Migraines worse after Botox

leg78 Community Member August 30, 2009
  • Hi everyone,

     

    I've had chronic daily migraine for 13 months and have tried numerous preventives, triptans, DHE infusions, acupuncture, and others.  I just saw a new headache specialist at a reputable headache and pain clinic who gave me Botox.  The doctor believed my headaches could be partially related to muscle tension in my back and neck.  All of my pain is left-sided (around temple and left eye0 and the injections were along the left side of my spine, base of skull (left side), and above my left temple.  I actually didn't have a headache the morning of my appointment, but had some mild pain after the injections.  The next day, I had a severe migraine (felt different than usual) that has persisted for 3 days.  I've had minimal relief with Maxalt.

     

    My question is - has anyone had Botox injections and then experienced a temporary worsening of their headaches?  How long did it last?  This migraine feels different than my usual pain and I am hoping that it is short-lived and I soon feel some improvement.  Any other info on your experiences with Botox (positive or negative) would also be helpful.

     

    Thanks!

3 Comments
  • bri83
    Sep. 03, 2009

    My first treatment of Botox was the best! I felt like I was brand new. I didn't have migraines for 6 months after that. I never felt like that again though. I continued with Botox for a year and a half or so following that first treatment. I never had the same releif and the more I did it the worse it got. My shots were on my eyebrows, temples, base of my neck,...

    RHMLucky777

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    My first treatment of Botox was the best! I felt like I was brand new. I didn't have migraines for 6 months after that. I never felt like that again though. I continued with Botox for a year and a half or so following that first treatment. I never had the same releif and the more I did it the worse it got. My shots were on my eyebrows, temples, base of my neck, and shoulders. The last time I had Botox was the worst because my right eyelid started drooping to the point where I couldn't see out of it and it got inflamed and infected. That was the last straw for me and the doctor giving me Botox wasn't ready to stop. My migraines came just as often and it didn't matter if Botox was in my system or out of my system.

     

    I don't want you to feel like it's a lost cause. I have heard it worked for other people, although I do not know what class of migraine or headache pain they had. You should research it some more if you are unsure and talk to others who have your kind of migraine/headache and see if it worked for them. We are all different and react differently to medications.

     

    I hope this was helpful.

    • Anonymous
      Anonymous
      Nov. 29, 2009

      I have had botox shots for chronic daily tension headache twice.  The first time my headache worsened, so that I swore I would never do it again; then, after one month, the headches subsided and I felt almost normal. This lasted for two and one half months. So I am now in the pain phase of the 2nd attempt. It has been 2 and one half weesk since the second...

      RHMLucky777

      Read More

      I have had botox shots for chronic daily tension headache twice.  The first time my headache worsened, so that I swore I would never do it again; then, after one month, the headches subsided and I felt almost normal. This lasted for two and one half months. So I am now in the pain phase of the 2nd attempt. It has been 2 and one half weesk since the second set and my head feels constantly tight as in a vice grip. I am waiting for the relief in another 10 days, I hope!

  • Anonymous
    Ordiefam
    Sep. 01, 2009

    And it did not make a difference at all.  I still had my daily headaches.  Which we have found centered around the nerves at the base of my kneck.  My headaches did not get worse after, but they sure did not get better.  And my pain management doctor is not a firm believer in them. It probably depends on the type of headaches that you...

    RHMLucky777

    Read More

    And it did not make a difference at all.  I still had my daily headaches.  Which we have found centered around the nerves at the base of my kneck.  My headaches did not get worse after, but they sure did not get better.  And my pain management doctor is not a firm believer in them. It probably depends on the type of headaches that you get.

    I hope they find something for you soon:)