Sunday, May 27, 2012

No one understands !

By hopeless Sunday, January 15, 2012

I am on the verge of losing my job, due to migraines.  No one understands why it is impossible to go into work when I have an attack.  I have offered a letter from my Doctor, only to be told that won't be necessary.  My manager even had the nerve to tell me that he worked with someone who also had migraines but never missed a day of work.  Well that is great for him!  Wish I were that lucky.  I live alone, so I have no other income.  At this point I don't know what I am expected to due, I have no where to turn.  I feel so hopeless !

1/18/12 1:00pm

Hopeless,

 

I am so sorry to hear what you are going through. Is there an HR department or union rep at your job? If so, contacting them might be your best next step. Explain what your manager said to you in a non-defensive way and say you'd like an opportunity to explain how migraine disease affects you, since everyone who has it is different, and not everyone can work during an attack.

 

I know it's not easy, but try as much as possible to think of yourself as a neutral third party who has noticed a gap in the company's knowledge base. Do your research and be prepared. Bring information containing the full range of symptoms that can be experienced during a migraine attack as well as a written diagnosis from your doctor and a clear explanation of what you go through during each stage: prodrome, aura, attack, postdrome.

 

Be pro-active and ask what reasonable accomodations could be made if you were to experience an attack while at work, such as having a cool, dark, quiet place to retreat to while you wait for your meds to work, or having ice packs on hand or a vomit bucket handy, or whatever might help you, so that you could potentially return to work once the worst is over rather than go home. The point is to show that you are a responsible employee, want to work and have some ideas as to how to make it possible while you have a migraine.

 

If there is no HR department or union rep, you can do this directly with your boss by asking for an appointment to meet with him/her and if possible asking if an neutral third party can be present. These are just my personal thoughts based on having worked in a corporate environment while trying to cope with migraine. I hope this is helpful.

 

 

 

 

1/19/12 12:07pm

If your employer has more than 50 employees, and you have worked there for over 12 months, you are entitled to take advantage of the FMLA.  This allows you to take up to 12 unpaid weeks of medical leave a year which can be taken intermittently.  You need to have your doctor fill out a form and then submit it to your employer.  Here is a post that explains everything.

 

 http://www.healthcentral.com/migraine/c/11175/74237/work-intermittent/pf/

 

Good luck to you.

1/19/12 5:42pm

I am also sorry to hear about your work situation. It is sad that many people put all migrainers in one category. I have chronic migraines and just like you was on the verge of being written up for so many absences due to migraines until a friend who works in my department told me about The Federal guidelines that protect employees from losing their job due to illness.

Like the last comment contact your HR Dept and simply ask for an application for FMLA intermittent and the MD will fill out their portion. This will protect you when you are out sick or have to go to your MD due Headaches.

I know too well about this situation any questions you may have if not answered by your HR you can email me anytime

Feel better

 

Nancy Harris Bonk, Health Guide
1/19/12 10:30pm

Hello, and welcome to HealthCentral's Migraine Community!

What an awful position to find yourself in, I'm sorry you are in it. Let me see if there is any information, in addition to support, I can give you to help you through. How does that sound?

 

The Family Leave Act (FMLA) "FMLA applies only to employers of 50 or more employees, and entitles any employee who has worked for an employer for 12 months, to have up to 12 weeks unpaid leave in any calendar year to care for their own or a family member's medical need...." to keep reading more about this read When Migraines Make You Miss Work: Intermittent Leave under Family Medical Leave Act. Another important article you may want to read is: 

Working with Migraines: Rights under the Americans with Disabilities Act.

 

How about a new doctor? Maybe it is time to think about seeing a Migraine specialist. You see, neurologists may be fine doctors, but have a hard time being experts in one area. This is because they treat so many conditions like MS, epilepsy and stroke. A Migraine specialist is just that, an expert who treats one condition - ours - Migraines and headache disorders. When you get a chance, take a look at article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs at the top of each page, you'll find a wealth of information - educational articles, tips, quizzes, workbooks, support and advocacy information, and more.

Do you have questions about Migraine? There are three ways to get answers - through our Ask the Clinician column, in our community Question and Answer Section, or through our forum.  Just go to our Migraine Answers page HERE.

 

Our email newsletter will help you stay up-to-date on Migraine and headache news and new information published on HealthCentral's MigraineCommunity. To receive our newsletter, click the "Sign up now!" link in the navigation bar across the top of our site pages or simply click HERE.

Welcome again,

Nancy Bonk
HealthCentral's Migraine Community Manager

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

 

1/23/12 9:29am

I feel your pain.  I lost TWO jobs to migraines.  They were very good with me in the beginning but I did miss a lot of work due to the migraines and my rebound headaches.  I have been unemployed since last October 2010.  And did you know you can't get disability for them?  I've gone through two neurologists and am now seeing a headache specialists.  I can't take all of the meds because of a heart condition, I told them about the 4+ concussions I've had since childhood but no one will listen to me.

 

I wish you well - just make sure you document everything!!!!!

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By hopeless— Last Modified: 01/23/12, First Published: 01/15/12