I know that everybody thinks the things I'm dealing with are all in my head, well I've had a cat scan done and that proves it, there is nothing in there. And I'm starting to think no brain either. I can't seem to get all these people to understand that I dont live the way I live because I want to its cuz I have to. I live in a dark room, I watch t.v. in the dark, I have dark curtains on my window cuz my eyes hurt most of the time, when I can see that is. I don't go out much cuz if its windy, I have a migraine. If the sun's out it hurts my eyes which makes my head pound. The volume on the t.v. is usually very low unless theres a Red Wings game on. If it is gonna rain I know 3 days before hand. My head will pound like some one is beating a huge base drum. They don't understand I always have a headache and sometimes I'm lucky enough not to go full blown. I dont move around alot because if I do it can force me to go full blown.
I get told to go out more, don't stay in your room chain smoking and breathing all the cat pee and poo, like I don't know how to clean a litter box or open a window, door, or the widow in the bathroom. They think all I do is just sit here with my finger up my butt feeling sorry for myself. Yes, my life sucks and I'm tired of living and living with the 30+ years of pain I've been in but I cant work cuz that makes my life more miserable so because I can't work I cant get medical attention and now I cant get anyone to understand that I'm stuck with no help and no where to go? That I'm not sitting here with my thumb up my butt I'm just usually in so much pain with no pain meds I just cant do I don't want the pain to get so bad that I take what I can to make me go away.
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Hi Kimmer,
It's not unusual for people with Migraine to have normal CT scans and MRI's. That certainly doesn't mean we don't suffer with Migraines. I just wish more people would understand how difficult it is to deal with these on a daily basis. Would some information about Migraines, written for people who "don't get it" be helpful? We have an article you could print out and give to family members and friends. Let me give you that link; "Migraine and Headache Education for Those Who Don't Get It."
Have we talked about trigger identification and management yet? This is an important part of any Migraine management plan. One of the best tools for identifying triggers is a good Migraine diary. You can download a free diary workbook from our article Your Migraine and Headache Diary. Some of us have food triggers; some of us don't. It's advisable to determine if you do, and an elimination diet is the best way to do that. For more information and a workbook on this, see Managing Migraine - Migraine Trigger Foods. Even if you've kept a Migraine diary before but it's been awhile, I would encourage you to start another one. It really is amazing the things you may find that might be triggering your Migraines - things you'd didn't even realize.
In your heading you mention disability, but didn't talk about it in your post. Is there something specific you'd like to talk about, or information you need? Let me know so I can lend a hand with it.
Hang in there -
Nancy
Hi Nancy,
Again thank you, I have asked my sister-in-law to please check out this web site. Some how I don't think she will so I'll see if I can hook up to their printer and print out a bunch of copies of that link and its articles and hope that will sink in.
I have applied for Social Security twice and medicaid twice and been denied for both they site that I am able to return to work, my last job was working at the military base here in my state as a barber, which I absolutely luved and miss desperately. I have continued to cut hair periodicly for family and friends and that will put me in bed for three days. I literally just got off the phone with a chiropracter that I had seen a few years ago and found out a few interesting things that are causing me problems. I have a reverse curve in my neck, the disk between c1 and c2 are gone by half and vertebra 4,5,and 6 are starting to fuse together. So to say it bluntly I'm kinda up a creek and have no paddle! Now I have more ammo.
I saw what they call a "shrink' for Social Security and Medicaid, the same guy mind you, who is just a ph.d with no clientele and they all looked at his report and in 3 days decided that I quailfied for anything. One of the attorneys that contacted me from this web site will reopen the car accident to see about getting my medical covered, which will help, and I'll know more from the insurance company on monday. I also have to make a phone call to see if I can get help to get in to see a real shrink who has a practice and then a social worker in the next town said she'd help me with medicaid and get my dhs case worker off his butt to help me out. So maybe this is my entire problem and maybe this is a start to a solution I don't know. As far as my disability goes I'm stuck in a hole with no one seems to want to take the case to get the help I need with that. As always we'll see. I don't know what else I can do. I can only hope that this is a start for me.
Any more suggestions would be appreciated!
Again Thank you
Kimmer
Hi Kimmer,
Many times people are denied SSDI without the help of a lawyer who specializes in it. I would suggest trying to find one who does and contact him/her.
How are you doing on your triggers? I think we talked a bit about the importance of avoiding Migraine triggers, so I'm wondering how you are doing with that?
Keep me posted, OK?
Nancy
It isn't easy Kimmer. Hang in there and keep me posted on your SSDI hunt for a lawyer.