frustration!

After being told that I wouldnt go further in the PFO study, I was referred to an arrythmia specialist. He told me he thought I had a form of dysautonomia called "P.O.T.S" which is often comorbid with migraines. He sent me to my Canadian neurologist, who referred me to another specialist to get the test done to DX. I was made to believe the test was june 12, so the neuro told me to get off topamax, since I had to be med free for the test.

In reply to "what med after topamax?" he said " well topamax isnt working, so I guess you don't need meds. " HUH? After confronting him about that, he said " well MAYBE I'll try some meds later on, you never know, but not till after the test results."

SO I wait for Dr Young's opinion before tapering off. His opinion was I should taper off then after the results, start effexor.

Late may, I called to see if it was really the test or just a consultation. sure enough, just the consult , and the test would be " 6 months, a year, who knows. you're lucky you are being treated at all"

So I'm left with no meds for "6 months or a year?" I'm beyond frustrated. My migraines started getting worse almost immediately when I started going off the topamax, and by the time I was at the lowest dose, I started some seizures again.

I feel so betrayed by the Canadian health system, it's just driving me insane to think of the lack of caring, not to mention the fact that the neuro who told me i didnt need preventative meds is one of the top migraine specialists in Quebec! Why is it that I have so much trouble finding a decent Canadian neurologist!?

Ugh! I'm just a mess about the whole thing and my migraines are back to daily now, being off topamax. There's only so much a gal can take!

All my love and hoping you are having better pain relief than me!

Bim