Well, there is hopefully some hope in the horizon. After being treated very rudely by my regular neurologist and downright being told that I "wasn't well" by another on the same day. This is what he concluded on our first meeting, after simply going over my file, barely asking me any questions. I'm not well and therefore shouldn't be working nor going to school... Anyways, let's just say I don't really appreciate that kind of treament and don't really feel like going back to that clinic. Only thing is, this is the top migraine clinic of the province and here, everything works by referral. No referral = no specialist.
Anyways, back to the story, I had seen another neurologist, at a hopistal neurology department, back in the fall for a second opinion. He told me he was no smarter that he was no smarter than my current neurologist and could do nothing for me. That was the last I heard from him. Well, originally, I had been referred to the head of the department who had had me see this guy. So I get home last Friday and out of the blue, I have a message on my machine saying that the head of the department doctor has referred me to someone else and that they need a daytime number to contact me so that they can fit me in if there's an opening. So... any day now (I hope it's not before I finish school on the 26th but she said it might be) I could be getting a call to come in!
2nd hope of hope - my OT had wanted to send me to the pain clinic, but my doctor (who also deals a lot with people with substance abuse problems) won't refer me for fear that they give me something I'll get addicted to. So my OT has a friend who works as a physiotherapist at the pain clinic and she talked to her about me. She said that they don't usually treat people with migraines at the pain clinic (they usually find more relief at the migraine clinic I've been going to for the past 5 years), but that from what she's told her, physiotherapy may help me. So my OT will talk to my doctor about a possible referral to PT. There is a 4 month waiting list, but I've been dealing with this for 15 years now, I think I can survive another 4 months.
So here's to hoping! 
HI
My name is Bev
I am in Canada where are you
AI went to a migraine clinic you can research it by migraine clinic.ca
brendan cleary is the dr name georgetown ontario
canada
I went to neurologist had cat scans mri was on every beta blocker out there
I remember going to a dr one time he said we are going to try this new med, and I said oh I've probably already tried it, i think he thought i was kidding, he said could you name a few medicaitons you have tried, I said i can name them all and the mg and their side effects if you want and I started he stopped me and said, oh I guess you have tried alot, I said I dont want any more drugs i want an answer
I f there is any way of you getting to this brendan cleary you should try feel free to post if you want more info
good luck bev...
I saw another migraine specialist a couple months ago and she was very sweet. She said she knew my regular doctor and that she knew what she was doing, so I should continue seeing her. She also said she understood that I needed to hear from more than one person that CDH is one of the hardest things to treat may never go away. Nevertheless, she is sending me for an MRI (I'm still waiting for my name to come up on the list) since I've only had CT scans and EEGs in the past. She also recommended biofeedback. I have been put on the 'short' waiting list for physiotherapy. The wait is about 2 months, so I should get a call soon, hopefully.
I have renewed my relationship with my regular neurologist, so things are alright there. I see the new one for a follow-up on the MRI in December. This is the clinic I have been attending: migrainemontreal.com
You should think about adding the name of Dr. Cleary to the patient-recommended doctor's list - there are not nearly enough Canadian doctors on that list.
Thank you for your advice!
hi thanks for the note back how do i out his name on the list i have just started reading this site wher do you live and how often do you get the migraines
bev
he is actaully an acupuncturist yeah i know so people dont beleive in them and i had been to many before him but he truly helps
bev
Hi Bev,
I don't know whether they would put an acupuncturist on the list, but he does seem to specialize in migraines, so it's worth a try. I'm not sure how you would go about putting his name on the list... your best bet would probably be to send Teri Robert a message, she is the lead expert on this site and would know how to answer that question better than me.
I suffer mostly from transformed migraine. So, it is present to a certain degree 24/7 - usually the discomfort/pain level averages a 5. The full blown migraine I rarely get, maybe 2 or 3 times a year. But I've been off preventatives since early July and am getting the 'big cahula' a few times a week now. The transformed migraine has also soared in the past few weeks.