Sunday, May 27, 2012

Finally got to see a Headache Specialist

By MLEBEAU Saturday, December 12, 2009

I've been experiecing migraines for 15yrs and was seeing the same neuro for 6 yrs or so and had me on Topamax, Deseprimine, Vistiral and Frional. With those had only minamal sucess. Within the last 3-4 moths my migraines have increased severely then he chose to change my preventative to Depacote which was not a good experience for me it gave me sever chest pains and wound me up in th hospital.

 

He finnaly recommened me to a Headache Specialist. I went last week for the first time and it took about 2 1/2 hours and he seemed like he really listened to me and I didnt feel crazy. He has had me take another MRI AND EEG which I'm still waiting on the results and has changed my meds.

 

 I 'm very happy that I have finally got to go. Just wandering how long does it really take for new medication to start working. I'm now on other meds which are Pristiq,Bistolic and Frova along with the Topamax, Frional (which I'm being weened off), Vistaril and Deseprimine.

 

 It is pretty discuraging still having some form of headeache every single day of my life. I feel like the life is being sucked right out of me. Is ther really any hope. I'm just lucky that I have a wonderful understanding husband and son.

Nancy Harris Bonk, Health Guide
12/12/09 7:40pm

Hello, and welcome to MyMigraineConnection.com!

 

 

Great job getting to a  Migraine specialist. See the thing is neurologists may be fine doctors, but aren't usually experts in one area because they treat so many different conditions like MS, stroke and epilepsy. A Migraine specialist is just that, an expert in one area - our - Migraine and headache disorders.

 

Unfortunately when we start new medications it can take up to three months before we see a reduction in our Migraine frequency and severity. I know that feels like forever, but once the new medications "kicks in" it hopefully will be worth the wait.

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

12/12/09 9:36pm
Thank for the reply and good to know there might be a little light at the end of the tunnel
Anonymous
JoMorningstar
12/17/09 2:28pm

Ive had migraines for as long as i can remember, which is back to age 3 yrs and I am 57 yrs. Smile

Ive tried all the allopathic medications, that various drs have put me on, and some worked for a while, but it seems that my body builds up a resistance to them after about 4 or 5 months. Then the migraines come back, sometimes more severe then they had been.  The drs then either up the dosage or try me on something else.. This cycle has been repeated for way too long.  

 

So I got fed up, with their attempts and began looking into *why things work*.  I have done a lot of research on the internet, and reading about different herbs and how they help the body. What i have found is that taking Milk Thistle 3 times per day (I am currently taking 2-1000mg per dose), has improved my body's reaction to medications, I do not seem to get *resistant* to the meds i was on. That was good news, I thought.  Then I added Cinnamon (Im currently taking 6-500mg/ dose) to the Milk Thistle times.  This also has helped the Migraines, and i was able to drop one of the medications, Which contained Caffiene)

 

Cinnamon also helps boost the immune system, as well as helps the body regulate the blood sugar levels, and also helps to lower blood pressure. As I also have severe exercise induced Asthma, (most episodes are triggered by an increased heart rate, which then triggers shortness of breath, and I then start sweating. Stopping to rest, taking long deep and slow breaths, and cooling my blood (either sticking snow on wrists and hands, taking off jacket or sweatshirt, or wetting face and sticking in front of a fan) I have found that the Cinnamon has helped avoid an elevated blood pressure at these episodes. 

 

My current prescriptions (which i only take at onset) for Migraines are Promethazine for the the nausea, it will also ward off some migraines all together,( although i have not had as much trouble with nausea as earlier, other then sudden, no warning 'hurls', which appear to just be one 'burst' and no more) Naproxen Delayed release, (which i take on the second day of a 'mild' migraine) and those that get severe to the point that pounding my head on brick feels oh so much better, i take one oxycodone (5mg). 

 

The Milk Thistle, Cinnamon, Grape seed Extract, and B vitamins help My body to only require smaller doses of meds.  OH. i also take 400 mg of gabapentin, for nerve tingling.  

I eat as healthy a diet as I am able to do, since I have a LOT of food allergies (no not intolerances, true allergies, as they cause my throat to swell shut!) I am as active as is possible, I was born with 3 mild to moderate forms of Spina Bifida, Primary Immunodeficiency Disorder, and have acquired Sero-negative RA, along with Severe Exercise induced Asthma, Reactive Airway disorder, and 'other polyarthropathies'. Im also allergic to several classes of medications, as well as yellow #10. (which put me in ER after taking one prescription tablet that was a faint yellow in color. NOT fun, for 8 hrs i could not talk, and for 12 hrs after that i sounded like Minnie Mouse on Helium!) 

 

I also use a Medical Alert Service dog, who is specially trained to alert to changes in my breathing patterns, dropping of oxygen saturation in my breath, increasing heart rate, and oncoming pain spasms.  My Great Pyrenees Sdog is so much better at this then my previous sdogs were, that for the first time in my life, i have been able to be a bit more active, then previous. She is also big enough to stop me in my tracks and prevent me from pushing to the point of collapse.  Awesome Dog!!! I have had a Medical Alert service dog my entire life, long before the term was ever considered. 

By MLEBEAU— Last Modified: 12/06/10, First Published: 12/12/09