they have labeled me a "drug seeker"... thought the ER was there to help

arnsmom Community Member April 29, 2008
  • Since I had my first migraine April 1st....I have been in the ER several times awaiting my upcoming appt with my neuro doc. I have a migraine care plan from my doc....but that seemed to only make matters worse the last time I had to go to the ER. They have asked me not to come back. I dont have any history of anything like this with them until present. I am very frustrated. My doc has me on meds....but its finding the right ones that work thats hard. Until then...I get sharp pains so badly that it sends me to my knees. My eyesight goes blurry, tingling in my arms.....its the most horrible thing that has ever happened to me. I realize that at the ER they cannot work magic....but I wish they could understand that even if what they give me only offers a night without pain....its worth it. I know that the headaches will keep coming....but I'm afraid and I dont know where to go when it happens.

54 Comments
  • Anonymous
    t
    Aug. 13, 2009

    try acupuncture and Chinese herbal medicine from a Licensed Acupuncturits (L.Ac.) or Acupuncture Physician (AP), titiles very by state.

    Very effective, natural, safe, few to no side effects and can create lasting change so you don't have to be on drugs the rest of your life.

     

     

  • MyHeadHurts
    Oct. 23, 2008

    It's very sad, and unfortunate that the one place you would expect to get help from [hospital], you can't. Many of us, including myself have been told not to come back. We've been accused of drug seeking, when all we want is pain relief and overall a good nights sleep.

     

    One thing that sort of works is Reglan. It decreases the headache and any N/V. What...

    RHMLucky777

    Read More

    It's very sad, and unfortunate that the one place you would expect to get help from [hospital], you can't. Many of us, including myself have been told not to come back. We've been accused of drug seeking, when all we want is pain relief and overall a good nights sleep.

     

    One thing that sort of works is Reglan. It decreases the headache and any N/V. What are you taking for your epilepsy? Many epilepsy drugs also have migraine control as an off-label use. I would push your neurologist for an urgent appt [obviously this is an older post and hopefully everything has resolved or gotten ebtter], and if s/he doesnt help you--look elsewhere! Also, what did the MRI show?

    • Anonymous
      Anonymous
      Apr. 07, 2009

      What is extremely hard is when you have been addicted in the past and then gotten totally clean for years.  Then all of a sudden out of the blue, you develop these headaches.  All the people remember is your past and you get no sympathy or treatment except "tough it out".  Since getting clean, if I even have to go for a sore throat, I do not...

      RHMLucky777

      Read More

      What is extremely hard is when you have been addicted in the past and then gotten totally clean for years.  Then all of a sudden out of the blue, you develop these headaches.  All the people remember is your past and you get no sympathy or treatment except "tough it out".  Since getting clean, if I even have to go for a sore throat, I do not go without my husband going with me.  He is most definately NOT an enabler and the doctors know that.  Sometimes it helps, but others times it doesn't.  Recently with these migraines, I have been forced to lay in a dark room with a pan beside my bed and cry because I am hurting so bad.  Sometimes it passes in a few hours, sometimes a few days.  I guess it is the consequences of my actions. Frown

  • irishinks
    Sep. 25, 2008

    As if we don't suffer enough, the hospitals make it worse.  I was just in again after 30 years of migraines and a stroke attributed to them and still while I am out of it on pain meds nurses make little comments about drug seekers.  I wish I had been able to write down their names because my neurologist was very angry when I told him and wanted to...

    RHMLucky777

    Read More

    As if we don't suffer enough, the hospitals make it worse.  I was just in again after 30 years of migraines and a stroke attributed to them and still while I am out of it on pain meds nurses make little comments about drug seekers.  I wish I had been able to write down their names because my neurologist was very angry when I told him and wanted to know that with my history I needed to be there.  I am much less likely to go back to the hospital even though I am not supposed to let a migraine go past a few days and if I have tingling anythign approaching a stroke sign I am supposed ot go.  I could easily be disable/die from a stroke because I don't want to go the hospital.   It is obscene and I am so disgusted by it I could scream.  I hear you. 

    Just so as not to alarm you too much, I am lucky that my stroke did not cause permanent damage except to a small blood vessel in my brain.  The typical stroke symptoms of one sided droooping, trouble speakign etc completely resolved although they say I am more likely to get another.  I hope you can get some help. 

  • joacs45
    Jun. 23, 2008

    my daughter is a vet and it is not only the civilian ers that treat you like crap it is the va also   she has been in and out of both sectors for the past six months and no one can seem to do anything, just tell her she is going to have to get her drugs elsewhere, if she just wanted drugs it is easier at the pain mgt centers for heavens sake ...

    RHMLucky777

    Read More

    my daughter is a vet and it is not only the civilian ers that treat you like crap it is the va also   she has been in and out of both sectors for the past six months and no one can seem to do anything, just tell her she is going to have to get her drugs elsewhere, if she just wanted drugs it is easier at the pain mgt centers for heavens sake  i say everyone that treats you like crap should have just one headache and see how they like it.

  • ERFLTRN
    Jun. 22, 2008

    An ER can not refuse to see you unless it is a private hospital. Public and county hospitals can not do that.  I have been an ER nurse for 17 years. The problem you may face however is that the doctor may not want to give you what it takes to ease your pain.  If that happens ask for the charge nurse or patient advocate. That is the problem I have...

    RHMLucky777

    Read More

    An ER can not refuse to see you unless it is a private hospital. Public and county hospitals can not do that.  I have been an ER nurse for 17 years. The problem you may face however is that the doctor may not want to give you what it takes to ease your pain.  If that happens ask for the charge nurse or patient advocate. That is the problem I have had recently. Take care

    Kathy

  • babybluez07
    Jun. 17, 2008

    I had the same thing happen to me in May and I filed a report with my doctor who usually doesn't contact the hospital to advise them I am a chronic migraine sufferer and I filed a complaint with the patients advocate at the ER room. She, the patient advocate, was very upset I was treated so bad and my doctor was furious. I am one of those that will wait until...

    RHMLucky777

    Read More

    I had the same thing happen to me in May and I filed a report with my doctor who usually doesn't contact the hospital to advise them I am a chronic migraine sufferer and I filed a complaint with the patients advocate at the ER room. She, the patient advocate, was very upset I was treated so bad and my doctor was furious. I am one of those that will wait until the last minute or possible moment to get a shot cuz I hate the affect it has on me as a person. So when they called they firmly informed the ER room to add comments to my file within their system that I am a chronic migriaine sufferer and I should be treated with respect and not as a drug seeker. I don't think ppl realize the devastation we go through when we have a migraine. They think again it is a just a headache. I recently did a report for speech class on migraines and you would be surprised how many of my classmates thought "take a pill it will go away" and when I showed them several different types that can trigger one and the triggers themselves they were shocked. I was asked what do you live on as far as food. I said I am very very careful most of the time but sometimes I may not care or want it no matter what or I don't know what it is in the food that I eat at that time. the biggest trigger for me is the weather change so right now I have another migraine and here I am at work, plugging away. but I am off Wed and will probably go for the other part of my migraine treatments, my neck specialist. So I wish you luck with this and hope things go better for you...I bid ado for now.

    Terri

     

  • lizzie
    Jun. 15, 2008

    There was a point where I was in the ER every week, sometime 2 nights in a row. I lived in Phoenix and I checked around until I found an ER that didn't treat me like an addict and didn't put me at the bottom of the priority list so I never waited more than an hour. That was a huge relief at the time.

     

    Then I moved to WI. My primary care physcian wrote...

    RHMLucky777

    Read More

    There was a point where I was in the ER every week, sometime 2 nights in a row. I lived in Phoenix and I checked around until I found an ER that didn't treat me like an addict and didn't put me at the bottom of the priority list so I never waited more than an hour. That was a huge relief at the time.

     

    Then I moved to WI. My primary care physcian wrote a letter to the head of the local ER and gave me a copy to take with me. It stated that I had this disease, that I had had it for 12 years (at that point), the I complied with my medicine regimen and that I never asked for more medication ahead of time and what worked best for me when I had to go to the ER. Pulling that letter out of my wallet and handing it to the nurse made a big difference in how they treated me. Maybe your doctor can do something similar.

     

    I now live in a small town in Az. For whatever reason my current doctor wouldn't write a letter to the ER (which mostly has to do with politics between the ER and local physicians. As soon as my husband saw that I was pushed aside for 3 hours, on the 3rd time I was there (the first time they had told me they were too bus and there was a 5 hour wait and perhaps it would be best I go home) he requested a supervisor, made a complaint and that person then made sure I was treated appropriately thereafter. At that point I was down to only going to the ER about every 3 months.

     

    Perhaps, one of the above would assist you in your situation. I highly recommend the letter approach. I think the ER then feels like if they're criticized for the medication use they can then point a finger back to your primary doctor. Especially since, for me, by the time I go to an ER I am in hell and they have to hook me up to fluids and usually given me at least 3 shots IV of morphine. I never ask for demerol as that is one of their flags. One of my problems is it takes a whole lot to break it at that point and it doesn't work unless they give me each shot as soon as it is safe. When the is hours of delay in betwen each shot, then it doesn't work, another issue we raised with the supervisor.

     

    Finally, one you find an Er that treats you right, always go that ER. When their computers show you've been to different ERs instead of always going to the same one, that also raised red flags.

     

    Good luck.

    • Anonymous
      arnsmom
      Jun. 16, 2008

      I have a migraine care plan from my neuro doc....they still treat me poorly. I was told that they do not have to honor that and if every migraine patient had one of those they would have a line for narcotics wrapped around the block.

       

      I have been accused to my face of being a drug addict and told that if I come to this particular hospital for any type...

      RHMLucky777

      Read More

      I have a migraine care plan from my neuro doc....they still treat me poorly. I was told that they do not have to honor that and if every migraine patient had one of those they would have a line for narcotics wrapped around the block.

       

      I have been accused to my face of being a drug addict and told that if I come to this particular hospital for any type of injury they will not treat my pain. I went in for a broken ankle and was treated terribly.

       

      Believe me...I have taken the steps and jumped through the hoops...it has done no good. I am in the process of hiring an attorney to see what legal recourse I can take.

       

      Thanks for the concern

  • bimini colt
    Jun. 09, 2008

    I am so so sorry Arnsmom.

    I was crying reading your post. I'll agree with the one comment that states "nobody knows your pain unless they are a migraineur" Its absolutely true.

     

    I am in Canada and used to live in Kingston Ontario. The ER there became my second home when my migraines where totally out of control. And because of my knowledge of migraines...

    RHMLucky777

    Read More

    I am so so sorry Arnsmom.

    I was crying reading your post. I'll agree with the one comment that states "nobody knows your pain unless they are a migraineur" Its absolutely true.

     

    I am in Canada and used to live in Kingston Ontario. The ER there became my second home when my migraines where totally out of control. And because of my knowledge of migraines and various meds for them, they said I was a drug seeker... tons of times.

    They would say "what works for you?" and when I'd respond, then they accused of me of wanting a high. I never even asked for narcotics! I would, in those days , ask for either intramuscular toradol or intramuscular decadron. A high from those meds!? I think not!

     

    That ER is one of the worst I've seen. I have a bad reputation there as a "faker" and a "hypochondriac" and a "drug seeker". I have been told to my face that it's "just a headache, take advil" and this from medical professionals?

     

    I started going to the smaller hospital 45 km away when I got an ER protocol from Dr Young. They are much better about it, but I have had the occasional one who says "oh, a headache eh?"

     

    When I changed provinces, I was happy to find that the local ER is very "migraine friendly". The triage nurses as a general rule, put me in the most urgent priority when I tell them its been 3 or 4 days non stop. Once i go in for treatment, it's very quick... my protocol is in my chart, and they come in immediately with the meds. With them, they give me the chlorpromazine IV push, and if no full relief, then magnesium sulfate, slow drip IV.

     

    1 time, they told me I was drug seeking in that hospital. it was a nurse who said it, prior to the doc coming in. I wrote her name down on my trusty pad of paper, and alerted the doc when he came in. She was given a very stern verbal reprimand, right in front of me, and was made to apologize to me for failing to see status migrainous as an emergency that needed to be treated with the medications I had asked for!

     

    While I'm at it, I'll also voice my disagreement *like many others* about that comment that you must treat the medical staff with utmost respect. When I am treated like that, I stand up to them. I am my own best advocate. Even when I tried my best to be nice and pleasant, the Kingston hospital treated me like a drug seeker, hypochondriac and faker. So I told myself early on that I would not let them walk all over me like that. I have defended my case time and again to those doctors and wouldnt have second thoughts of doing it again should the need arise.

     

    So on a finishing note, I wanted to say that you, and all the others who share our plight are in my thoughts and you have my sympathies.

     

    gentle hugs

    Bim

     

  • PJ
    PJ
    Jun. 07, 2008

    I have what they call a chronic daily migraine (headache) since January, 2005. I stopped going to the ER because they told me there is no such diagnosis and think you are nuts. They even wrote a 3 page letter to my neurologist telling him how he is missing something seriously wrong neurologically. I've actually gone to several headache specialist and finally...

    RHMLucky777

    Read More

    I have what they call a chronic daily migraine (headache) since January, 2005. I stopped going to the ER because they told me there is no such diagnosis and think you are nuts. They even wrote a 3 page letter to my neurologist telling him how he is missing something seriously wrong neurologically. I've actually gone to several headache specialist and finally found one that helped me get them under control for the most part. Although they are still daily, the severity is more manageable, I went back to work over a year ago after 2 years of disability, so for that I am thankful. Don't get too discouraged. It does take a while to find what works for YOU.

  • Diana Lee
    Jun. 06, 2008

    In addition to getting some rescue meds for at home use, I would make an appointment with the hospital's patient liason to discuss how you have been treated. They are there to mediate disputes between patients and the hospital and may be able to help made headway so that you feel as though you can show up there when you need to and receive the kind of care...

    RHMLucky777

    Read More

    In addition to getting some rescue meds for at home use, I would make an appointment with the hospital's patient liason to discuss how you have been treated. They are there to mediate disputes between patients and the hospital and may be able to help made headway so that you feel as though you can show up there when you need to and receive the kind of care you are entitled to.


    I'm so sorry you've been treated this way. It's very demoralizing.

     

    Diana

  • Anonymous
    Phyllis
    May. 23, 2008

    Check w/ur neuro for emergency infusion therapy.  You get meds thru IV and w/in 2 hrs. you feel much better.  This helped me 2x already.  Good luck.  littlelulu

  • icgrnis
    May. 20, 2008

    We have one ER on this mountain and I am on the bad side of most of the ER Docs, for  frequency.  It doesn't matter if I'm in cardiac arrythmia, dehydrated and vomiting, can't stand on my own, and have lost 10lbs. in one week.  I am not emergent.

    My pain physician came up with a compounded Rx Hydormorphone 3mg. rectal suppository.  Tigan...

    RHMLucky777

    Read More

    We have one ER on this mountain and I am on the bad side of most of the ER Docs, for  frequency.  It doesn't matter if I'm in cardiac arrythmia, dehydrated and vomiting, can't stand on my own, and have lost 10lbs. in one week.  I am not emergent.

    My pain physician came up with a compounded Rx Hydormorphone 3mg. rectal suppository.  Tigan was used with it, but it's off the market.  I'm now at the mercy of Ins. & Dr. for Rx Zofran Melt a ways at $25.00/pill.  I know it sounds horrid but the alternative is worse.  And it keeps me far away from the people who are quick to judge.

    • Anonymous
      Jill Lindberg
      May. 21, 2008

      Here in Minneapolis they're no longer using narcotics to treat migraines.  They say yes it's a quick fix, but it doesn't solve the underlining problem. I waited 4 hours to get treated to tell me that they wouldn't give me what my neurologist okayed for me to have.  Which was Zofran, Nubain and Decadron.  I got into an arguement with the...

      RHMLucky777

      Read More

      Here in Minneapolis they're no longer using narcotics to treat migraines.  They say yes it's a quick fix, but it doesn't solve the underlining problem. I waited 4 hours to get treated to tell me that they wouldn't give me what my neurologist okayed for me to have.  Which was Zofran, Nubain and Decadron.  I got into an arguement with the ER doctor.  He's telling me I have rebound headaches.  I haven't taken anything for my mirgraines because I am allergic to most of it.  I left that night AMA.

    • icgrnis
      May. 21, 2008

      They are trying this is California & Arizona also.  Getting the lecture about rebound again, I stated that Tylenol could also cause a rebound.  Didn't go over well.   I too am allergic or have adverse reactions to the meds, and not just mild symptoms either.  Since I don't fall in this cookie cutter Rx category, most of the Dr.s...

      RHMLucky777

      Read More

      They are trying this is California & Arizona also.  Getting the lecture about rebound again, I stated that Tylenol could also cause a rebound.  Didn't go over well.   I too am allergic or have adverse reactions to the meds, and not just mild symptoms either.  Since I don't fall in this cookie cutter Rx category, most of the Dr.s have written me off.  Some of the ER docs also ignore the orders my regular physician writes and approves.  I can't get any continuity of care, which is frustrating and in all likelihood prolonging my cluster.

  • Catlady
    May. 20, 2008

    the doctors and hospitals are all taking that line of defense.  My best friend has arthritis in her back and her doctor told her since you can't take the medications for anti-inflammatory..then you will just have to take aleve/advil.  She hit the ceiling...but the same happens to her husband andmyself.

    If somebody wants drugs..they could just go and...

    RHMLucky777

    Read More

    the doctors and hospitals are all taking that line of defense.  My best friend has arthritis in her back and her doctor told her since you can't take the medications for anti-inflammatory..then you will just have to take aleve/advil.  She hit the ceiling...but the same happens to her husband andmyself.

    If somebody wants drugs..they could just go and get them...duh....what part don't they understand!!

    Hang in there and let us know how it goes..

    quit eating cheddar cheese anything..no parmesean, etc..aged cheeses can cause it too.

    eat dark chocolate..it sometimes helps and believe it or not..a cup of caffeinated coffee...

    I don't know how old you are but it can be PMS migraines(hormone based)  I take amerge but it is very expensive but who cares..it works.....

    Let us know how you are doing.....

     

    PS  i hope you are a female from what I suggested above about the pms..didn't mean to offend anyone..

  • Solta
    May. 15, 2008

    I have been warned about the drug seeker tracking laws in Ohio.  Here they are tracking back to 2004.  if you get controlled substances from 3 or more docs and/or multiple pharmacies they will flag you when you go in to fill a script.  They will hold you for an hour or more while trying to pick up the meds.  While that is happening calls...

    RHMLucky777

    Read More

    I have been warned about the drug seeker tracking laws in Ohio.  Here they are tracking back to 2004.  if you get controlled substances from 3 or more docs and/or multiple pharmacies they will flag you when you go in to fill a script.  They will hold you for an hour or more while trying to pick up the meds.  While that is happening calls are being made to see if they should let you go or call the police with charges of medication diversion.  Also a list of EVERY script back to 2004 will go to the doctor.  S/he then has to decide whether to continue your medication or not.  This is scary.  You might Doc shop not for meds but in order to find a competent doctor!!!  Also I think about how other docs call my stuff in from the practice when mine isn't there or how when I hd my tonsils out that was a different doc.  I am glad my new headache doc warned me of that when I asked him to manage my meds... but still scary!  Good luck with trying to get medication to help you out.

    • Snobrdgrl321
      Jul. 30, 2008

      Solta or anyone:

       

      So how do you find out about your local state's drug seeker tracking laws?

      And how do I know what of my meds are "controlled" substances?

       

      I see my PCP, the Neurologist, the urgent care Doc when my doc not avaliable and the dentist! ($14,000 in work)

       

      I am really scared now!!!

       

      Snobrdgrl321

    • Solta
      Jul. 30, 2008

      I would try blatantly asking your pharmacist or doctor.  Another person to try would be your nurse manager if you have one through insurance.  (I just got one and she was awesome, a great listener and able to hook me up if I need help).  My doctor told me my stuff.  So, that is where I would try.  I have searched online and found NOTHING...

      RHMLucky777

      Read More

      I would try blatantly asking your pharmacist or doctor.  Another person to try would be your nurse manager if you have one through insurance.  (I just got one and she was awesome, a great listener and able to hook me up if I need help).  My doctor told me my stuff.  So, that is where I would try.  I have searched online and found NOTHING about it.  Guessing they don't want it advertised.

  • Anonymous
    PENNY
    May. 11, 2008

    I HAVE HAD MIGRAINES ALL MY LIFE BUT ABOUT 8 MONTHS AGO I WOULD WAKE EVERY NIGHT WITH A HEAD ACHE SO BAD MY LEFT EYE STARTED TO SWELL OUT OF MY HEAD HAVING NO IDEAL WERE TO START I WENT TO THE EYE DR. AND SHE DID AND EXAM PACKED MY EYE TO RELEAVE THE PREASURE AND TOOK MY BLOOD PRESSURE. IT WAS UP A LITTLE SO SHE TOLD ME TO GO TO ANOTHER...

    RHMLucky777

    Read More

    I HAVE HAD MIGRAINES ALL MY LIFE BUT ABOUT 8 MONTHS AGO I WOULD WAKE EVERY NIGHT WITH A HEAD ACHE SO BAD MY LEFT EYE STARTED TO SWELL OUT OF MY HEAD HAVING NO IDEAL WERE TO START I WENT TO THE EYE DR. AND SHE DID AND EXAM PACKED MY EYE TO RELEAVE THE PREASURE AND TOOK MY BLOOD PRESSURE. IT WAS UP A LITTLE SO SHE TOLD ME TO GO TO ANOTHER DR. TO GET THIS TOOK CARE OF. I DID HE SCANNED MY BRAIN FOUND NOTHING WRONG THEN PUT ME ON AND OLDER MEDICATION CALLED VARAPIMIL THAT WAS SEPT. 2007 THE LAST TIME I HAD A MIGRAINE OR CLUSTER HEADACHE IS WHAT HE CALLED THEM THEY HAPPEN AT THE SAME TIME EVERY DAY AND LAST FOR ABOUT 45MIN TO 1 HR. AND CAN GO ON FOR WEEKS STOP FOR A LITTLE AND THEN START AGAIN WITHOUT WARNING OVER AND OVER AND OVER MAYBE THIS MED. WOULD HELP YOU. 

  • Cari
    May. 06, 2008

    Personally, I think this is pathetic and there is no excuse for the behavior of the ER staff.  It is bad enough we are not always taken seriously by people too ignorant to understand migraines even though we have tried to educate them, but then to be treated like this in ER, makes me furious.  I asked my neurologist for a 'rescue' medicine...

    RHMLucky777

    Read More

    Personally, I think this is pathetic and there is no excuse for the behavior of the ER staff.  It is bad enough we are not always taken seriously by people too ignorant to understand migraines even though we have tried to educate them, but then to be treated like this in ER, makes me furious.  I asked my neurologist for a 'rescue' medicine since the preventive medicines have not worked for me or if they gave me some small relief in the severity of the pain, the other side effects were worse or almost as bad.  She ended up giving me a prescription for a different abort medication to see if this will work better then the Imitrex tablets.   We will see as I go back to see her in 3 months and if I still do not have the relief I require, I will insist or ask my family physican to refer me to someone else since he agreed I should have something. The only other medication I take to ease the pain somewhat is Advil and then lay down and try to sleep if the pain is not overbearing (although can not sleep at work or lay down all the time).

     

    I did not read all the comments but you obviously have my understanding of the situation and wish you luck.

     

  • Anonymous
    Dawn Adams
    May. 05, 2008

    I'm so sorry for all the pain and suffering you're going through. I know all too well how it feels to be in absolutely excruciating pain, and all the other symptoms that go with migraines. I got migraines from the time I was 10 years old all the way up to when I was 42 and had a complete hysterectomy. Since my hysterectomy in February of 2007, I have had no...

    RHMLucky777

    Read More

    I'm so sorry for all the pain and suffering you're going through. I know all too well how it feels to be in absolutely excruciating pain, and all the other symptoms that go with migraines. I got migraines from the time I was 10 years old all the way up to when I was 42 and had a complete hysterectomy. Since my hysterectomy in February of 2007, I have had no migraines, so I guess with me it was hormonal. With the hormones gone, so are my headaches. I will not go on HRT. I'm taking supplements to deal with the hot flashes and stuff, and it's not a big deal. Something to maybe check out.

    • arnsmom
      May. 05, 2008

      Thats awesome that your migraines are gone. I actually had a full hysterectomy in 2000. I have been on HRT since that time so they have already ruled out hormones....but thank you so much for sharing with me.

       

      ~KellieWink

    • Anonymous
      Kristin
      May. 05, 2008

      I just had a hysto last year.....They have been worse ever since......WHAT THE?!?!?!?!?! My ovaries are still there.....My hormones are apparantly fine...LOL

  • Anonymous
    Kristin
    May. 03, 2008

    This just happened to me the other night. My husband peeled me off the bathroom floor to drive me to the er, while our kids were sleeping, dropped me off, raced home and the doctor rushed in, told me he wasn't giving me any narcotics and was incredibly rude.  I was in such horrible pain and vomiting and I called my husband, he called a neighbor over to...

    RHMLucky777

    Read More

    This just happened to me the other night. My husband peeled me off the bathroom floor to drive me to the er, while our kids were sleeping, dropped me off, raced home and the doctor rushed in, told me he wasn't giving me any narcotics and was incredibly rude.  I was in such horrible pain and vomiting and I called my husband, he called a neighbor over to watch the kids......he came and talked to the doctor, who finally gave in and gave me demerol. I am still just sick with frustration about the whole thing. I am going to go in and ask to see my hospital records.  I may also file a complaint against the doctor.  I will also have my GP write a letter with my diagnosis to put in my hospital file so there is no mistaking me for a drug addict in the future!!!!!!!! TOTALLY RIDICULOUS>>>>>>>>And that ER visit cost $1500??

     

    Prayers with all of you

    K in Bay City

    • arnsmom
      May. 03, 2008

      I am so sorry that you went through that. It is rediculous. I have a migraine care plan from my neuro doc that tells them exactly what he wants them to give me....and they still treat me like I'm a druggy looking for my next fix.....I am so frustrated with these doctors.

       

      I hope that you are doing better. I on the other hand....feel my head throbbing...

      RHMLucky777

      Read More

      I am so sorry that you went through that. It is rediculous. I have a migraine care plan from my neuro doc that tells them exactly what he wants them to give me....and they still treat me like I'm a druggy looking for my next fix.....I am so frustrated with these doctors.

       

      I hope that you are doing better. I on the other hand....feel my head throbbing today and so far, nothing is working to take it away. It could be and interesting eve for me.

       

      Take care and thanks for sharing,

       

      ~KellieSmile

    • Anonymous
      kristin
      May. 04, 2008

      That is a good idea, I will get a "plan" from my doctor after the weekend.  I have had a headache for 2 days straight now...It is ranging from a 5-8 scale and I have taken so much medicine, I am sick just from that.......I have taken a med break for about 10 hours and am now doing light housework and getting outside (with sunglasses on) in the beautiful...

      RHMLucky777

      Read More

      That is a good idea, I will get a "plan" from my doctor after the weekend.  I have had a headache for 2 days straight now...It is ranging from a 5-8 scale and I have taken so much medicine, I am sick just from that.......I have taken a med break for about 10 hours and am now doing light housework and getting outside (with sunglasses on) in the beautiful weather for some air. When the headache pain gets back to an 8, I will lay down and remedicate......I have to work this week, ya know......UGH. Hope your night went ok last night. This sucks so bad. Frown

  • thedoglady
    May. 03, 2008

    Sorry to hear about the unrelenting migraines.  You didn't mention what meds they are giving you at the ER.  From personal experience, if I overdo ER visits where they pump you up with morhpine and any of the triptans (Imitrix, Relapax, etc.), the chance for getting a rebound or medication overuse headache increases exponentially.

     

    Although...

    RHMLucky777

    Read More

    Sorry to hear about the unrelenting migraines.  You didn't mention what meds they are giving you at the ER.  From personal experience, if I overdo ER visits where they pump you up with morhpine and any of the triptans (Imitrix, Relapax, etc.), the chance for getting a rebound or medication overuse headache increases exponentially.

     

    Although the triptans can work wonders, I found the hard way that if you take more than 2-3 a week, I guarantee you will get more and more severe headaches.  It took me two summers of what I call "migraine storms", a bad migraine almost every day for months, to realise the source of the problem was taking too many triptans.

     

    My rule of thumb is to take only 1-4 triptan medications in a two day period.  Then NO TRIPTANS for the next five days.  This recommedation scared me to death.  But I found that enduring the rebound headache without taking the meds actually started to break the cycle.  I had to use ice, over the counter meds and relaxation exercises, but it worked!  So now I swear by the 2/5 day rule.  Use the meds for 2 days (ON) and five days (OFF).

     

    Also, narcotic medications such as morphine really, in my experience, work for short term use only!  Over the long run, they really offer no long-term relief from migraines. 

     

    I've found the principles for a good migraine management program at a very prestigious headache clinic in Chicago; they are really good pioneers and might help you.  They also make recommendations for doctors or clinics in your area if you contact them directly.

     

    http://www.diamondheadache.com/

     

    Hope this helps; our migraines are a complicated, twisty, frustrating bit of life that literally messes with our heads!  I wish you the best of luck!

     

     

     

     

     

     

  • thedoglady
    May. 03, 2008

    Sorry to hear about the unrelenting migraines.  You didn't mention what meds they are giving you at the ER.  From personal experience, if I overdo ER visits where they pump you up with morhpine and any of the triptans (Imitrix, Relapax, etc.), the chance for getting a rebound or medication overuse headache increases exponentially.

     

    Although...

    RHMLucky777

    Read More

    Sorry to hear about the unrelenting migraines.  You didn't mention what meds they are giving you at the ER.  From personal experience, if I overdo ER visits where they pump you up with morhpine and any of the triptans (Imitrix, Relapax, etc.), the chance for getting a rebound or medication overuse headache increases exponentially.

     

    Although the triptans can work wonders, I found the hard way that if you take more than 2-3 a week, I guarantee you will get more and more severe headaches.  It took me two summers of what I call "migraine storms", a bad migraine almost every day for months, to realise the source of the problem was taking too many triptans.

     

    My rule of thumb is to take only 1-4 triptan medications in a two day period.  Then NO TRIPTANS for the next five days.  This recommedation scared me to death.  But I found that enduring the rebound headache without taking the meds actually started to break the cycle.  I had to use ice, over the counter meds and relaxation exercises, but it worked!  So now I swear by the 2/5 day rule.  Use the meds for 2 days (ON) and five days (OFF).

     

    Also, narcotic medications such as morphine really, in my experience, work for short term use only!  Over the long run, they really offer no long-term relief from migraines. 

     

    I've found the principles for a good migraine management program at a very prestigious headache clinic in Chicago; they are really good pioneers and might help you.  They also make recommendations for doctors or clinics in your area if you contact them directly.

     

    http://www.diamondheadache.com/

     

    Hope this helps; our migraines our a complicated, twisty, frustrating bit of life that literally messes with our heads!  I wish you the best of luck!

     

     

     

     

     

     

  • fhcpa
    May. 02, 2008

    I think that sooner or later every migraineur who goes to the ER will be accused of drug seeking behavior.

     

    My migraine condition is so hard to treat that my neurologist and I have labelled it clinically frustrating.

     

    I've been going to the same ER in my neurologist's hospital for years. No ER attending questioned my condition. That is because of...

    RHMLucky777

    Read More

    I think that sooner or later every migraineur who goes to the ER will be accused of drug seeking behavior.

     

    My migraine condition is so hard to treat that my neurologist and I have labelled it clinically frustrating.

     

    I've been going to the same ER in my neurologist's hospital for years. No ER attending questioned my condition. That is because of my doctor's reputation as being Canada's leading migraine authority. I've  read most of his journal articles on the subject. In addition, I used to work in his hospital.

     

    However, when I moved to another province I was accused of drug seeking behavior by an ER resident. His attending called my hometown neurologist (who is still following me for the condition) who confirmed my condition and shredded the ER resident. I never went back to that ER.

     

    Since then ,I've never been questioned about my condition. Once I'm in the ER, I provide them with a list of non-narcotic cocktails used for status migrainosus (a continuous migraine that persists for >72 hrs) treatment. These include DHE with Reglan or magnesium sulfate with Reglan, Thorazine with Reglan. If these meds fail, then we resort to morphine or dilaudid.

     

    Contact your neurologist and ask for an emergency treatment plan or even better a letter confirming your diagnosis.

     

    Also, try searching for a local migraine support group.

     

    I currently co-chair a support group and found it to beneficial to all of its members. We mutually connect with each other and support each other.

     

    Hope this helps!

     

    Jaime

     

     

     

     

     

  • hopecarolanne
    May. 01, 2008

    Hello my name is Hope and I am new to My Migraine Connection.  I go to the ER very often... so often that I had a doctor accuse me of being a drug addict.  Needless to say I was not very happy.  I feel your pain. 

     

     

    Hope

     

  • Anonymous
    janna
    May. 01, 2008

    You do not say which city you live in.  If you live around Cincinnati-they would not laugh at you.  especially at Good Samaritan Hospital.  Keep up the faith!  I know how disabling these headaches/migraines are.  You will find a Dr.

    • JayDocTC
      May. 01, 2008

      Without knowing the details, it's hard to really know what happened to you in the ER, but if they indeed asked you "not to come back," then that is absolutely unprofessional and is compromising your care. One of the so-called "red flags" for health care professionals for drug-seeking behavior is when the patient asks for specific medications by name, which...

      RHMLucky777

      Read More

      Without knowing the details, it's hard to really know what happened to you in the ER, but if they indeed asked you "not to come back," then that is absolutely unprofessional and is compromising your care. One of the so-called "red flags" for health care professionals for drug-seeking behavior is when the patient asks for specific medications by name, which is absurd in many cases. I am a migraneur and, like many (indeed, most, I would venture) migraneurs, I know the names of the medications I have used and which ones are effective. In addition, I am a medical student and worked in clinical health care before coming to med school, so I know countless medications, dosages, side effects, and so on. I have run into exactly the same response from folks in the ED; they will ask "What usually works for you?" and I can see the change in expression on their faces when I tell them the same thing you said: a liter of saline plus dilaudid and phenergan. For any of you migraneurs out there who run into this, simply be up front with the nurses, residents, physicians, etc.: tell them you understand that they are concerned about drug-seeking behavior, but that you are a migraneur who is actively involved in your treatment and that is why you know the names of the medications.

      Also, I see from your profile that you are 41 years old; anyone with new-onset headaches of this severity needs a comprehensive work-up and evaluation, especially if it occurs at age 41, so definitely don't miss your appointment with the neurologist. One other thing: as a patient, you have the right to see, and amend, if necessary, your medical records. If the staff at the ER has in fact noted in your chart that you are drug-seeking, you have the right to see those records and add your own notes, comments, explanations, etc., and to make corrections if you see something that is in error. Contact the hospital's HIPAA compliance officer and ask to see your records. It's not a bad idea to ask for copies, too.

      Good luck and keep your neuro appointment!

    • arnsmom
      May. 01, 2008

      I want to thank everyone for the advice and concern. I have had my MRI, my neuro doc uped my nortryptaline, and I will have a follow up appt on the 6th. So far....they have tried me on Maxalt, Relpax, Imitex and fiorinal....none have worked. My doc said that he doesnt want to put me on anything else at this time until we get the nortryptaline to a theraputic...

      RHMLucky777

      Read More

      I want to thank everyone for the advice and concern. I have had my MRI, my neuro doc uped my nortryptaline, and I will have a follow up appt on the 6th. So far....they have tried me on Maxalt, Relpax, Imitex and fiorinal....none have worked. My doc said that he doesnt want to put me on anything else at this time until we get the nortryptaline to a theraputic dose. In the meantime, he said to go to the ER when its too much to handle....this is getting really old.

       

      thanks again!Wink

    • Ethans Nanna
      May. 01, 2008

      I really feel for you. Nobody but a fellow migraineur knows your pain.  I had a really bad experience years ago at the ER.  I had had a migraine for 12 - 14 hrs without relief. Horrific pain, nausea, vomiting, dry heaves, crying and dehydration finally sent me to the ER.  And then the ER doctor gave me a field sobriety test and ofcourse...

      RHMLucky777

      Read More

      I really feel for you. Nobody but a fellow migraineur knows your pain.  I had a really bad experience years ago at the ER.  I had had a migraine for 12 - 14 hrs without relief. Horrific pain, nausea, vomiting, dry heaves, crying and dehydration finally sent me to the ER.  And then the ER doctor gave me a field sobriety test and ofcourse I didn't pass it.  They finally did blood tests to confirm I wasn't drunk, all the while my husband was telling them that I had a migraine.  After 2- 3 hrs they finally medicated me.

       

      I have never been treated this horribly.  I pray that this doesn't happen to anyone else.

       

      EthansNana 

    • Anonymous
      Work in the ER
      Feb. 01, 2011

      The "field sobriety check" that they did was likely a comprehensive neurological exam.  That's what should be done.  It was not to see if you were drunk, but to see if you had any neurological deficits which are red flags.

  • MSNP
    May. 01, 2008

    As a health professional, here are my suggestions and thoughts.  First, you HAVE to treat the hospital staff with respect and be kind, even in your terrible pain.  People who work in health care have so many stresses, and if you go in there being demanding and uncooperative, you will be sent out the door as soon as possible. They will not go the extra...

    RHMLucky777

    Read More

    As a health professional, here are my suggestions and thoughts.  First, you HAVE to treat the hospital staff with respect and be kind, even in your terrible pain.  People who work in health care have so many stresses, and if you go in there being demanding and uncooperative, you will be sent out the door as soon as possible. They will not go the extra mile for you.  Make sure that you use the 1-10 rating scale and if the interventions they have offered you are not effective, make sure to rate your pain high.  Yes, the doctors in ER are sensitive to "drug seekers" but there is also pressure to provide adequate pain relief.  If they are sending you out the door with pain at 6 or higher, then there is a problem. Another thing I would suggest, is to call the Neurologists office and kindly tell them how sick you are feeling, how your meds are not working, you can't work....whatever is TRUE, and ask if they can work you into their schedule earlier.  Use kindness and integrity, and I wish you the best.   Also, remember that many of us have tried numerous meds and have struggled with headaches for 20+ years.  This can be a chronic problem.

    • Anonymous
      SkooterSnowy
      May. 01, 2008

      As a life long patient, I take offense to your comment.  "You HAVE" to treat the staff with respect and be kind...", and what does the staff HAVE to do? 

      I have had so many experiences with so called 'medical professionals' and I ALWAYS start out kind and respectful, no matter what distress I am in (I have type 1 & 2 brittle asthma, a constant...

      RHMLucky777

      Read More

      As a life long patient, I take offense to your comment.  "You HAVE" to treat the staff with respect and be kind...", and what does the staff HAVE to do? 

      I have had so many experiences with so called 'medical professionals' and I ALWAYS start out kind and respectful, no matter what distress I am in (I have type 1 & 2 brittle asthma, a constant headache for OVER 3 YEARS, osteoperosis, Cushings...) and more often than not I do not get respect and kindness in return.  The downward spiral of healthcare providers is SHOCKING at best, and what this person is going through - being labeled a drug seeker - when she is suffering and not getting any aid from any source is unconscionable. 

      Patients NEED to stand up to their medical professionals, make themselves as clear as possible, and as blunt as possible. 

      It is my experience that it is the rare physician who actually cares and TREATS their patient anymore.

       

      To the migrane sufferer:

      I am so sorry for what this ER has done, and I would definately vocalize my protestations, to the hospital admin and anyone else who holds credibility with this ER and the 'medical professions' you saw.  If you are unable, and advocate is an excellent idea...

      Make all your care takers (primary care, neurologist, etc.) aware of this and see if they can do anything to help clear this slanderous title off your medical records.

       

    • Anonymous
      Zo
      May. 14, 2008

      Well said.

    • Shell
      Sep. 26, 2010

      I agree! I'm labeled as a drug seeker, and I have had 9 surgical procedures(lithotripes), 10 ureter stents, a major operation where the Urologist took 3 (9mm, 5mm, and a 3mm) stones out of my left kidney and out of my back! All in one year. Then on the 15th I have knee surgery, and I call my Orthopedic surgen's office Thursday and Friday to tell him that...

      RHMLucky777

      Read More

      I agree! I'm labeled as a drug seeker, and I have had 9 surgical procedures(lithotripes), 10 ureter stents, a major operation where the Urologist took 3 (9mm, 5mm, and a 3mm) stones out of my left kidney and out of my back! All in one year. Then on the 15th I have knee surgery, and I call my Orthopedic surgen's office Thursday and Friday to tell him that the pain meds he gave me for a week, ( wed-wed) was gone and I was (and still is) in a great deal of pain! His nurse said to go to the ER, that they would help me there! (this has also happened 3 other times this past month with different illnesses!)

      So, I go there. I had been up all night crying, and in horrible pain. The triage nurse was nice enough. I was put in a observation room with a camera! I yelled for a nurse about 3 times, because I had to go to the bathroom BAD! She said she'd be right back and never came back. (Remember now I have 6 staples in my left knee from surgery the 15th) The "ER Doctor" and some woman, comes in the room, and is very rude to me, and says first off "I'm not giving you any pain medications", I was like ok, I didn't ask for any, I hadn't even got to tell him that I slipped in the tub trying to get out of it! So he says, "so what's wrong with you? And I had a bandage over my staples and here he is trying to bend my leg in different ways, ( I'm not supposed to mess or bend it until physical therapy), He hurt me and I screamed and cried and then he sees the bandage and pulls it down really rough and says, "Where you get staples?" I said surgery, then he points out that I am on 5 sedatives (which I take due to mental and other physical issues), tells me that's why I slipped and he walks out of the room. I told him to call my Orthopedic Surgens office, and he wouldn't listen. I had all of my meds with me! I had the envelope of where after the surgery they gave me instructions. Now, how in the world does he have the right to deny me help and he never looked at my papers from surgery? ER's around here can kiss my butt! I have only had 3 perscription of narcotics in over 8 months and I've had 2 surgeries and found out I have hypothyroidism! OH don't forget the stone I actually passed! A couple weeks ago! I didn't get to go to the bathroom till 2 hours later! Oh yeah.... I also have Fybromyalgia too.

    • arnsmom
      May. 01, 2008

      I have always been kind and considerate when I go in. I have asked them to call my dr to verify my condition...I have asked them to look at past records to prove that I am not there seeking drugs. I have never been rude or disrespctful in any way. I have however been very hurt and have lost trust in that hospital, Doctor and health community in general. They...

      RHMLucky777

      Read More

      I have always been kind and considerate when I go in. I have asked them to call my dr to verify my condition...I have asked them to look at past records to prove that I am not there seeking drugs. I have never been rude or disrespctful in any way. I have however been very hurt and have lost trust in that hospital, Doctor and health community in general. They have a responsiblity to treat my pain and not assume anything. They dont know me...they dont have my pain...and what about treating the person suffering with respect and dignity??

       

       

    • SkooterSnowy
      May. 01, 2008

      I completely understand and I am so sorry for the horrific experiences you are enduring and that are compunded by the indifference by those who are supposed to help....

      Like somene else said after my response, keep the faith, there are still some good docs out there who still do their jobs and help their patients, it is just finding him or her that is frustrating........

      RHMLucky777

      Read More

      I completely understand and I am so sorry for the horrific experiences you are enduring and that are compunded by the indifference by those who are supposed to help....

      Like somene else said after my response, keep the faith, there are still some good docs out there who still do their jobs and help their patients, it is just finding him or her that is frustrating.....

      I wish you much luck and I hope you can get some relief soon...

      I have had a non stop headache for the last 3 years and have yet for one of my physicians take me seriously muchless attempt treatment!  So I can feel you pain!

      Good Luck!

    • Louisa
      May. 02, 2008

      MSNP,

       

      Whoa, Nelly! I'd bet that arnsmom DID treat the staff with respect. I certainly do, yet I get absolutely NO respect in return.

       

      You said, "make sure to rate your pain high." What? We should always rate our pain ACCURATELY. People over rating their pain cause trouble for all of us. I can't believe that you -- supposedly a "health professional"...

      RHMLucky777

      Read More

      MSNP,

       

      Whoa, Nelly! I'd bet that arnsmom DID treat the staff with respect. I certainly do, yet I get absolutely NO respect in return.

       

      You said, "make sure to rate your pain high." What? We should always rate our pain ACCURATELY. People over rating their pain cause trouble for all of us. I can't believe that you -- supposedly a "health professional" -- would say such a thing!

       

      I also doubt that any of us need to be told about trying numerous meds.

       

      Please talk with us, not at us.

       

      Louisa

    • Anonymous
      G.D.
      May. 15, 2008

      It's a little ridiculous for you to assume that she was treated that way because she was unkind or disrespectful, and foolish of you (especially as a medical professional) not to realize that there are many dishonest, incompetent, lazy, and apathetic people in EVERY line of work, including medicine.  A person can be the most polite and cooperative...

      RHMLucky777

      Read More

      It's a little ridiculous for you to assume that she was treated that way because she was unkind or disrespectful, and foolish of you (especially as a medical professional) not to realize that there are many dishonest, incompetent, lazy, and apathetic people in EVERY line of work, including medicine.  A person can be the most polite and cooperative patient and still be treated with disrespect by hospital staff and have his/her illness or injury mismanaged.

       

      As far as health professionals having "many stresses," that's part of the job, and if they're so unable to cope with the stress that it affects patient care, then they need to find a different job.  You say that patients "HAVE to treat the hospital staff with respect and be kind, even in [their] terrible pain," and I agree on principle that people shouldn't take out their pain, anger, frustration, etc. on anyone else, but it happens.  And who do you think has a better excuse for not being polite?  The person who's in extreme pain, has been sitting in the waiting room for hours, and will be getting a large bill at the end of the ordeal?  Or the person whose job description includes stress, who is specifically required/trained to be able to deal with belligerent patients, and who will be getting a paycheck (most likely a large one) out of the ordeal? 

       

      One more thing, just when did providing appropriate treatment become considered  "going the extra mile?"   

    • Anonymous
      sandy
      May. 27, 2008

      I too am offended by the assumption that being in pain is synonomous with being demanding or rude. For years I have ssuffered with what the neurologist has labeled retractable migraines, and too often I am made to feel like a drug addict. When I do go to emergency, I usually leave with a headache that is 5 or higher. Doctors refuse...

      RHMLucky777

      Read More

      I too am offended by the assumption that being in pain is synonomous with being demanding or rude. For years I have ssuffered with what the neurologist has labeled retractable migraines, and too often I am made to feel like a drug addict. When I do go to emergency, I usually leave with a headache that is 5 or higher. Doctors refuse to discuss a limited rescue plan so I can avoid visits to the ER when my headaches are so severe I feel almost suicidal. All I want is to feel somewhat normal, be able to manage my migraines, continue to fulfill my career obligations with dignity, and enjoy the life I invision.

    • Anonymous
      Todd
      Jun. 12, 2008

      I understand that health care workers are under stess as is the rest of the world. But that is not a valid excuse for the frequent abusive and inatentive behavior of many of todays health care workers nurses to Drs. There needs to be a more patient acountable system for heath care. Yes I am aware of the frequent flyers as I am an EMT-B with a Vol.fire co. and...

      RHMLucky777

      Read More

      I understand that health care workers are under stess as is the rest of the world. But that is not a valid excuse for the frequent abusive and inatentive behavior of many of todays health care workers nurses to Drs. There needs to be a more patient acountable system for heath care. Yes I am aware of the frequent flyers as I am an EMT-B with a Vol.fire co. and have even seen the lack of care and crass treatment of patients even at this level and have reported there behaviors to state authorities on occation. When we who experiance severe head pain an others of the public seak help from "Professionals" then we ALL should be treated with respect and dignaty.

      Thats just my two cents worth but i feel its only common sence but that seems all but lost in today's sociaty.

  • trish
    May. 01, 2008

    How Terrible!

    I think alot of us have had the same experience.  Do you have someone that can be your advocate during the ER visit?  It is very hard when you are in such pain to have to deal with something like this ontop of a migraine!  Tell them to check your medical record and they can see you are not a drug seeker! Topamax has worked great...

    RHMLucky777

    Read More

    How Terrible!

    I think alot of us have had the same experience.  Do you have someone that can be your advocate during the ER visit?  It is very hard when you are in such pain to have to deal with something like this ontop of a migraine!  Tell them to check your medical record and they can see you are not a drug seeker! Topamax has worked great for me this time.  I had tried it a few years ago but the side effects drove me nuts! this time I am on a lower dose and can live with the tingling if it means fewer migraines!  I have not had a migraine for 1 week!Smile Hang in there, I hope your doctor can help you find a treatment plan soon!

    Trish

  • Nancy Harris Bonk
    Apr. 30, 2008

    I have a few thoughts on this issue:

     

    Since you have an ER plan from your neurologist, try a different ER or Urgent Care Clinic if possible.

     

    Can your neurologist do IV infusion therapy in his office? Breaking a Migrainous cycle can be done in a doctors office, instead of an ER. We have information HERE and HERE on this. 

     

    I...

    RHMLucky777

    Read More

    I have a few thoughts on this issue:

     

    Since you have an ER plan from your neurologist, try a different ER or Urgent Care Clinic if possible.

     

    Can your neurologist do IV infusion therapy in his office? Breaking a Migrainous cycle can be done in a doctors office, instead of an ER. We have information HERE and HERE on this. 

     

    I hope this helps.

  • Cindy
    Apr. 30, 2008

    I am so sorry you are having to experience this.  And unfortunately drug seekers to to the ER.  The ER that you go to, is it based out of the hospital your doctor practices out of?  I am wondering if you don't if that would make a difference?  Would the ER doctors be more likely to call and talk to the doctor to verify...

    RHMLucky777

    Read More

    I am so sorry you are having to experience this.  And unfortunately drug seekers to to the ER.  The ER that you go to, is it based out of the hospital your doctor practices out of?  I am wondering if you don't if that would make a difference?  Would the ER doctors be more likely to call and talk to the doctor to verify who you are and that the care plan is legit?  I am also trying to think what your doctor could provide to the ER to have on your record directly from his/her office (therefore not coming from your hands) that would assist them in knowing you are not there for drugs, but acute migraine treatment?

     

    Also all that being said, is it time for your doctor to provide you with better rescue medications to use on a limited basis to avoid the ER?  In the migraine forms that are available through this site many patients give themselves injections or use pretty strong narcotics on a limited basis.  They will have contracts and keep detailed records of the medications they use for rescue.  It maybe something to discuss with your doctor until you can get into see the neurlogist.  Repeated ER or even urgent care visits aren't good and they are expensive. 

     

    Take care,

     

    Cindy

  • COmtnmama
    Apr. 29, 2008

    I'm so sorry this is happening to you. I had this happen to me in 2006.  When I' made a complaint, the doctor put me into some database as a drug seeker. Just this past month it's caused me problems both during an ER visit for another reason and with my pain management doctor. I was very lucky to meet with a new primary care doctor on Monday. ...

    RHMLucky777

    Read More

    I'm so sorry this is happening to you. I had this happen to me in 2006.  When I' made a complaint, the doctor put me into some database as a drug seeker. Just this past month it's caused me problems both during an ER visit for another reason and with my pain management doctor. I was very lucky to meet with a new primary care doctor on Monday.  Turns out he also specializes in managing chronic pain.  I discussed the incident with him, and he just shook his head.  He says ER doctors see way too much drug seeking behavior and they are also under alot of scrutiny from the DEA etc.

     

    Unfortunately this doesn't help you very much when your head is splitting and you're desperate for some relief. How much longer do you have to wait before you see the neuro? I sure hope they are able to find some answers for you, and it's nothing as serious as a tumor. There are several drugs they can give you that are supposed to help prevent migraines including Topamax.  I started on that one yesterday.  Unfortunately, it makes me pretty loopy, but he says that this will pass.  Something that worked well for me in the past, from the root of the butterburr plant, is called petadolex. I'm going to order it again even though my headaches now are rebound headaches from overuse of chronic pain meds.  Unfortunately I'm not in a position to stop the meds so it's Topamax time.

     

    Have you tried any of the triptans like Maxalt? The kind that dissolves under your tongue works quickly. For my worst migraines, it takes two of them, but it does control the symptoms.

     

    Again, I'm so sorry that this is happening to you. I may not have any specific advice to give on how to deal with the ER, but I can let you know that there are a lot of people here who understand and sympathize with what you are going through.  I think it is reprehensible that we should have to deal with this kind of prejudice on top of the terrible pain we are experiencing. It may be our only hope is strength in numbers. I would like to compile a report of these types of experiences.  Perhaps make it an investigative journalism type of piece.  If you would like me to include your story, please send me a message in my inbox.  I understand you can go to my home page by clicking on my name at the bottom of this post.

    I know how difficult life must be right now, but please hang in there.  Migraines can be managed and quality of life can be regained.  Until that time, I will continue to hold you in the light.

     

    COmtnmama

    • Anonymous
      Barbara Huff
      May. 01, 2008

      I agree wholeheartedly with the previous comment.  Further, ask your MD for the INJECTABLE Imitrex.  I sounds scary but I used to inject it into the fat of my stomach.  The whole contraption is very user friendly and the needle is only about 1/4" long!

       

      If you must go to ER, state firmly that you are not there for narcotics but for an injection...

      RHMLucky777

      Read More

      I agree wholeheartedly with the previous comment.  Further, ask your MD for the INJECTABLE Imitrex.  I sounds scary but I used to inject it into the fat of my stomach.  The whole contraption is very user friendly and the needle is only about 1/4" long!

       

      If you must go to ER, state firmly that you are not there for narcotics but for an injection of Imitrex.  I used to go to Urgent Care all of the time, they would give me the injection, leave me a the dark examining room for 20-30 minutes and then, if I was feeling better (most of the time), I'd carefully drive the 1/2 miles home and go to bed.  I think if you tell the ER people that you do not want narcotics but a triptan to help your migraine, they might be more apt to listen.

       

      Also, as the other comment mentioned, talk to your MD about the Maxalt that dissolves in your mouth; that way, you don't have to worry about throwing it up :0(

       

      Good luck, I used to have migraines at least once a month.  Now that I am an old 57, I only get them about every 3 months.  Hang in there.............we know that it is rough.  I used to be in bed for three days with vomiting, diarrhea, and a knife in my skull that wouldn't stop.

       

      P.S. We have the same problem with our little town in southern Utah --- they have signs all over the ER area stating that they do NOT prescribe narcotics.  Sheeesh........what has the DEA done to those of us who legitimately need help?

    • Hunnybear
      Nov. 10, 2010

      Hi! I am very stressed and need advice..here is my store:
      I am 34 weeks pregnant with my 3rd child. I also have a 13 month old. Before becoming pregnant with my second child (2months to be exact) I had a laporascopy done for severe endometriosis. During that entire pregnancy I suffered from horrible lower right sided abdominal pain that no one could seem to...

      RHMLucky777

      Read More

      Hi! I am very stressed and need advice..here is my store:
      I am 34 weeks pregnant with my 3rd child. I also have a 13 month old. Before becoming pregnant with my second child (2months to be exact) I had a laporascopy done for severe endometriosis. During that entire pregnancy I suffered from horrible lower right sided abdominal pain that no one could seem to diagnose. Well after having our daughter we were not planning on having anymore children. Needless to say when she was 4 months old we found out we were expeecting again. I then began to see a new doc and suffered the same horrible pain. At 4 months pregnant I had a diagnostic laporoscopy after spending a month in the hospital. This also came up inconclusive. I was then referred to a pain management doc. It took him 10 minutes to diganose me with abdominal nerve damage due to the first surgery. I then received anesthetic shots in the wall of my stomach off and on to manage the pain along with medication. At 6 months pregent, my husband and I had to move to Nebraska for his career. I encountered so much trouble gettting approved for medicaid here and often had to be seen in the emergency room for the pain since we could not affordto be seen in the physicians office. The doctors new my situationa and were great at first. One doc saw me more than the others and increased my pain medication stating no pain management doc in nebraska would take me being preggo. I could tell i was becoming physically dependent o the medication and attempted to discuss this with him many times. Finally i said no more meds and called my doc to ask how to safely stop taking them. he told me just to stop and drink plenty of fluids and all would e fine. I did this and got very sick..and he was of no use! We found a place where i could safely detox from all of the medication. i spent 4 embarrassing days there. After about 2 weeks the pain became unbearable so i went to the doc I had been seeing. He was not in so I was seen by another physician. SHe came in and the first thing she said was " I see you went to rehab for addiction." I explained the situation and she sent me home screaming and crying refusing to treat me. My husband then took me to another nearby hospital and we explained what had happened. By this point I was also having sever pain in my back as well They did no tests. The doc came in and said "I have spoken with the other physician and we cannot treat you and you will not be recieving anmore narcotics for the remainder of your pregnancy!" I was crying so bad by this point and my husband was angry. We then went to a 3rd hospital where I used my maiden name. Well it turns out I was having contractios that were 3 minutes apart. They had to stop labor! This event has seriously affected me. We are now covered by insurance and trying to find a doc short notice close to us (not from one of th first 2 hospitals). I am soooo terrified of being treated like someone kind of addict. I am serioulsy have anxiety over this. I am affraid the birth of my baby will be overshadowed by what is now in my medical file when I legitimately did nothing wrong! I have had no medication in months. I have been in horrible pain and suffered through it. I have on appointment on THursday with a doc where I am going to explain all of this to, but I am affraid. Am I doomed to be treated badly?

       

       

      I would like to apologyze. After reviewin my previous post, I realized how many typing errors I made.
      I also wanted to note, that while being seen at both hospitals we had made it clear that I was not trying to get narcotics! I cannot go to the third hospial, because I did not use my correct information, which I am immensly ashamed of. My insurance has all of my correct information on it. I just wanted to clarify.

      "If ignorance is bliss, why aren't there more happy people in the world?"

    • sweetmaryjane
      Apr. 17, 2011

      I cant believe any of these stries. Its awful to know that people who are addicts ruin it fr the rest of us who have serious and chronic pain problems. I have degenertive disc disease and has a spinal fusion three yrs ago. Ever since then I have extreme migaines due to the rest of my back above the fusion having so much tension. It always starts as a tensin...

      RHMLucky777

      Read More

      I cant believe any of these stries. Its awful to know that people who are addicts ruin it fr the rest of us who have serious and chronic pain problems. I have degenertive disc disease and has a spinal fusion three yrs ago. Ever since then I have extreme migaines due to the rest of my back above the fusion having so much tension. It always starts as a tensin headache and blws into a full puking migraine. Once I start throwing up its the point of no return for me. I have been to the ER every few months for the last two yrs but it has slowed to only once in the last six months. I have been under pain management for 2 yrs. I think once your already on pain meds regularly it takes more strong meds to get rid of pain like this. I have never been called a drug seeker but its in the back of my mind everytime I go. They should be able to tell your in real pain by seeing your stats blood presure etc is raised. Yesterday I went in for a horrible one. They gave me a cocktail of benadryl, tramadol, zofran and dilaudid. It didnt work except for the nausea. So finally they came in and gave me a double dose of dilaudid and it finally subsided enough to go home. I cant help it that my pain requires strnger meds than other people and I hate having to be paranoid about going in to get some help. And I hate thinking the staff recognizes me because ive been there so often but its the only thing tht works