Monday, February 13, 2012

RECLAIMING MY BRAIN

I am encouraged by Teri's SharePost.  Many of my friends on Facebook are claiming that 2009 is the year!  2008 has personally been very difficult for me.  I have had migraines for nearly 30 years, but this year they have gone out of control.  It is only coming toward the end of the year that I am finding some resolve with a new medication that surprisingly was not intended to be prescribed for my migraines.  Several new diagnoses have come about including 2 genetic disorders with 3 very naughty genes that have contributed to my headaches and potentially to other complications including at least one TIA and a new diagnosis of nonamnestic mild cognitive impairment.  These are all things I will need to learn how to accept as well as the potential for future memory decline.  It is showing in difficulty in learning new things.  However, I am not looking to the negative in this coming new year, but to the positive in that I am on a very personal campaign to RECLAIM MY BRAIN from all that has been attacking it this past year.  The Namenda has helped in many many ways.  I am seeing much more clearly, brighter, and the headaches are not nearly as severe.  Yes, there are some really bad days, but one bad day is better than seven in a row.  I am attempting to learn a new computer program as well as be reassigned a new position so I can earn the rest of my retirement benefits. 

 

I am happy to have found a place like My Migraine Connection to learn about other options and to see if I was on the right track!

 

Have a happy, less painful and prosperous 2009 everyone!

 

Chris

1/ 1/09 11:50am

Hello, and welcome to MyMigraineConnection.com!

 

I'm so glad you found our site and are enjoying Teri's SharePosts. She has so much knowledge and experience to share with us.

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

1/ 3/09 3:56pm

Chris,

I'm so glad my SharePoste encouraged you.Smile

 

It's beyond difficult when Migraines go out of control, especially when you have other health issues complicating things.

 

It's great to see you report that the Namenda is helping. Here's hoping that continues!

 

On those bad days, come visit us here or on the forum. We're always around to support and encourage each other.

 

Keep us posted as you "Reclaim your brain?"

 

Happy New Year!

Teri

1/ 3/09 7:56pm

I want to remind anyone reading this that this post is my experience only. 

 

A month ago, I could hardly talk with my new diagnosis of mild cognitive impairment.  It was a very frustrating visit with my neurologist and myself.  Having worked with elderly for the past several years and discussing their cognitive issues with them and their families it was very difficult to have that potential diagnosis affect me.  It is not so difficult to give up working in my position due to the work environment. 

 

It is difficult that the migraines are merely a symptom of the greater issue.  I am no longer taking Topamax and will be at least a month without anything except the Namenda and something for pain when I do have a headache.  I have had no negative side effects until I did get to the full dose.  With that was some muscle tightness, but that dissipated after a few days. 

 

Benefits I have observed.  I am not certain that anything is improving memory-wise, but the fog has lifted, which is hard to explain.  Within the first week of starting the Namenda I noticed a reduction of the severity of the headaches and as the dose increased, they even went away.  My functioning has been so much better.  I feel brighter, sharper and not weighed down by the pain in my head.  Friends have said that my speech is less pressured and more spontaneous.  This is very good.  I was having a lot of difficulty with word-finding even a month ago; this has been a problem for many years when headaches were really bad.  Some of my critical-thinking skills appear to be back as well. 

 

I did find out that my Neuro currently does NOT use the ICHD-II for diagnosing headaches.  I provided him the site for the manual, and he thanked me.  Previously when Teri had given me the link to the Namenda information I had also provided him with it and it appears he has followed up with checking out other resources.  When he started me on the Namenda he did not believe it would help with the headaches.  My visit with him yesterday was a very good one and I feel we are on the right track.  We also discussed reducing the amount of added glutamate in the diet, since it cannot be totally eliminated.  So, I will be eliminating the more highly processed foods that I have been using.  While he does not specialize in migraine disease itself, his primary area is in Stroke, TIAS and vascular-type dementias.  Since this is where the genetics have placed me at very high risk I feel comfortable in his care.  Although, he does need a little help in the compassion department when I get too emotional.  Foot in mouth