a PFO journey

bimini colt is truly amazing Living With It Hi, I have been experiencing migraines for much of my life, but... Send Message Subscribe: bimini colt

Saturday, March 15, 2008
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On October 31st, Dr Marek Gawel *neurologist* took his time examining me, and at the end of the exam, asked me if I had a PFO. I said "not that I know of" He said " I have a feeling you have one, would you consider being in a study?" I said sure. So he promptly brought in his PFO ...

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Hang in there.
AndrewsMom
Sunday, March 16, 2008 at 05:37 AM

Bim

I'm sorry to hear about that. Isn't there another way to get that PFO fixed without being in the study? It sounds like you have a large hole in your heart. Why woudn't a doctor outside the study fix it?
You are in my thoughts and prayers.

Take Care
Jean Ann

re: Hang in there.
bimini colt
Sunday, March 16, 2008 at 10:21 AM

Hi JeanAnne
Thank you for your reply
The dillema is the following... the device to close the defect non invasively is experimental... hence the need for the study.

The other way to close it is to "stitch it" in a manner of speaking, through open heart surgery, but in Canada, cardiologists aren't apt to perform this invasive surgery "just for migraines" you have to have a history of pfo related strokes.

So either I give up hope, or I pester every cardiologist in Quebec till I find one willing to close it through open heart surgery without the stroke prerequisite.

I know its nuts to even consider open heart surgery, but large pfo's like mine really affect your health!

thanks for your thoughts and prayers...
bim

re: re: Hang in there.
AndrewsMom
Sunday, March 16, 2008 at 12:54 PM

Bim

You have had such a tough time. I will be thinking of you. I hope you can get that PFO fixed.

Please take care.
Jean Ann

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Kelly
Sunday, March 16, 2008 at 03:55 PM

Oh Bim,
I'm so sorry to hear it has been a frustrating journey with this PFO. I will keep you in my prayers and praying that you are able to find a solution. Keep us updated.
Hugs,
Kelly