Expert
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!