Tuesday, May 15, 2007
I just got back from seeing a Migraine specialist who is supposed to be one of the best in the state. He is not accepting new patients, but is going to coach my primary care doc, which I feel is above and beyond his call of duty and appreceate.
The problem is he I see no hope. Repeat Tomamax for the fourth time and go to an infusion clinic (so much better than ER) But I don't know what to expect.. He feels he knows what will abort my headaches, I hope he is right. Pain management has been a hell of an argument for the last few years, and he seems to be willing to help with that..
I was planning on taking Lupron very soon to stop ovarie production. This doc says that he would not support that option because there is a %50 risk that the shot will cause a migraine for the ENTIRE month that it is in my system!! OH GODS!! So he wants me not to do it... That was my last hope. I would do anything to stop these headaches! I am a burdin to my family and my doctors. I have not worked in years. 7 years ago I went from having a migraine about 4 times a year to this, a migraine a couple time a week and a headache almost every day!
Is there a life after these horriffic things!
Can anyone help with hope?
The problem is he I see no hope. Repeat Tomamax for the fourth time and go to an infusion clinic (so much better than ER) But I don't know what to expect.. He feels he knows what will abort my headaches, I hope he is right. Pain management has been a hell of an argument for the last few years, and he seems to be willing to help with that..
I was planning on taking Lupron very soon to stop ovarie production. This doc says that he would not support that option because there is a %50 risk that the shot will cause a migraine for the ENTIRE month that it is in my system!! OH GODS!! So he wants me not to do it... That was my last hope. I would do anything to stop these headaches! I am a burdin to my family and my doctors. I have not worked in years. 7 years ago I went from having a migraine about 4 times a year to this, a migraine a couple time a week and a headache almost every day!
Is there a life after these horriffic things!
Can anyone help with hope?
Hello, and welcome to MyMigraineConnection.com!
Please don't lose hope. While I agree that it's great that this specialist is wiling to "coach" your PCP, if that doesn't work well, please consider going to a specialist who will actually take you as a patient, even if it means you have to travel to get to one. There are NO specialist in my state, so I chose to drive 8 hours each direction to get to one. It was the best thing I've ever done for myself. Went from an average of five Migraines a week to not even one a month.
I'll admit that I don't understand trying Topamax for a fourth time uless your previous trials were unsuccessful because your dosage was increased too quickly or some other issue. There are over 100 medications that we can now use for Migraine prevention, and virtually endless combinations of them. More options than we've ever had before!
I can really understand why he advised against the Lupron. There's no way to predict how your body would react. You could have fewer Migraines, more Migraines, or see no change at all.
Just please don't lose hope. I really do know how you feel. There are directions below for finding our discussion forum. Please think about joining us there for information and support. I promise you that everyone there will understand.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Teri Robert
MyMigraineConnection.com Lead Expert
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!