Migraine and Headache Awareness Post #30 2001: A Space Odyssey - A Letter

  • In today’s Migraine and Headache Awareness Month blog prompt, we’re looking at Hal the computer’s statement, "I am putting myself to the fullest possible use, which is all I think that any conscious entity can ever hope to do." Our challenge: Write a letter to a fictional Headache Disorders patient encouraging that person to be kind to him or herself. Use the ways you're too hard on yourself as inspiration.


    Dear Migraine friend;

    I’m writing to tell you that I have seen you struggling lately. I know that surviving with chronic Migraine and painful days that never seem to end, is very exhausting and discouraging.

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    It’s easy to lose hope and find ourselves drifting from one task to another, from one day to the next. Before we know it, life has passed us by and that makes us even more discouraged because as our past grows, we see our future shrinking.

    Most of us equate hope with the future, and when one shrinks, we can’t distinguish it from the other.

    I want you to know that you are not alone.

    I also want to tell you what others may not understand… that you are a warrior.

    Warriors are strong, but beyond all else, they persevere. Every time they get knocked down, they get right back up and face the enemy. They also learn that sometimes it is okay to back down and sacrifice the battle to win the war. They think into the future and do what is best in the long run. They do what is necessary for the love of a few, because it is easier to focus on those few, than for those who are less important.

    Others wonder at the warrior’s success, when it really always boils down to getting up one more time than the other guy.

    It’s okay to take a break. Resting is recharging our bodies, and when we are weak, that’s especially what we need.

    It’s okay when weakness gets the best of you. Weakness of the body and the soul is inevitable when fighting every day to live your best. Being sick is exhausting. Those who don’t understand this fact today, will eventually be in a situation where they will likely learn to understand you better, later. It’s almost always a matter of time. But I challenge you to ask yourself this question: Does it really matter if they understand it, so long as they love you anyway?

    It’s okay to break down sometimes. Breaking down is the reset button of life, and something we all need to do once in a while. Take your time, do what is necessary, and then move on. It’s okay to let others take care of you for a while. When you let them help you, it is a gift you give them that makes them feel less helpless and more a part of your world.

    Getting angry is not a weakness, but in fact shows strength when the anger is used to create something positive. Use it to re-strengthen your resolve to find a better life for yourself despite your illness.

    How you live with chronic illness is up to you. But I want you to remember that, so long as we have doctors working to help us, we have hope.

    Hope for a resolution to pain.
    Hope for better treatments.

  • Hope for understanding.

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    Hope for a better future.

    Remember that hope is our lifeline, but one that must be grasped.

    Don’t lose your hold, I’m hanging on there with you.


    June 2013, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The 2013 Migraine and Headache Awareness Month Blog Challenge is a project of FightingHeadacheDisorders.com.



    Live your best life,




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    © Ellen Schnakenberg, 2013.
    Last updated June 30, 2013.

Published On: June 30, 2013