Hello everyone from Migraineville AZ,
I'm just putting this out there. It was stated that it was highly unusual in a recent answer to a sharepost to see 8 periods of aura a day. I suffer from constant aura - or what I call visual pollution. It occurs with or without headache twenty four hours a day, seven days a week - regardless of my preventative regimen (Lamictal was supposed to be an aura reducer - didn't work) - it is always with me and is an unwelcome part of me - when it is milder - lines dots, monochromatic, I can tolerate it -when it is worse it still frightens me even after suffering from constant aura since 2003-2004. There are some aspects of the visual disturbances that present themselves as new, even after all this time. Whether I will ever come to terms with it - I don't know. I know Deb back east ("Weathering Migraine Storms") suffers from constant aura. I think there are more of us than perhaps the site realizes. It's not much fun being "unusual," but I think there are more of us than perhaps the migraine community in total realizes.
As I write this the black sagging lines so familiar to me float over the font.
This is my life.
Your friend in migraineville AZ
Ian
I live with constant aura and it's physically and mentally exhausting. Continual visual glitters, blobs, lines..you name it. They are colorful or like a shimmery silver. They are part of my daily life. It's so hard to try to live a normal life when there is always a glitter blob or missing vision covering everyones face. I can get 100's of these in a day. I also get the complete scintillating scotoma aura which causes vision loss in both eyes for 50 minutes. Mixed in with all this crap is numbness, tingly spots, weakness in an arm, leg etc..,confusion, speech problems, vertigo, phantom smells...what have I missed? I see my neuro once a week right now and he is really baffled by me. I recently started Lamictal (2 doses) and got hives everywhere....so now as I popped Benadryl, I will cry...and figure out if there is anyone/thing that can help me.