-
You are not alone
nutcracker1
Monday, February 04, 2008 at 01:49 AM -
Untitled Comment
Teri Robert
Monday, February 04, 2008 at 02:43 AMHi, Ronda,
You had also submitted this question to Ask the Clinician. Did you see the answer last week? If not, it's HERE.
Teri
-
Untitled Comment
Nancy Harris Bonk
Monday, February 04, 2008 at 03:15 PMHello, and welcome to MyMigraineConnection.com!
It looks like you have your answer to your triptan question. I hope it helps.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com.To stay current with Migraine disease and headache disorders, try subscribing to our free newsletter which you can get to on the upper left side of the home page.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,Nancy Bonk
MyMigraineConnection.com ExpertPS: If you receive this message from more than one of us, please excuse the overlap. Thanks!
-
Hello
Amy Ramsey
Friday, February 08, 2008 at 02:44 PMI know exactly how you feel. I am going through exactly the same thing. My neurologist has me on preventatives that don't help much. relpax does. they give me 6 relpax and maybe 10 fioricet a month. plus i am in nursing school. NOT GOOD FOR MIGRAINES!!!! Did I mention I have 3 daughters and 2 of them have also been diagnosed? one is 7 and the other is 5. They are given phenergan and motrin. But Everybody looks at me like I am crazy when i tell them tylenol doesn't help anything. I am on blood thinner so I can't take advil.So I get the feeling they don't care if i suufer!!!! LOL
I hope the topamax gets better for you It makes me dumb.

-
Untitled Comment
Cheryl Hoffman
Friday, February 08, 2008 at 10:53 PMHey Ronda-
I can only get 12 relpax every 25 days per my insurance company. The insurance is through my husband's employer and this is how it is written in the plan they purchased. No is, ands, or buts. But my doctor gives me a prescription for Relpax and Imitrex and I get them filled at different pharmacies, a couple of weeks apart. Hopefully, the insurance wont catch the 2 RX's for different migraine meds. Relpax definitely works the best for me, but the Imitrex I can take in a pinch and usually it is enough for a month- depends on the month. I was also on Topamax- 2 different times. The first time, for 3 months, it didnt work. Then I was prescribed Depakote and it worked great until I developed tremors in my hands and gained 10 lbs. So we tried Topamax again. This time it worked, but after a year, I lost my taste bud sensation and was sleeping soooooo much. I had quit my job and went into a state of deep clinincal depression. I was taking 2 hour naps in the morning, then 2 hour naps in the afternoon and almost 12 hours at night. It is called somnolence and, come to find out caused by the Topamax. Because of the loss of interest in anything sweet, sour, savory,salty and a known side effect of decrease in apetite, I lost 15 lbs in 8 wks. So, being down to a size 2 from a size 6 and none of my clothes fitting, I had to change meds. Now I am on Namenda and it is working ok- not great, but ok. so, until I can convince my husband's HR department to buy a better plan (maybe next year) all I can get is 12. Call your insurance company and ask them how many you are allowed per month. I have also heard of situations where you can get a case manager assigned to you who can authorize extra tablets if you got into an emergency situation. My insurance will not do this; I tried. 12 every 25 days- that is it. But I have heard of other companies that do this. So you may have to make some phone calls, but you may find out you can get 12 a month, yet your doctor only prescribed 6 because that is what she thought they would cover. That was my case, until I made a phone call. Now I refill every 25 days whether I need them or not. Now I have a little stockpile if I dont have to use them all. And with my doctor playing around with my horomones, I never know when I will need more one month and less the next. Plus, the back up of Imitrex helps mentally with the anxiety that I may get stuck with nothing and end up in the ER. Hope this helps-
Cheryl
re: Untitled Comment/Limitation to meds
ImNoGumby
Saturday, February 09, 2008 at 02:41 PMSome insurance companies will make exceptions if your doctor completes a form requesting an exception to the limitation. I asked my doctor to do so for my limitations for Imitrex and any related drugs, such as Relpax, Axert, etc. He was nice enough to give me samples on each visit of Imitrex and Axert. BUT, you also need to be aware that some of these meds should not be used together (on the same day). I would only use the Axert when I ran out of Imitrex (because it didn't work as well), but it was nice to have as a back up (instead of nothing).
I do agree that you should call your insurance company to find out what exactly your limitations are. Mine was something strange like 50 pills in a 72 day period - so I to would refill often and stockpile. Since there are so many different Prescription plans, you need to be your own advocate- and it helps if your doctor is also willing to meet you halfway. Most of them have samples of meds- so ask them if you can try some of the others, to see if they work. It's nice to have something else on hand as back up.
-
Why can't I have more than 6 Relpax a month
HJS
Saturday, February 09, 2008 at 01:29 AM -
I know what you mean...
Bryn Nick
Monday, February 11, 2008 at 02:02 PMHi Ronda:
If you arn't yet seeing a neurologist who specializes in migraine, find one. Your Dr. should be prescribing 12 Relpax per month. That's a dosage of 4 rescue meds per week which is all you should take to avoid rebound, which I'm sure you know is something you don't want. If your Dr. won't prescribe that much, find out why and without a good explanation, I'd find another Dr. My Neurologist started me on Topamax in December. At first, I hated the side effects of memory loss and peripheral neuropathy, but it was helping with the severity of my daily migraines. The last time I saw the Dr. I was up to 100 mg per day of the topomax and taking Relpax as a rescue med 4 x per week but still suffering 3 days per week with migraines I rated at a 7 on a scale of 1 - 10. The Dr. has increased my dose to Topamax to 200 mg. and I am a different person. I no longer wake up every day with a headache. I still get headaches in the afternoon but they are rated at a 3 or 4 instead of 7 or 9. The 7 or 9 headaches only come once or twice a week now. But be careful with the Topamax. You have to eat a balanced diet. It really does take away your appetite. I needed to loose weight and it has helped me to do that, but I wanted to do it the healthy way and when nothing sounds good, you really don't want to eat, but you have to and you need to do it the right way. Do not starve yourself or you'll be in for some really big trouble. But, there is hope for your headaches.
-Ask your Dr. why he/she is only prescribing 6 rescue meds when you clearly need more, if only 3-4 per week are taken will not cause rebound(Do not take any other pain medication as this will cause rebound as well)
-Ask your Dr. if increasing your dosage of Topamax would be a good idea for you.
Good luck,
Bryn Nick
Migraine sufferer, Living with it
re: I know what you mean...
thatsmisskitty2u
Friday, March 28, 2008 at 08:53 PMI wanted to ask you how quickly you began to notice the side effects of Topamax. I was just prescribed it today, and I, too, take Relpax as a rescue med. From all that I have read online, people experience memory and appetite loss. How soon did those side effects begin? Was it as soon as you started your 25 mg. doses or when they increased?
Thank you.
re: re: I know what you mean...
Bryn Nick
Sunday, March 30, 2008 at 05:39 PMI honestly don't remember, but some of the side effects have subsided somewhat. I would say they began fairly soon after I started the 25 mg. But once I got up to the 100 mg, they were readily apparent. I am at 200 mg now and have been for about 2 months. I still have trouble with my memory and the weight is still coming off, just slower, which is good. The headaches though have really subsided. I'm getting fewer and fewer and the severity is not as bad as it has always been. I still get a whopper or two around my period but they are fairly well controlled by the Relpax. Hope this helps. -
Why can't I have more than 6 Relpax a month
Ricka
Wednesday, February 27, 2008 at 03:39 PMHi Ronda...I am not sure if I am totally correct on this (there may be something else besides this)..but to answer your question about why you can only have 6 relpax a month; depending on your insurancecompany and your coverage you may only be covered for a certain amount on prescription costs (of course they aren't going to tell you that). The monthly price of my relpax alone is $350.00 for 12 pills, cut that in half and it's $175.00 (both are really steap prices). Migraines as you know are unpredictable, because you may have 4 in one week or even more, the likelyhood of (either one of us) using more than 6 relpax in a month is definate. Your aura is defiantely different...lol I have the tunnel vision and some dark spots with pressure that makes by eyeballs want to pop out of my head. But an aura is an aura and I am greatful (oxymoron I know) for them, it lets me know when to make my grand exit from the building, room etc. lol (no sense in vomiting on the floor in public) Anyhow, I hope that helps you out, you might want to find out the limit on your prescriptions as far as spending goes, you might have to pay out of pocket for more pills than they cover. In the meantime good luck. :) -
you should be able to
thatsmisskitty2u
Friday, March 28, 2008 at 08:47 PM -
Killer migraines......
mj carr
Sunday, March 30, 2008 at 07:41 PMI, too have suffered from bad migraines since I was 3 yrs old. I am now 52. I am now on Topamax 2 yrs, and finally figuring out that foods DO trigger the migraines, but it doesn't happen til 4-16 hrs later. Most of the food trigger lists don't include onion or garlic, and they KILL me.,but I'm triggered by almost every other food on those lists. The good news is I'm FINALLY getting my head tamed. Diet is sort of blah, but I can live with that. I REALLY reccomend that anyone with migraine problem start out on aboiled chicken and rice diet for a couple of days, then SLOWLY add foods to see what triggers, and keep a log, 'cuz like I said, it lag by sometimes 16 hrs.Keep tryin. It took me a long time. JC -
Untitled Comment
ses
Thursday, February 26, 2009 at 03:16 AM
- Font size
- Email This
- Bookmark
- Thank you for your input
- Save
- RSS
- Report Abuse














You certainly are not the only one who sometimes feels as though the migraines will never improve. But please don't give up. Nowadays, there is a great deal that can be done.
If you are having frequent migraines, it may be time to seek out a migraine specialist. Take a look at this list:
Patient Recommended Migraine and Headache Specialists
In the meantime, ask your doctor why you are only allowed 6 Relpax a month. You are entitled to an answer.
It's possible your doctor is concerned about Medication Overuse Headaches. Click on the blue words for more information about this problem.
I hope you will come over to the discussion forum for further information and support. To get there, hold your mouse at either Manage or Connect at the top of the page, and click on Migraine Forums when the menu comes down. Registration for the forum is separate from the registration for this page, but you can use the same info to register. You would find the forum a place where a great deal of reliable information is shared, and a lot of support is given and received. We would love to have you.