Sunday, May 27, 2012

Botox Experience

By Chris Z Saturday, January 22, 2011

This is my first sharepost on my personal botox experience.  I've not noticed any other patient experiences posted on most any sites, so if I may be so bold.

 

The insurance process was not without a handful of glitches, it took two requests by the insurance company for additional information and took about 6 weeks.  In between the holidays I received a call from the pharmacy for permission to send it. However, since the doctors' office was closed they needed to wait for the new year... of course, the insurance company claimed a "lapse" so I followed up with a call the following week. They assured me everything was ok.  It actually arrived at the doctor's office a week last week. 

 

My appt was made for 1/21, good because it was a night off and I had no clue what to expect.  The only other plans I had for the evening was a UFO (unfinished objects) with some quilting friends. 

 

Yesterday 1/21 was my appointment.  There was a slight glitch with the botox they received... it wasn't what they normally receive and appeared to be empty and they almost sent me home. After several calls they got it cleared up & only had to mix it with saline.  We were ready to go. 

 

I was sent into a back room with a machine and what appeared to be the syringes.  The machine was one with electrodes attached.  The doctor indicated it was to make certain that the injections were going into the right places (i.e., the muscle).  It didn't help... perhaps it did that I did go in with an active migraine.  The injection was quite painful, with additional pain referring into the eye socket and jaw.  He said that was pretty normal due to how tight the muscle was.  Injecting the right side was not nearly so painful.  He likes doing both sides so that there is no significant distortion to the face.  He also checked the back of the neck and decided since those muscles were really really tight to inject them.  They were painful, but not nearly so bad either.  Everyone has a different definition of pain.  There was some local pain (sharpness) at the injection site of my left temple, but mostly it was a feeling of uncomfortable pressure.

 

He said the pain should dissipate in 20 minutes to an hour.  I sat in the waiting room about 20 minutes and I could feel the pressure lessening. 

 

I did sit in the office until some of it wore off, maybe 20-30 minutes.  As I was driving home, things kept improving. 

 

I was told that it could be as much as up to a week before I actually notice changes in the migraines.  I go back in 6 weeks.  In the meantime, I need to maintain my headache diary. 

 

Direct contact with the injection sites is tender, but I do believe I am noticing something.  The migraine this morning is not nearly as intense and perhaps feels "duller" than normal.  Actual results or the placebo effect? we'll just have to wait and see. 

Orphenadrine (Norflex)
Nancy Harris Bonk, Health Guide
1/22/11 4:53pm

Thanks, Chris - I will look forward to you updates!  

1/24/11 3:49pm

The migraines I experienced over the weekend were somewhat different than the norm for me.  I was still able to function a bit, but they were sort of diffuse... going to the areas that became sensitive with the injection like around the eye socket to down around the jaw line.  The good thing, each experience was becoming less and less painful.  My last migraine so far today lasted a couple of hours just before I left work at 7:15.  My head is also seeming slightly clearer as is my mood.  I am praying everything continues to head in this direction. 

Nancy Harris Bonk, Health Guide
1/26/11 4:57pm

Good to hear!

1/28/11 3:35pm

I hadn't really paid much attention since I work nights, but this past week I have been downright fatigued, including falling asleep in public places (i.e., Starbucks)... and worst of all fighting dozing at work.  I have made a call into the doctor who did the botox injections and left a message.  Hopefully this is just a minor glitch.  We will see how this weekend will go since I have off. 

1/27/11 6:01pm

I had botox for the first time to treat migraine pain. My insurance approved it with My Doctor documenting that all therapies had failed in the past.

I received botox on 1/05/11

I have a high pain threshold and did not feel the injections that went into temple and forehead area. My Neurologist used bigger needles to inject botox in back of head, neck and shoulder. I did feel the injections that were put in my head and shoulders but it felt like bee stings. It took about two weeks to notice a difference but then I was diagnosed with Pneumonia and started having severe migraine pain related to my illness. So, I am hoping to see a reduction now that I am feeling better.

 

1/28/11 7:49am

Danielle,

Thanks for relating your experience.  I certainly hope you recover from your pneumonia quickly.  

 

The injections into my right temple and my neck were not nearly as painful as my left and it continues to be sensitive.  I have noticed some minor changes, but nothing significant as of yet, but it has only been a week.  I think I mentioned, the pain of the migraines seem a bit more diffuse, like where I felt the pain during the injection (i.e., the eye socket & my jaw).  I do seem to respond a whole lot better to heat than I did prior... so at home when I feel one coming on, it's straight to a heating pad.  

 

One thing that has definitely changed is that I do not feel much of the fog that always came with a migraine.  I also do not feel any numbness like I thought I would with the muscle being paralyzed.  

 

Good luck with your treatment and your healing from your pneumonia.  

Chris

2/ 7/11 3:39am

It's now been a full 2 weeks since my injections.  I have noticed "some" improvement, though it's been a bit limited.  The intensity has reduced for most of them.  I have been able to go up to 3 days so far with no migraine.  But when I get one, it's like getting kicked in the head.  I also seem to be able to identify some of the triggers easier. 

 

This may be concurrent with some other issues (vitamin deficiencies), I feel far more fatigued than usual. 

 

I thought when areas are "paralyzed" like botox is supposed to do, that I would feel numbness.  I have not experienced that as yet.

 

I was migraine-free 3 days last week, then hit on Thursday.  Then I was free Friday, Saturday and most of Sunday until 8 pm.

 

It's most definitely important to count the small steps forward and to remember that this is all a process which takes some time.  I remain hopeful.

2/ 7/11 9:29am

Fighting with the insurance company is a real inconvenience but do not give up. That is exactly what they want you to do.

 

After about 5 years of going back and forth with them I decided to show them some kindness. Found out that I could get my botox directly from the prescription drug program mail service that we had and at a very much lower price than what we were paying the neurologist office.

 

I place an order for the botox about 5 days before my scheduled injection date. Since botox has a very short shelf life it can not be ordered any sooner than that. Everything comes in a very secure iced container directly to the neurologist office so I am ready to go when I get there.

 

Make sure the person that injects the needle into your forehead uses the finest needle available. Less pain and bruising. 

 

2/ 7/11 11:38am

Marlene,

It only took about 3 months to get the approval for me.  I do need to go with a specific mail-order pharmacy for any future orders, but am approved for the year. 

 

One of the goof-ups was that the approval came just at the end of the year, so the insurance claimed it was expiring... which it did not.  So, everything was put off by another 2 weeks. 

2/ 7/11 12:40pm

That remind me, and maybe you are already aware of it, the FDA finally approved Botox for migraines. Hopefully, the insurance companies won't be such a hassel now.

 

Cool

 

2/26/11 10:33am

Something seems to be working. Laughing It's not perfect, but I am now up to about 4 days between migraines and they also seem to be far less debilitating.  I see the neuro who did the botox injections on Wednesday to see if this is a positive sign.  I think it is.  

7/16/11 1:37am

This next week I am supposed to go in for my 3rd series of injections.  This past month I have had only 1 significant migraine attack.  I've had some minor ones, but they have lasted only an hour or two.  For me this is phenomenal.  I was having attacks daily, if they weren't just continuations from previous days.  In April, the treatment wore off only about 4 days before the next set of injections. It took another month to get them back down to manageable levels again.

 

I was probably one of the biggest skeptics when it came to botox.  I'm now a believer. 

Anonymous
Jeanne
12/ 1/11 1:22pm

I received my first Botox injections 8 days ago but still keep getting migraines, I hope they get less in another week cause I have been getting them everyday and my doctor said ii would help in 1 week. 

12/ 2/11 5:09pm

You must remember that botox is not a cure, but a treatment.  It takes a while for it to work and I'm sure everyone is different.  I could feel the severity decrease almost on a daily basis.  My first injection was in January and it was March when I actually had some pain-free days.

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By Chris Z— Last Modified: 12/02/11, First Published: 01/22/11